ok glad you got it done and keeping your tummy in my thoughts and prayers - gastro is in a couple of weeks, yes? I just have so much going on there is no way to try to guess - and I guess I am moving into apathy which is not my nature. I see how hard it is to let the patient lead the way. Everyone wants to fix, and I understand how it is easy to not dig deep enough. If we fix one problem at a time we run in circles... I promise no matter what, I feel this whole experience is a gift. Finally I will feel better come hell or high water or heaven or whatnot. HA! I have to laugh, it is hard to be fearful with a giggle. 
I keep flashing back to so many times over the last 6 months that I should have been alarmed that something was amiss - but when you are growing spiritually there isn't much that suprises you. Even trembling and puking. God is all - settle down spazo and get to the GI doctor...
HUGS,
Rebecca aka chicken
Preliminary MCRP is not bad not good - urologist took a peek and said ECRP is next. He is testing my urine for cancer cells - if clear, he's doing an in office scope of my bladder. If the C cells rear their head, he wil do the procedure in the operating room. He thinks I may have s cyst or tumor in my bladder causing the ho-ha stabbing pain so there is that - the general abdominal pain and huge tummy could all be related somehow. Or not. Just ready for answers so we can move forward.
Exhausting. And I'm still puking and have horrid D - feel zero energy. Like every day I feel worse physically with no real reason to feel so bad.
How you kids today?
Hello Rebecca,
I'm confused, but why was a urologist doing an MCRP? I thought that was for gastro, did he mention the ducts? I'm sorry you're bad, were they able to give you anything for the symptoms?
Fingers crossed that there are no cancer cells in urine.
opps. I meant to say I'm sorry you're feeling so bad.......
ok so GI called - the ducts have dilated more and they now will do a EUS
evidently my common bile duct looks better but the other ducts (I had no idea we had such extensive duct work down there) are worse. My bladder is the other sketchy equipment that we will be looking into - the Urologist is scheduled to do that on Sept 9, unless the urine tells us otherwise. So next up that nonsense and hopefully we will have a better idea of wtf is going on in my buddah belly. Although I do love having a baby bump - kind of like that chick in Pulp Fiction - I love my little belly. Just wish it didn't hurt so much.
The puking and D is not fun either - something has to give. My husband is awesome - he totally has given me grace to be a wreck right now. It is hard when you look like you should feel fine - but you are far from fine. We went to a party last week out of sheer will I showered and spiffed up. It makes it almost worse to know how bad you feel but everyone is "you look amazing!" I almost cried several times. Amazing is not in my vocab right now.
I tell you this - I will never take feeling spunky for granted. I hate hate hate it - I want to be the normal Chicken not this miserable cranky pukey chicken 
hugs and love
Rebecca
OH sorry I just posted a reply but put a link to the EUS procedure that is next - guess that is a no no....
The urologist was for the bladder that got dinged on the inital CT - he thinks it could be a cyst or (most unlikely) a tumor inside my bladder that is causing the bladder connection to all this. I get STABBY pain at random and it is like a horrible cramping inside my ho-ha. That pain is one that I have had for a while but thought it was my cervix... until I had my cervix and uterus yanked... a few months later that stabby pain dropped me to my knees and I was all - CHRIST ON A CRACKER it is a PHANTOM CERVIX
I tell you - girls we can't make this bleep up. My body is a wreck, kidneys, bladder and duct work - OH MY
Hey - at least I am having a through checking under the hood. I turn 45 tomorrow - I think my warranty is good until 45 year/45,000 miles so I had better get it all fixed this year
So the MCRP was the GI but I also had the urologist on the schedule, and he isn't at all worried about kidney stones fyi. He said, yeah that is not causing your troubles. So maybe the stones saved my ass - the stones are the only reason I went but I've had the bladder and GI issues for a while. My kidneys are not happy but they aren't as worrisome as the other CT findings.
Life is a whirl huh??
Oh and the urologist was able to view the report since it is all done through the same healthcare system so he didn't give me the whole findings but he read enough to say - you will be getting the ECRP. But when the GI called they would rather I have the EUS which I think is very similar...
Sorry I am all over the place with my reply game - short story of today:
EUS next for GI
Scope procedure next for bladder
Kidneys - take a number
Ummm, this is all too spotty for me, totally doesn't make sense. Hence why I should be staying away from forums... What ever is wrong with you chicken I hope it all get rectified soon. Perhaps all these tests being done on us are making us too paradoid.
Oh what a relief - this is me too! Three months today I have been suffering with whatever the hell this is. All tests have shown my common bile duct and head of pancreas are dilated, I have pain, etc but nobody has said why or if there is any treatment. My bloods have started showing inflammatory markers and raised glucose levels after being normal for weeks but my medical people are just monitoring. I have a MCRP on Weds - my deepest fear is that they'll find cancer that all the other tests have missed. I've never had anything like this before. Can't work and feel guilty about being on such long sick leave. My husband is being a saint but all my family are in New Zealand and I feel so far away. Finding this thread amongst all the horror stories has been a godsend.
Honey bunches - I get you.
it sort of makes me crazy how these symptoms have been brushed away and yet I am the healthiest of the healthy and I know my body - it should not take so much agony to get to the bottom of it all. I am having the EUS next week - my MRI showed the ducts are further dilated and my blood sugar is not right. My fasting is high and I believe the shaking and nausea/sweating is due to low blood sugar, it is as if my body is either not making enough insulin, or it overloads me and I flat out crash. At least that part is making sense - I figured out the CURE for the shaking and nausea is a wint'o'green lifesaver.. imagine that - the miracle pill the doctors missed. HA
Are you nauseated a lot? I throw up all the time and my potty issues are vast. vast. My stomach is bloated although good luck being fit and saying you have a bloated stomach. yes I have stomach muscles but I know what a swollen stomach feels like on the inside and I feel like I have a 5 month baby bump. I see photos and go "what??" I don't look that bad.. But I feel so bad. So so bad
Let us know how the MCRP goes - and if anything out of these threads can do it is affirm that no, you aren't crazy. If you feel something isn't right don't let fear or fear of sounding "silly" keep you from getting answers, no matter how you sound to others. I hate that I am a train wreck of symptoms, and NO I do not look sick. I FEEL sick, and it is hard to rock looking great when you feel unwell. I simply refuse to let it get to me - mentally or physically. even if it is something small - especially if it is, Having so much going on sounds unreal, but I have to wonder why all at once. Regardless, last week was super tough. I let it drag me down mentally and since I feel so bad physically, that was a tough place to be. Having people "listen" helps us all process.
But anyway, not being a miserable whiny baby. No. I will not let it make me helpless and hopeless in my mind - and I had to get all this nonsense straight before I could be in my current no freak zone. Last week I went through the moping misery - this week I am all bring it on and my faith is all I need. Faith in God and in MYSELF, that I am worthy of being worried and yet, I am fearless since I am not my body. My body may be failing but my joy and happiness isn't going anywhere. Game on.
Give yourself a pep talk and get in to that test. Get answers and feel better.
Chicken
how are you feeling this week??
Hi Chicken
Had MCRP yesterday but afterwards had worst pains ever and last night... well, let's just say I'm fasting today. I feel very lucky that I don't get nauseated or throw up as I have emetiphobia so that's a blessing. Have everything else though. Can't believe this has gone on so long. If you don't have cancer or something readily identifiable, you get left in limbo. I was doing well until last week - really thought I was on the mend then it all came back. I feel like a shadow. I have a trip booked to see my family in NZ in late January and am beginning to wonder if I'll make it. It is my goal though. Back to the waiting game for results.
Did they do the fasting glucose and then the blood test to show your blood sugar "trend" can't remember the name - that's the wonky thing. Fasting glucose is high but my trend is low indicating hypoglycemia which makes sense what w my shaking and nausea. I've teetered on a seizure - pretty sure. Vision and balance goes haywire. This thing in my bladder - the kidneys - the duct work. All really strange and I'm hoping it's an inflammatory problem not some rogue tumors 😂
Hang in there - let us know results. If still dilated I urge you to get the EUS - then you will have answers 💪
Chicken aka Rebecca
Hey Chicken (I love chickens, by the way - would love to keep them again).
Yes, my fasting glucose is raised but I've not been told about any trend. It's all a bit vague. I keep pressing for answers but don't seem to get many. Is an EUC down the throat? If my pancreas is inflamed that could be awkward. I found the initial endoscopy (when it was thought it was my stomach) very distressing, what with my phobia (I retched a lot). It did bring on pancreatitus as well.
Convinced being right in the middle of peri menopause doesn't help. I was having problems of that nature before this capped everything off.
Fasting today to give everything a rest after a painful night. Trouble is, my tummy starts rumbling and that hurts too!
Nikki x
OMG we could be the same person in 2 bodies..... the RUMBLING - wtf yo??? A couple of months ago I was tucking my son in and my stomach was visibly moving, I was like "blake it's the second coming - I am pregnant.." He was like mom, no. HAHAHA No uterus, not even a possibility but I swear with the round bump and the constant moving and NOISE - it is odd odd odd... It constantly feels like sharp pangs even when I am constipated - which is super annoying. One or the other, and when I say I am a normally very regular girl, I pride myself in that bleep. HA
It just made a huge noise as if to say "I know, right??"
The only thing I can think of that has changed is that I HAVE been eating a bit more packaged food (cereal only) which was a total no no for about a year and a half - I went to all real food and it was astounding the way my body responded. Come to find out I have the genetic mutation where I do not process folic acid (you should all check that out - MTHFR) and before I did the diet change I had high blood pressure - quit eating s#it food and bam, lost all my body fat and ding dang no high BP... sort of irritates me that I got flippant with the folic acid (HALF of us do not fully metabolize synthetic B vitamins - which means folic acid builds in our blood and does not "turn" into folate which is how our body needs it in order for metholyation. It is a lot of science and, no. But suffice to say I was a competitive runner - and was always a bit on the chub side. Even running 100 miles a week I had muffin top. Went to all real food - no muffin no mo. Sooo... Now I am in the best shape of my entire life (got my forever body at 44) so looks wise, I am seemingly the healthiest person up in this joint. I do yoga every day (when I am not puking/shaking/doubled over with pain) so this whole ordeal has been so out of the blue and ODD.
Anyhoo - it's worth everyone's best interest to just assume synthetic vitamins are not great for us and try to eliminate B vitamins in the synthetic form. It is ridiculous how hard it is to understand why we need to care about it - but we should. Before February I was the poster child for why synthetic foods/vitamins make us fat - but now I am such a wreck I am not exactly the one to be promoting my "diet". Just sucks because truly, I had been feeling the best I have ever felt and my body was what I always wanted (still is but this tummy pain/puking is taking the spring out of my step
Yes the EUS is down the throat under sedation - I go next thursday which sucks since I will have to cut our beach week short. But I can't wait another minute. I need answers and I know something is not right. I want my spunk back, my kids are scared to death. Hard to hide how bad I feel - but I am trying to live business as usual so that no one worries. The other night I was throwing up and my daughter started BAWLING - mommy why can't they get you in sooner, this is not fair!!!"
been rough for sure, so just know you have me over here understanding what you are going through.
Love,
Chicken (rock on Chicken lovers... AHHAHA)
Hey Chicken.
You sound like an amazing lady. You rock! How you manage when you've got kids... I only have to worry about me and my other half. Good luck with everything - we WILL beat this, we just have to find the key.
I'm lucky in that I've never really eaten a lot of processed food (grew up on a farm, grew our own veggies, have a love affair with fruit) and since living in the UK, I have been blessed with a fabulous husband who is an amazing cook. I am big into natural things as much as possible - he gets furious when I am reluctant to take pain meds! I try to do daily yoga too when I can. I'm not perfect by any means but this has been way out of left field for me. Have been trying to do meditation but I have a mind like a hive of bees.
Been having a duvet day today and watching the Olympics - those guys are inspiring.
Nx
that is AWESOME - I am on a quest to get bleep food out of my kid's life too - it is so hard. we have 5 kids ages 20, 17, 13, 12 and the baby (who we call Badger bc she is fierce) who is 8. It's been extremely hard to know how horrible processed food is and still let them "be kids" and eat stuff I would never (now) put near my face. My son who is 13 agreed to go a month withouth sugar or chemicals in food - and he LOVED it. It truly is my fault for being more lax and I try so hard to make the best food available here at the house. (we are a blended family - two were Corbett's from his first marriage, two were mine, and the Badger (her name is Summer
is ours together....
Crazy story we have - great story. Was in the process of writing a book, and this chapter has been by far the strangest and baby that is saying a LOT.. HAHAHAA but it's all part of this life experience and I know we are all learning from it. My heart tells me that there is more to come, but my head is trying to not overthink what my body is telling me. That is the hardest part. (which ironically is what I try to tell the group I help with "diet" - that we overthink what our bodies know how to do). We try so hard to have the perfect body but the more we listen to "diets" and other people the less our bodies get what it needs to become the best body we can have. The minute I stopped overthinking what I wanted to do to get that badA$$ body, is when all my drastic physical changes happened. It really is amazing - I can't put a link but I wrote a blog post that shows how much I changed when I went all real food and quit obsessively exercising. It's all about your energy, when we love our bodies exactly how they are - they are free to become what we want them to be.
Now - I am having to take my own advice and I know my body is telling me way more than I "think" I want it to. We will see next week, I hate learning all these lessons the hard way - but it is the way of my people... AHHAHAA
Keep me posted girl - I can't even talk about the new symptoms that reared the ugly head the last 2 days. On the one hand, I think I should call my dr and head to the hospital, but I am fighting with my head here. I want to seem levelheaded about all this - afterall no one wants to believe they are worried about PC... but I am getting ready to find out exactly which one was right, my heart or my head?? In this case, I hope my head is right! So I am just being still, knowing God has a kick a$$ plan, and ignoring some things that hopefully aren't my body's way of screaming at me. HA
hugs and love that body - I still love mine even though it's not really happy right now
Love,
Chicken
Hey Nx - how did the fasting go???
I am pretty sure my next few days are going to be heavy on the fasting focus. I felt great yesterday - until I ate. I was up all night long with horrendous pain and the big D word. I found these ginger chew candy things at the health food store that have saved my LIFE - I wish I could attach a photo - I'm tech challenged.. but if you can find some of these bad boys I highly encourage it. Especially if you start to get the nausea bonus feature to all this. My blood sugar is extremely fickle - too much and I am lethargic, but when I eat I think my body dumps insulin and then I crash with the shaking and trembling s#it show... it is horrible. Not fun being me right now
So how do you feel today and yesterday with the fasting? I am heading to the beach - wasn't going to go but now that I have figured out I can be marginally human during the day if I do not eat solid food, I am willing to risk the well being of my family. Man have I been a ripping raging beyotch. Not my nature and I feel so bad to put them through this. hey - they saw me through the rehab debacle, what is another bump in this road of my crazy life.
Thinking of you and wondering how it's going. Did you get your results yet???? Let me know - and hey to everyone, hope everyone is feeling better and have some peace from the tummy tragedy of 2016.
Love,
Chicken - to the beach I go. I do not want to let this wreck the last week to enjoy my bikini. I waited a long time to love my bikini and by GOD, I am going to throw it on and pretend I don't look 5 months pregnant. HAHAHAHAHAHA
Fasting helped settle things down but had to make sure I drank loads to keep hydrated and stop my stomach churning. Felt very tired but that's to be expected. I worry about going back to work if this is going to randomly happen. I need answers, treatment or both else I'm going to be unemployed and/or unemployable soon.