After about 10 years of observing my RA symptoms, my rheumatologist told me I have a fairly rare form of RA called palindromic RA. My symptoms are that the pain I experience is not necessarily symmetric (e.g. both wrists) but may occur on one side. Also, pain and swelling travels around in my body. For a month or more, it might be my right knee and not my left. Then I will have tendon inflammation in my groin for a couple of weeks. Then it might move on to my left foot. Never a dull moment trying to predict where it will be next week. Has anyone experienced this? I am currently on mtx and hydroxychloroquine. I have found that turmeric really helps and so does pineapple juice and blackcherry juice.
No never heard of that one! Mine is the boring common one. I am on those drugs too but they have not been helping of late hence been put on biologic drug. I hear tumeric is good and I have just bought a big bag of it to make some drinks with it. How do you take it? What black cherry juice? I adore cherries but haven't seen that. I guess pain is pain wherever it lays its nasty head.
You have it for 10 yrs? I was recently diagonised with RA. My pain is also usually not symmetric and is here and there around my body . Mostly on my right shoulder , then my right elbow, thrn my right knee , right ankle etc.. Left shoulder ... I'm also on methotrexate. How are you coping with it ?
I think I have the same form of RA as you. Mine is never symmetrical and travels around my body. The attacks of severe pain usually last a day or two at most. So far I have been able to maintain with hydroxychloroquine and Aleve. I worry about the long term effects of daily NSAIDS intake and wonder if it would be better for me to try the natural antiinflammatories like tumeric and pineapple. Thank you for sharing your information.
Yes my symptons also lasts for 1 to 2 days then It will go the other part of the body . I changed my diet by cutting down meat , no more coffee. It's good to try the natural remedies but I can't take the risk of stopping my medication. I haven't tried Tumeric though. But I use the lemongrass leaves to boil it with water and drink it as tea. Do tk care
I am new to this but that is my experience. The inflammation moves around. The passion is in all joints but the swellings isn't all bilateral.
Pain not passion
I am vegetarian and rarely drink coffee but still have RA. I try to have a healthy diet but don't follow special regimes or natural remedies. I research certain things that can help like tumeric and believe there is some truth to this. But I refuse to buy supplements which make claims to cure. My meds are not working as well as I would like but I know there are drugs which will suit me and its just getting it right. Hopefully now the biological drugs.
That auto type can be embarrassing!
Mine moves around too, so strange I think how it does that
hi Timothy.erm...I feel a bit stupid here.thats probably because I am.joking.slightly.ive had ra 20+ years,and I've never heard of palindromic RA.but how you describe it is the same way as I describe mine.ive no idea what to expect one day to next.kinda fun keeping me guessing.even if Arthur (arthritis)wins every time.keeps soldiering on buddy.theres always light at the end.take care.
Hi Ivan
If you have had it for 20 years why are you still suffering? Are you on the right medication? I was assuming that there were now drugs out there to help most RA sufferers. I hate to think that is not the case. I had never heard of that before either. I must google it. Is your doctor helping you enough?
Sherry
hi sherry.the way I see it is its relative.i wouldn't say I'm suffering.not like early days.yes medication helps.but it doesn't mean I don't experience pain.i have it virtually everyday.now I'm almost used to it.i was answering Tim's question if anyone has it.far as I knew I've had ordinary RA since started.whatever ordinary is.
anyway thanks for your reply.hospital are great.im on gold+ tramadol.but very wary of tramadol.for me,jurys still out on that.must admit though I've seen the names of someRA's and not a clue of bout 90% of them.try bare with me I'm new to forums.cheers.
That's fine Ivan. Gold is quite an old method of treatment but still used I know. Just be aware that there are much better drugs available now. Don't suffer in silence!
I take turmeric capsules which I get in a health foods store. Drugstores carry it too. I take about 1000 mg a day depending on who makes the capsules. The cherry juice is Knudson's black cherry juice. With these I am taking one quarter of the MTX I used to take.
My first few years were spent getting the MTX dose right and looking around for some more natural things I could take. Right now I take about a gram of turmeric each day in capsule form and pineapple juice and black cherry juice. They help a lot. Also, I was using mobic for pain and inflammation which gave me microscopic blood in my urine. So I use those only if I really need to.
It couldn't hurt to take those natural things. Also try black cherry juice.
But auto type is sometimes humorous! Good luck to you.
Thanks! I wonder if you are in USA cos can't find that cherry juice!