Hi
Most likely spelt the above wrong but it's a very rare none anurysm subarachnoid haemorrhage.
I am almost 2 weeks post this but suffering from excruciating lower spine spasms and constant pain in backs of legs similar to nerve pain. Unfortunately I'm not getting any answers as hospitals main concern is getting another brain MRI done to check for abnormalities. My GP thinks it may be nerve damage caused by lumber puncture as it took them 3 goes to get fluid out.
Really hoping someone on here may have been or is experiencing this same problem as unfortunately I already have mobility issues caused by arthritis in the spine and most of my joints so this is adding to it.
Dear Wall 1049
May I just say how sorry I am to here of your situation my stroke was completely different from what you described. However I think sometimes it is good to hear what other people do to help their. Physical difficulties and who knows they may sound ok for you. My stroke left me paralysed down my left side and extreme exhaustion. That wipes me out constantly. I was outward going and enjoyed a full social life. Now I lack any motivation and often decline invitations to go out all I feel like doing is sleeping. I belonged to a gym and paid for a physio to come in the pool with me. Which was very successful and sitting in a jacuzzi was very therapeutic and had a good effect on my body. I found I couldn't swim very well .llk jaways tda oulwI anymore I was a strong good swimmer. I persevered with the exercises and began to feel more positive physically and mentally. I think possibly if you could find an activity you enjoy it may help you I would always discuss everything with your doctor and let them know how you are feeling symptoms and mentally. I'm continually asking my doctor for advise most of the time there is nothing she can suggest it's a waiting game. I know this but I always check it out with her. You never know a cure could just a phone call away. Best of luck Therapy girl
Hi Therapy girl
I can't see your post it's waiting for moderation
Hi
Many thanks for your reply. Your situation is more debilitating than mine. I don't have any numbness just the nerve pain which GP said was muscle pain! My GP admitted he knows little about this so as you say, it's the waiting game. My eyesight is affected.
I really hope you gain improvement and strength.
Thank you once again for your kind words and good wishes for the future for both of us.
Xx
Update
Perimesencephalic sah was the name of my subarachnoid haemorrhage. 6 weeks on and having good and bad days. Today I did a bit of dusting and gave kitchen tops a good clean as baking again (when I have the energy) . Tonight since 9:30 in bed with base of head and neck pain that even morphine won't budge so I've overdone it again, which is very easy done unfortunately. Recent MRI showed no abnormalities which is good but as explained they didn't find a cause so unfortunately can't promise it won't happen again even though this type of sah originally were given good outcomes but that decision was changed in 2012 as it's that rare they really can't say. The original comment that it's less likely to happen again came from an American neuro in about 1990. I still have days my balance seems to play up still getting blurred vision and a lot of pain from lumber puncture site that actually stops me from standing too long. I already had mobility issues due to chronic arthritis of my spine and joints but this is an extra nuisance. I know I really shouldn't moan as I'm alive.
That's it for now but hopefully this may help anyone else with this rare type of subarachnoid haemorrhage.