So one Thursday I decided to force myself to do something and went to Beamish muesum, which is a huge open are, pedriotical muesum with areas from the 1800s, 1900s, and 1940. But being such a huge area it did take a lot of walking which is difficult, I was going to rent a wheelchair but i felt embarressed enough using my crutch never mind a wheelchair. I was also highly offended when i was sat down and needed my partner to help me up and middle aged women laughed at me, had to hodl my tongue.
Anyway back to the point, 3 days on and im still in agony
Does or did anyone else find this common after a lovely outting that you will be paying for it for days, even so it was still and amazing and romantic day with my fiance and he did everything he could to make it easier on me, which is saying something as most 23 year olds only think of themselves haha (he even carried my handbag when it became to much for my bad shoulder)
Oh dear Sarah, when was your op?(you have probably already mentioned it but my memory is useless) Looks like you have overdone it, get plenty of rest now. Just bite the bullet next time and get a wheelchair, there is absolutely nothing wrong with getting one, it's just another form of transport. As for those women, they are not worth the effort, just totally ignorant.
I don't live too far from Beamish, it's a fantastic place but massive, it can take a day to get round everything, I used to get worn out when I was well.
I havent even had my operation yet. This is just how bad my condition has gotten that now i cant walk for more than 5 minutes some days withoit being in complete agony and having to stop haha.
Oh were do you live if you dont mind me asking. We musnt be to far away from each other haha.
Which hospital did you get your surgery in?
And yes that women was rude but i tried not to let it get to me to much because there were many other people who were consuderate like the man working on the old bus. He helped me on and off it and asked people to wait whilst i got on and off. Its nice having people be considerate xx
Yes, I've overdone it and suffered the consequences but not as badly as you. Of course, in relation to your problems mine are small. I'm sure with rest and TLC from your man you'll be fine but it does make you wonder if it's worth making the effort to go out. I think the answer is yes. You can't stop living your life because of what comes after. Next time though perhaps you could do something less tiring and save the big trips for when you've had your op. Or use a chair. Don't be embarrassed, for all anyone knows you could have just sprained your ankle.
Hahaha i decided to do beamish because I havent been out properly in months. The most I do is go to the metro centre and take regular bench and coffee breaks. I dont go out with friends, i dont go to the pub/clubbing, im not allowed to work so at 20 i just find life oretty bad haha.
But beamish was totally worth the pain hahaa but ill not be doing anything like that again for a long time haha. I just hope other people are doing stuff like this haha. This site makes me sad sometimes haha.
And yes my man is a doll. I go to hospital with him when he gets his treatment every 8 weeks and he helps me with everyday life haba xx
Hi sarah, sorry hadn't realised. Wouldn't be such a bad thing then to get a wheelchair, it would only be until you get your op, You can always walk when you feel like it.
I live in Shildon, Co Durham. Where are you? Got mine done at Bishop Auckland, brilliant hospital.
Ahh i went to bishop aukland hospital to help trainee doctors with theit exams. I was a medical guinepig because of have severe my condition is compared to how it should be haha.
Im from hetton but i go to sunderland hospital for all ny treatment.
I really was going to get a wheelchair because i know my disability justifies the use of one but i keep feeling like a fraud and so embarressed i cant bring myself to. Im convinved my lack of confidence is due to the amount i was bullied for my condition haha xx
It sounds as if you and your man are well matched - loving and considerate people.
I hope you will keep going out, but perhaps pace yourself a little and use the *$#* chair so you can do more and suffer less. As for the stupid insensitive people you will occasionally meet, think up a nonsense code word/ catch phrase that you and your lovely man can share when you encounter one.perhaps it can help diffuse the effect they have on you. Thank goodness for the nice ones who give you dignity and caring.
Please don't think me unfeeling, I was in a wheelchair for 4 months after a bad fall and I understand the unkind Ness and thoughtlessness that one often experiences when using it (imagine me wheeling through vetting retirement homes for my parents and everyone talking to my sister steering me) . Oh yes, I get it! And it is likely more acute as you are so much younger. We have a long way to go to eradicate the kind of unthinking, unfeeling behaviour you experienced.
So .. go forth and have some fun. Do not let your health problems cheat you of life even if more active forms are not feasible right now.
And .. it sounds as if your young man needs it too.
What kind of words do you use for people like that. Iv had a few experiances like that. One leading to an old man shouting at someone to defend me haha. Xx
Sarah be proud of yourself is the first thing I wouold tell you.
We love going to the zoo, and although I am a lot older then you I used to hire a wheelchair and use ot as a walker until I got tired then Alan would push me a little. I also and even now if I know I am going to have a busy day then the the next couple I take it easy, and recover. (I am 10 monthspost op).
As for the sneering ignorants remember you are better than them by far, and they are the people that probably wouldn't cope very well after this op.
Upstraight and proud is the way to love, you have done marvellous and I for one admire you. Hugs and kisses for you Love Gill xxxx
Prodded and poked about eh lol, but what better way to train them, hands on experience. Just think you have helped those doctors gain some experience.
Aw right, just a bit further up then.
You are not a fraud, you need it, please don't be embarrassed by it. I can understand what you mean. What about going somewhere with your fiancee, somewhere quiet, hire a chair and try it. It will give you so much more freedom. The first step is always the worst, you can do it.
What can I add to what these lovely people on here have said. Going out to a zoo for some enjoyment with your fiance sounds like a wonderful thing to do. One of my sons was a zookeeper specialising in birds, and I know what pleasure he brought to people when doing flying displays etc.
I overdidthe walking a few days ago, andpaid the price for acouple of days afterwards. It seems to bein our nature to 'push the boundary' just a bit too much.
As you say, most people here are much older than you, but you do seem to have a good sensible head on your shoulders, and you bring a wekcome breath of youth to the forum.
You seem to have a good supportive man there too, he needs lots of hugs and kisses that I'm sure you can supply .
Best wishes to you both, and especially to you in you (hopefully soon) surgery.
Unfortently theres only chester zoo which is a long way from me and edinbourgh which is a different country haha so unfortently a zoo trip probably isnt on the cards.
I feel bad as iv been so stressed lately with rising pain levels, the death of my pet, op being cancelled and now rescheduled that i totally forgot its his birthday on Tuesday, so me and my mam are going shopping tomorrow so i can treat him. Hope to get him something special as a thankyou for how amazing he has been in my declining health haha xx
Ooh ... I wouldn't say anything to the rude ones (what could one say really ... they wouldn't get it in any case. Just look at each other and say penguins or jack-in-the-box or make up an expression that you can laugh at together so that you are focusing on being together not on feeling hurt by their rudeness an insensitivity.
Or simply think of all of us here on this forum, sending you love and hugs. But do NOT let them get to you this way ... they have no idea what you are going through. And that's it really isn't it ... they don't and they shouldn't judge or make fun of pain.
Thank you so much, your words mean a lot to me. It feels fantastic to know i have people supporting me on this website, and being able to talk to people who can relate to me. Xx
sounds like an interestling day out - hope you got lots of rest after.
Yes, I can understand your anger, but also the challenge is that is her insensitivity and crass behaviour going to be allowed to spoil your day? Don't give her that power over you....
I must confess for every one class person I had lovely people on the London tube parting like the red sea to get me inside and seated on seeing my crutch. Lots more than the odd nasty person.
My problem was in the week after returning the crutches - and drivers could not understand my slowness in crossing the road, sniff
And, it all got slowly better.
All will be well in the end. You need the exercise of big days out, challenging yourself, and no one deserves the power to wreck that
I'm not that far away either......well the North East. Actually just over the Tyne and Wear border 3 mins into Northumberland.
Yes I've had days like that when I've overdone it.
Maybe not as much as 3 but certainly the next day couldnt do anything.
I discovered how to pace myself. Still dont always do it LOL but try
If its something I enjoy and I suffer for a day or so afterwards...its worth it.
BUT if its too much house work and I overdo it.....thats NOT worth it so try to pace myself then.
You sound as if you did have a good day even though you are suffering
It will go...keep telling yourself that.
I havent been to Beamish since I was OK and dont know how I would cope now. I think I would take my scooter. Hardley ever use it but its there for necessities like that. Do they not hire scooters there?
You're more independant on a scooter than having someone push you. I would hate a wheelchair as well.
Do you go to an Arthritis Care Branch? I belong to the Gateshead one {nearest to me} In fact I'm a volunteer for them. I'm always telling people to pace themselves......but do I do it LOL do I heck!!!!! Do as I say not as I do.
Dont let that put you off having days out and take care