Thanks, you made me feeling better with your encouraging words. So kind of you.
Prayers for you!!!
dont have the moon face thoi think most of us have earache and headaches, as i am finding out my left ear aches,
Does your doctor understand that you are experiencing serious pain? I think that means you have out-of-control inflammation, meaning the PMR is raging away. The only good thing about PMR is that there is a drug that helps... true, at the cost of side effects, but I can't imagine what it would be like trying to live with my pre-pred excruciating pain for a couple of years waiting for the PMR to go away.
We may have to live with fatigue and some limitaitons on our activities, but I don't think anyone with PMR should be in debilitating pain (other than those who cannot take prednisone). I don't understand the rationale for not giving you the medication that will stop (or greatly slow down) the inflammation and pain.
It seems to make little sense to reduce the dose if the current dose is not providing total or at least almost total relief. Why would one not expect things to get worse?
Between the excellent advice and references Eileen and Christina have offered and the cautionary tales from others about bad outcomes from too rapid reduction, I hope you and your doctors can get you in much better shape. And soon!
My usually totally tactless brother described my newly chubby cheeks as giving me "a more youthful look," and I decided to go with that! Hang in there!
No wrinkles on a balloon! I've lost the hamster cheeks - and now have wrinkles for the first time in my life. You can't have it all ways...
So the hamster cheeks are not all that bad....