Hello,
sorry for my poor english, i'm French, try to find people sharing their sad experiences and need support.
Since one year and a half i experience constant dizinesswhile truning my head, walking, turning my eyes ...always!) at that time i withdrawed duloxetine at only 30 mg after it was a nightmare!!!! went to psychiatry hospital they tried several medications (a nightmare) dizziness severe severe (of course only me experimented this , the others had no problems!!!!!) i ended up one year later with lamictal 50 (upping the dose was too much and 50 is also kind of too much for dizziness!!) added on prozac 10 mg , i try to get off lysanxia benzo for xanax as it is short half life and wean off lorazepam for the night , my psychiatrist is really not concerned telling it is in my head, i saw an oto neurologist to do vestibular rehab but i even can not take a car or taxi as i am sick! depression worse with this! i suspect lamictal not to help, oto neuro tells me to take only an antidepressant and i have different responses from others...tired of all this.... do not want to to do rehab as the medication is not yet stable for depression and dizziness problem, .....sorry for this pessismistic message, just would like to know if someone has a severe case like me; my mother is caring all the chores, i can do absolutely nothing!!!! tired of doctors , specialists and medications for which they deny the adverse effect . thank you everyone
cannot walk 100m!!!!!
and i have also a question:
Is gingko biloba as effective as betahistine?
thank you very much
Hi anne just wondering did you only start to experience the dizziness once you came off duloxetine? or was it there before?
What is the diagnosis from the oto-neuro?
Eleftherios S. Papathanasiou, PhD, FEAN
Clinical Neurophysiologist
Fellow of the European Academy of Neurology
I would be concerned with the lamictal. Common side effects of Lamictal include: ataxia, blurred vision, diplopia, dizziness, drowsiness, headache, insomnia, nausea, rhinitis, skin rash, tremor, vomiting, abdominal pain, and fever. If you have a vestibular issue this drug would seem to make it 10 fold worse.
Common drugs for long term dizziness, which can be PPPD, are SSRIs. Possibly SNRIs if the SSRI cannot be tolerated.
Hi you need to have an mri to rule things out then see a neuro. I have Mav migraine associated vertigo. There are good websites on Facebook MAV Support and vestibular migraine professional. I take cymbalta or duloxetine anti depressant plus on fifth round of Botox and gabapentin. Mine has improved. It's trial and error getting meds right. Good luck.
I experienced dizziness far less before duloxetine, i did some rehab and it gone totally
he told me i have a deficiency (?) inner ear left, told me to first cure the depression with a small antidepressant (small in terms of dosage) and eliminate the other products if possible and do rehab , but after seeing him the psychiatrist changed the medicine again. I phone the oto neurologist 's secretary that i cant do rehab because i cannot walk and take taxi and she told me maybe the actual medication is not for me , i do not have the energy to go back the oto neurologist because the will probably tell me to change medication so i m lost ,and physically and mentally tired even to go to see him as i have no strenght .....maybe the depression itself causing all this, this is a crazy story
Yes it is what I think but doctors tell me it is not the medecine, it is psychological, we tried for 15 days to withdra them and it was a nightmare, so what is better... but i am convinced about the lamictal worsening this Terry
thank you i m going to look at this, just need to have the strenght because all the doctors i have seen was a waste of time that is the reason why i am tired, fist of all: is this psychological?, then the inner ear?, then the medecine ? so what to do..... and the major depression ?...., if the oto neurologist tells me it may this medecine or this one and if i need a medication for depression that i must not take and so on..... time to withdraw to get used to another one ....but i will see the oto neurologist again , dont know if it a waste of time like the psychiatrist and the others .sorry to be pessimistic
but after duloxetine withdrawal ..the problem began at this stage
see a neurologist maybe but dont know if he knows better than an oto neuro for dizziness issues
Following my previous message (under this one 
) would you think a defiency of an inner ear only can cause this constant dizziness , motion sickness and unable to walk more than 100m without feeling so sick?
I have found that since suffering this condition anything that states dizziness as a side effect is magnified by the condition. Things, medications, that did not once pose any issue in taking now make dizziness worse since the apparent damage to the vestibular system. Sinus issues also now cause many more issues when I am congested.
Sounds vestibular and, that enhances the anxiety. I had anxiety before the vestibular issues but it was manageable. The vestibular created anxiety is less manageable for me. The vestibular system is where the fight or flight sensations reside within the nervous system. I don't think that it is all in our heads. That's an easy out for the medical profession.
From an oto-neuro, I am very unimpressed by his or her diagnosis of "left ear deficiency". There are many causes of left ear peripheral dysfunction, and he or she should have been more accurate. This is not helping you. Do you know how they came to the conclusion of left ear deficiency? Was it from the clinical examination (them seeing your eye movements) or was it from a test (calorics for example), or both?
Eleftherios S. Papathanasiou, PhD, FEAN
Clinical Neurophysiologist
Fellow of the European Academy of Neurology
he made a caloric test and something related to a nystamus issue ( i have just a slight one), he told me there are many reasons that's all, gave me betahistine
i totally agree with you
if i wasnt in major depression i would leave all medication because all enhance the dizziness, and changing medications regurlarly to find the best is worsening the problem , i mean for my part, hope having an issue but doctors are driving me crazy , i am told to listen to them, yes but..... we loose our instinct in a sense of knowing what is good what is not
but how can we know if a medecine is worsening it or not? if a medecine is worsening it can a vestibulare rehab can solve it? i mean if i keep on taking lamictal and prozac (small dose) can a vestibulare rehab can help even if it is the central nervous system issue? thank you very much
I want you to try two things for me, but you need someone to be with you:
1) Stand with both your legs next to each other, feet touching side by side. Then close your eyes and I want you to tell me to which side you fall.
2) Hyperventilate (deep breaths, 2 per second) for up to three minutes. Let me know if you see the room move from side to side.
Do you have hearing problems?
Eleftherios S. Papathanasiou, PhD, FEAN
Clinical Neurophysiologist
Fellow of the European Academy of Neurology
My answer is:
1/ i fall on the right side directly
2/ yes the room is moving
strange sensation in my ear and head (a fullness)