My one year has just been diagnosed with sm. We live in Ireland where there is no specialist in the area. We would like to have her seen by a paediatric specialist in the UK. Does anyone know of an centres that specialise in sm in children where she can get treatment?
I see a doctor in Knoxville Tennessee who is also works at the children's hospital and he specializes in mast cell. His name is Dr Andrew Singer. I hope this helps.
The Canadian website for Mastocytosis (Mastocytosis Society Canada) has info about doctors. Also try TMS For A Cure website or Facebook support groups like Mast Attack .... or the Mast Cell Activation Integrative Approach gorup.