Pelvic pain

Signs and symptoms
1

i started with niggle pains in my pelvis in March 2015 and had tests on my bladder and cystoscopy.  All clear although I do have cysts on my kidneys and left ovary which ct ultra sound scans showed.  These pains went on for 4 mths, mostly when sitting down and in the afternoons and evenings.  They disappeared mysteriously for 3 months but this October 2015 they have come back with a vengeance.  All day now.  It feels like a burning pain like a throbbing mouth ulcer on my left side.  I was wondering if the cyst on my ovary is causing the problem although my gp says not. I have lower back pain, sharp pains in my groin and front of my legs ache.  I have a gyni appointment next week and don't know what to expect.  I called 111 this week to ask for advice and they suggested going back to my gp for pain relief. Paracetamols don't touch it, he gave me co co codomol and lactose in case 'I get bunged up' he said.  I know it's hard for him to diagnose anything but I knew he wouldn't be any help.  I just cant believe 'nothing' is wrong.  I am 62' gone through the menopause many years ago and have never had any gyni problems before.  It is so debilitating sitting with a hot water bottle all day.  I am not taking the be prescription by the way. 

 

2

Hi, It's no good me repeating what you just posted,but you sound a lot like me. I'm having scans on my back to see if it's a nerve that's trapped ,even though I have no back pain.

Google the Vagus nerve,and Predential nerve,see if any of them symptoms apply to you.

3

I thought it could be Levator ani syndrome but am a bit reluctant to suggest things to the  consultant.  Bit like teaching grandma to suck eggs.  They must get fed up with people googling things 

4

I have had MRI on my back and hip and do have generative problems in my back but I do not know whereabouts the problems are.  I just know it's low back.  Even had painful tingling in my,legs like running hot water over the years. 

5

Personally I wouldn't be reluctant to suggest anything,they are only human and they have certainly made enough mistakes on me.

Its one of those things "if I knew then what I know now" My last GP liked to here the oppinions of his patients,and I believe that's how it should be.

      Your health your responsibility. Your entitled to a view.

 

6

l so agree with you, l lived with severe pain and poor health for many years, following csection, first put down to post op, then hormonal, gyny, phycalogical, had tests, xrays, scans all clear, years go by,  eventually a visiting dr referred me to a urologist, due to what now seem obvious symptoms suggesting urological, but the be all for ususal gp was my urine samples were neg, Took urologist just 5min with scope to diagnose i.c, all the years suffering when diagnosis and treatment cleared up symptoms 90percent. At that time years ago l wasnt on the net and had no idea, difficult when its unusual condition youve not heard of, so relied on gp, l knew he was wrong with phycalogical, ,  but l didnt know cause either,  l did write to people, but no help, so wish ld have had net mbs  for info advice. Some drs dont like you telling them what you think it might be, but when theyre not telling you either, l think a good gp should have an open mind and at least think about it,  many quick to dismiss, and no big deal for them to listen to you  for l0min or test for.  Good luck Susie.

7

Thank you.  I had a cystoscopy which was interesting to watch on the screen  but after .... Wow! When the anaesthetic wore off it was so unpleasant and painful, no wonder it took them some time to actually do it. The GP warned me it was a big invasive.  Anyhow it came back ok... Now the gyni route, if not I expect it will be the bowel, eventually they will work down to my toes.  I had 2 seizures and have had various tests and ruled out epilepsy, because of that they thought it was my heart so had a profusion MRI and simulated heart attack (horrible and scary ) in June,  that was ok, so my heart didn't cause the  blackouts but have tachycardia....  And now on low dose beta blockers... I can cope with that but this pelvic pain is debilitating and is wearing me out.  I can't wait for next Wednesday's appointment, hopefully it won't be as vague as all the other  diagnosis and I can get some help. 

8

Thank you, I will mention it to them..  

9

l think cystoscopy depend on if youve a painful problem to start with, which can add to it. Sounds like youve been through even more than l have, and mine,s quite a list of procedures, Despite eventual diagnoses for i.c. and symptoms improved 90 percent with meds, like you l still get pelvic pain. but mine is the  lower hip to just under the butt into top of legs at back, a nagging pain, i use gel and heat patches, mine often bad in bed, disturbed sleep with it, then dropping off during day, lveto see physio next week, dont know if its connected to ic be it other symptoms improved, but also get vague responses, l personally think it nerve pain, jumpy legs with it at times, started following csection, maybe damaged nerve-s,  constant pain is wearing lve told them that but they dont confirm it, also thinking fibro myalgia, sjorgens, going to research and go prepared, thats the theory, getting a bit like diy. But you should get more knowledge and help from specialist, gyny. Good luck with it.

 

10

You too.  

 

11

Thank you for that Lynne ,I won't tell you my experiences,because I could write a book on them ,it would take me all day to just write the first chapter.

The most important experiences I can tell you is,twice my family have been told I would not see the night through,and I actually have my eldest son,to thank for the first time,had he not shouted his mouth off,I don't think I would be here today.              Years ago before computers and such,I think we had more dedicated GPs ect,but now no one seems to care.  Because they have caused me more health issues than I needed to have,I check any information,tablet,ect then come to a decision when I have gathered up what I need.

At the moment I'm in constant pain,and I've had every pain killer you can have including morphine,so if being on forums like this people can give you any help,I will definitely look into it ,and suggest it to my specialist,or GP.

My advise to anyone is don't sit back and take what these proffestionals tell you if your not satisfied say so.Your the one suffering,your health your responsibility.   Sorry for the rant.x

 

12

I took some paracetamol and caffeine this morning to get me through going out and they helped.  It's still there waiting to rear its ugly head but at least I got out,  eventually both hips playing up and could hardly walk but tummy pains easy off.  I hate getting old 

13

Me too,it's not getting old,it's what it brings with it.

    Chin up sweetie.x

14

Hi, Ditto had reasonable sleep and pain moderate, nice day out, so went for it, not too bad and glad l did, drives me mad staying in.l could also write a book about health probs and gp neglect over many years, led to a lot of unnecesary suffering for me and partner kids with knock on affect, those closest etc.. l got to stage of hating my gp,made me feel worse. now retired thank goodness. think ld have sued otherwise, but also relieved to finally get diagnosis and  treatment to improve symptoms 90percent, so let it go, then unblievably my mum died month after, and she,d been sceptical, trusting drs, over me, then husband died suddenly next year, he always knew as did my kids my symptoms were real and severe, l,d wrote to all manner of people, experts, did the diets, but no diagnoses, then just 5min with urologist scope brought one,  so all those years with pain and poor health and affects on lifestyle, and  you cant get those years back, l,m now at age and through  past experience will complain, change doc, recently missed 2 appt and forget to ring, which lve always done over years, got a snotty letter telling me l could be struck off, furious, they got monologue history rant,  and told them to get on with it, got  nice letter in response,  You,d think after theyd neglected you over a long time causing you suffering, theyd be more thorough, but no, and judging by many posts on here a lot left suffering a long time and often fobbed off, so l also advice anyone if they feel its a real health prob trust in yourself and keep at them. l know of a few locally even misdiagnosed for such as pneumonia, diagnoses later  in a and e, one collapsing, some now turn to and rely on a and e.which isnt right they need to. l agree about past practise l recall gp looking at your eyes, tongue, pulse, chest,and listening to you, now its blood tests scans and little listening or examining, l,m sure there are some good thorough docs but some are lacking.  Ditto on so much going south,  Scuse my even longer rant, going to do some research this weekend and going in with ammo. Good luck to all of us.