I have got pain when sitting. Burning pain between buttocks and rear hamstrings. Had the pain for more than 15yrs.
Makes me very down and also very very anxious as I dread sitting!
Seen doc tons of times over the years. Had creams etc. Nothing works.
He said it is stress related!! Ok, it can get worse when I am stressed but it's the pain that is stressing me.
I have many stretch marks in that area from when I used to weight train when younger (not properly!) The pain seems to be coming from the 'open' part of the stretch marks where it is 'broken skin'.
Recently the doc put me on Pregabalin. I decided to get off that as side effects not nice for me. Only 3rd day trying to come off it (75mg twice daily down to zero! Bad move due to withdrawal symptoms but I aim to persevere).
I tale Escitalipram 20mg for anxiety / depression.
Doctor sent me for blood test this week to see if anything shows up plus to check some vitamins etc. I don't eat healthy so recently started to take:
Vit B
Magnesium
Cod Liver Oil
Vit C
Tumeric
I have ordered 5-HTP too.
If it were not for my child I would not be here as pain is horrible to live with.
Doctor is useless. He thinks I should not dwell on the pain or think about it. Really!
Anyone have similar pain?
Any advice welcome. Thank you
I do. The only way I can get temporary relief s by standing up. Often it comes when I am due a Gabapentin dose. Today was bad.
I am going to add a Collagen supplement to see if it will help the skin / stretch marks. They are very much like 'broken skin' due to the depth of each stretch mark. It is in that 'depth' where I am getting the pain.
Still pain / burning. Gets me down.
Might see doc again next week. I have taken some pics on mobile and will show the doc.
I do all the time, every day! Doctor thinks i need PT so i started that but things are worse.. i start pain management and hope i get some pain meds at least, my primary care dr is worthless as all he gave me were anti depressants which brought on instant pain!! Doctors now days are worthless and don't believe a person can have so much pain from neuropathy, i wish they would get it and then they would know how it feels! I am on the same things as you but they don't help, sounds like we're in the same boat! Good luck to you
Soon as I explained the problem she immediately said she knew what it was!
She said that it is nerve pain related to damage in spine. She looked at where the pain was and said it was
Not because of my stretch marks.
She said I would need an x-ray first. I pointed out I had an x-ray in May as I suffer with a bad lower back.
Well, she looked at the x-ray report and she showed me where it mentioned deteriation in certain discs.
She said I have thin discs at lower spine and tiny new bone growth which she said is causing pain along the nerves and ending where I am getting the pain!
She showed me a chart with spine and nerves and where each one leads to.
So, she has applied for me to have an MRI scan.
She also put me on Diazepam for 1 week only as she said this will help and Cosine and Paracetamol for the pain.
I have to go back to see her in a few weeks.
No other doctors has said what she has. 15 years or more of pain!
I hope the diagnosis is right. She did say it's non curable but they may be able to help.
Fingers crossed people.
I asked my primary care doctor about getting a MRI but he declined and said that my insurance probably would not cover it. I went over his head and called the patient care/relations at the hospital where they do these and was told that it would be covered! So much for doctors knowing things like that.. He also told me it was probably a pinched nerve of which an xray would not show an image of, so you can see why i am very discouraged of these modern doctors
Well, it's free here in the UK.
Mind you, I have seen a few doctors and this latest one was the only one that showed any real care and knowledge.
I hope you can get to the bottom of your issues too my friend.
Been following antig and now see you are also having similar problems. I too have the burning and just finished 2 months of PT for a bad hip. Therapist says the burning sounds like nerve pain and could see spinal ortho or different hip ortho or reg neurologist. Such great help. It is getting worse and some days are above the pain scale. Even sitting in a doctors office is horrible now. Keep posting on your progress, I am very interested to see if you can get help. All my best to you.
I saw my doctor a couple of days ago. He thinks it may be sciatica. I have small fibre neuropathy and he said there may be some linkage as sciatica is nerve related. I am on a high dose of Gabapentin and also have 200mg of Tramulief. I think this is as good as it gets! I am seeing the doc again in a few weeks so may learn more.
I am so mad at this site!! This is the 5th time I have tried to type a message! I ended up in the ER 1 week ago and they took an x ray. They saw nothing and think it might be sciatica, told me to take Tylenol and if it gets worse than go back, I saw my doctor 2 days ago and will give nothing for the pain. I am taking gabapentin for the neuropathy and is not doing anything, I am also taking the same vitamins as you but with no results..
And this time I completed my message!! Yay!! Lol...
I was on Pregabalin for 3 months. Useless.
Coming off it was very bad indeed!
I have started taking Tumeric in supplement form as that is supposed to be great for inflammation pain etc. Takes time to work though. I rather that than Pregabalin!
I suffer with a bad lower back too so the two might be linked.
Soon as I have an MIR I will report back guys.
Take care
I finally have a Doctor who is willing to consider surgery, I first noticed pain in 1998. They will have to realize my chances of losing a leg or maybe both legs is a real issue. If my nerves are to far gone or damaged severing my nerves below my knees is the only option. I am willing to wear leather boots up to my knees.
Are you in the USA? Have you been to a pain clinic? They tend to evaluate pain levels more seriously and are more likely to believe giving you something for pain is necessary. Just trying to help. I'm good at giving advice and not following it myself.
Yes meg, I am in the US and the pain clinic here I have tried to get in but they are booked up for about 3 months so no luck there. Plus I need a referral from my doctor to get in and he won't do it! So I am gonna switch doctors and I have found one that will give me one plus he will also sign my paperwork so I can get medical marijuana!!
I have similar pain among other things. Now finally diagnosed with small-fiber neuropathy, caused by Sjogren's Syndrome. Will get immune mudulating treatment, neurologist thought would get better but not free from it. Get another doctor that will take it seriously!
I was fairly sure that I had Sjogrens. I had a lip biopsy done due to my dry lips and have eye drops due to my dry eyes. However a blood test for Sjogrens was negative. A nerve conduction test did indicate SFN and I have all the pain!
UK. Not been to any pain clinic