Hi
I was diagnosed with PA about 3 months ago and have to go for injections every 3 months for the rest of my life but I was just wondering if anyone else gets really bad pins and needles?? and swollen hands?
Thanks
Yes, I get pins and needles that come back before my next injection is due. It's interesting about the swollen fingers, my daughter suffered this last year, they suspected rheumatic arthritis, but I wonder if her b12 level was checked? Do your symptoms improve after the jabs?
I was diagnosed with PA 25yrs ago when suffering from itchy tingly feet, legs and hot swollen hands especially when I stood still after excercise. GPs had told me it was \"normal\". It wasn't until I was in hospital a year later that a Dr listened to my symptoms and did a bloodtest for PA. My B12 was \"borderline\".
I was put on 3 monthly \"B12 for life.\" The symptoms went away but often returned just before my injection was due. I always felt the injections were helping but not quite often enough. My FBC (only test I'm ever given) was and is always OK. Allergy tests negative but tried antihistamine for hands. When I put my fears to my last GP a couple of yrs ago he changed my injections to 4 monthly!
Hot swollen hands, cold or hot feet, itchiness worse. Muscle cramps. Big toes joints hurt when I walk. But my blood B12 is very high so Drs reason I \"probably never had PA\" and give me antihistamines for \"urticaria\". Latest GPs tell me they \"haven't heard of any of these symptoms relating to PA.\" I think my nerve damage and balance is getting worse but GP is doing blood sugar because \"diabetes causes neuropathy.\" I think PA is so misunderstood. And now my daughter, 16 is having similar symptoms.
I totally agree it is so misunderstood considering it has been about for years I have three sons and I worry for them as my gran had it my mum has it and Sister has low b12 so for me it's definetly a genetic thing , but the doctor new there was a history in the family . So with all that information it still took 16 years for my parental cells to be checked . Once I was diagnosed which is only 4 months ago did I start researching PA and my medical notes are screaming PA . I am in the process of my sons getting checked. At 22 and 18 I can't really take them I can only advise they get checked but I am waiting on a paediatric app for the youngest. So fingers crossed they don't have it but I will be watching them for the slightest symptom . Alexgirl