Hi there, I've had raynauds for around 10 years in both hands and feet quite severely, still unsure wether it's primary or secondary. I've tried nipifidene, but makes me feel very unwell?!?! I have many attacks daily and often get chilblains, but it's the excruciating pain I get in certain fingers that's the worst. When the blood supply is coming back I can only describe as my finger tips being cut off and dipped in vinegar?! Brings me to tears and takes my breath away....this is a new symptom for me. Anyone else also similar?!
You have defiantly described the pain very well I have the same pain in my little toe & have many attacks through the day and night I'm on nipifidene but a low dose I'm fine on it & think I need my dosage increased. I've also got a sleeping tablet now which is given me a few hours sleep as I was having attacks every hour I've had this pain constantly for over a month it's driving me crazy & also brings me to tears almost every day it's pain that no others would understand Raynaulds is the worst ever x
Hi I was about the same as far as pain level goes until they did a flolan treatment about a year ago. Now it's mostly just a red color that still hurts and burns but at least it doesn't look like I'm dead, lol
​They first tried me on Silendifil, two different blood pressure medications, nitro patch, cellebrex and probably a couple i'm missing but the most effective was the flolan..
Hi, I am required to heat my room to 83 F (29 C). There is no part of me not affected. I was stupid enough not to stay warm when needed, now I must heat my room all year around.