PIONEALOMA changes?

G'day from down under Australia.... I am 38 ... I have a range of health issues ranging from SLE lupus , degenerative disc disorder , scoliosis. Stage 2-3 kidney failure. Well I had a Tia in 2007 and was diagnosed with PIONEALOMA. Well all these years it has been considered stable. Now I have shown some symptoms that I thought was lupus , but to my surprise the rumatologist thinks that the PIONEALOMA has changed to cancerous...

Symptoms are....

Fatigue. , dry mouth ,,, migraines. , upward eye , , Loss of appetite , , memory loss and confusion..... , ....

Well the question is ... Has anyone else had these symptoms and has had PIONEALOMA change...any theory , advice will be greatly helpful.... I am at my whits end at the moment.... I am usually an upbeat kind of positive person.... At the moment I am really not myself.... THIS IS NOT ME.... THIS CANT POSSIBLY BE MY LIFE...... So for gods sake ....... Please help.....anything...something.....please.....thank you for your time....

Hi tracey,

you really seem to be in the wars. I am sorry to see you suffering. Have you asked the specialist about possible outcomes because you seem to have a few complications.

Richard

Thank you Richard for your reply. The rumatologist has decided that the PIONEALOMA needs the attention at the moment. My lupus , kidneys and fibromylangia is a minor thing right now and can wait a while for further checkup. He seems to think that the problems I am having right now are related to the PIONEALOMA changing to cancer. So until I have the MRI  , I am sitting here in limbo.  I suppose I just wait I guess. But not being able to eat at the moment is becoming a concern. I just don't know what to do in the mean time????? Thanks... Do u have any of the same health issues I do?? If so what?

I live with mental health problems day to day

Richard

Thank you for replying mate. We are all here to ask questions and to help others where we can. Some times it is a matter of letting out a little frustration whilst waiting for results

 the unknown is some times be more stressful than getting the results.  Thanks mate god bless.

G'day there mate... Well I finally have an apt for the MRI to have the PIONEALOMA  checked on Thursday... Well a bit stressed... Thought I'd let u know what was happening...

hope it goes all right.

richard