Hey everybody first time poster here!
So in regards to chronic pelvic pain or prostatitis.....i've been suffering with this for probably a good nine months. I've gone through the whole gamut of antibiotics and alpha blockers and all that stuff. And of course all the tests were negative.
Recently I went to a world renowned urologist in New York City, dr Kaplan out of Mount Sinai Hospital.
He's convinced and so am I at this point that I never truly had prostatitis at all. Upon further examination of my muscles in my rectum he said that they felt tight as a bowstring. I'm going to be starting pelvic floor therapy next week.
But something occurred to me today that is completely bizarre.
In the last nine months I have had cytoscopys, uretherial swabs, urodynamics etc.
The strangest part is this, anyone else experienced this please chime in and let me know.
When ever there is some sort of trauma to my urethra being at a scope or a swab, The urge to urinate is gone for at least two weeks. Those two weeks or so I feel pretty much normal.
Has anyone else experienced this?
Matt
Couple things here. When you had the deeded prostate milking, did it hurt? If so, I would say you have prostatits. I also had horrible pelvic floor tension and saw a therapist for 3 months three times a week with her finger up my rectum each time.... It helped but it was not causing the prostate inflamation. I had a urine DNA test done after 2 negitive culter and the test found three types of bacteria. I roo have been dealing with this for 9 months. The bacteria is prooving difucult to kill but the cause of the inflamation has been found. Cialis 5mg per day has really help with the symptoms a long with alive, heat and ice (on my pelvic floor). Good luck
Hello and welcome,
What do you mean by "pain free after catheter removal"? You don't mention a catheter in your post at all. Are you saying that the catheter is one of the traumas that precipitates normal voiding? If so, what was the catheter put in for and for how long? What are your actual symptons? Do you have burning, urgency, retention, pain, etc?
Jim
Hey jim,
My symptoms are basically the constant feeling of having to Pee or almost like I'm not emptying out.
I was diagnosed with non-bacterial prostatitis.
I had a catheter in for urodynamic. Worst test ever.
But I've noticed through the last nine months that whenever there is some sort of trauma as in something is physically inside of my urethra, such as a catheter or swab, once its removed, i'm pain-free and normal for about two weeks.
It's the weirdest thing
Hey michael !
What Exactly is a urine DNA test ?
My urine has been tested close to nine times.
So no significant retention/PVR (post void residual), just a feeling of urgency? Maybe your uro is on to something. The "trauma" of the catheter might be loosening up your tight pelvic/rectum muscles. Who knows, you do realize that they're guessing half the time, expert or not! If the pelvic floor exercises don't work, or as a possible alternative, ask him about trying self cathing (CIC) as an rectum/pelvic stimulant/relaxant. If it works like your urodynamics, you would only have to self cath maybe once a week for normal voiding, and after a while maybe you could stop.
Jim
In other words, instead of trying to reinvent the wheel and trying something new, it sounds like you already know what solves your problem, i.e. urethral stimulation. Self cathing (CIC) then is a form or urethral stimulation you can control and possibly heal yourself. Your doctor may not buy into this, but then again they are often more process/procedure than logic oriented.
Jim
I'll tell you what, I had the second urodynamic done at 10:30 AM this morning.
I have Peed one time since then.
I didn't mention this to Dr Kaplan and he said exactly what you said jim about maybe some sort of trauma is loosening up the pelvic muscles.
The funny thing is when I have the swap done six months ago, it only went in about an inch and then once again pain-free for two weeks.
I'll tell you this is one of the most bizarre medical conditions I have ever heard of.
Are you in the New York New Jersey area ? Dr Kaplan really knows his stuff
Hi,
It doesn't really matter how "bizarre" your condition is. It may be as simple as tight muscles like the doc said. My point was that you already found a cure by sticking a catheter into you urethra every once in a while with urodynamics. Now, you don't want to keep going to the doctor for urodynamics every couple of weeks, but you can possibly accomplish the same thing by self cathing every couple of weeks in the privacy and convenience of your own home. Self cathing is very easy to learn. If you decide to try this route, let us know and we can make offer some help here.
Jim
If you can solve the problem by sticking an instrument into your penis about an inch, you can use a catheter but you may not need to push it all the way to your bladder. Just an inch or two. Or you can also use urethral sounds which is the better instrument for this. Perhaps you have a urethra stricture near the penis area.
Hank