I feel so stressed and anxious. The brown envelope fell through the door this morning stating that I am not eligible for PIP at all. The letter goes on to say why I missed on points which is making me furious. My daughter who accompanied me to the assessment explained that I cannot take my own meds, wash bathe without assistance, and could not manage to plan a journey or do my own expenses She does all of this for me these days due to my fatique, lack of concentration and fibro fog The paperwork that I have just received says that I need no assistance in any of the above listed ????? Why do they bother to ask at assessment if they are going to provide their own answers???? Have cried most of the day as really dont think that I have the stamina to go through it all again
Any advice welcome Thanks x
have you any organisation like we have in scarborough
we have DAG disability action group that help with this sort of thing and other things
to do with disability. you stand more of a fighting chance with professional filling out the form .
like iv allready said i am not confidant that i will get it even thou it has been filled in by DAG but its my best chance . i am pretty sure that they turn down automaticly any claim that has fibro/ ME /C/F/S on just because it cant be seen and know one is going to show much sympthy if its gets in to a newspaper .
but turning someone down in a wheel chair or with some other physical dissability would cause an uproar , in many cases of our condition we are more dissabled by our symptoms than somebody whos physical dissabled.
theres a lady next door same age as me whos in a wheel chair due to polio
as a child.
of course she has problems but she gets out more than me she dosent suffer the crippling fatigue, or excessive pain. shes able to do certain amount of gardening and decorating ,shes able to go out for a social drink and family occasions .all of which i and many sufferes of these conditions cant .
we should all be treated fairly weather out dissability can be seen or not
That is just awful wendidly, you must take it further..they are only humans, who can very easily make a mistake...I've looked at other comments and they recommend you take it to an advocate...really hope you have one where you live and take the action required...people who do not have Fibro...just don't understand..they can't..not even the specialists can really, .it's such a complicated Syndrome....hooe you take this further..if you don't no one else will..after all only you know how life really is..be blessed, and have a lovely day...:-) xxx
Hi Wendy, I'm assuming...
Please read my reply to your post made here:
https://patient.info/forums/discuss/pip-assessment-fibromyalgia-400538
I have also detailed details regarding an Appeal and on which grounds you can use to your benefit.
It's like I said many times people that state they are Health Assessors and actually state this on the letter you received you need to question. With Fibromyalgia you really need to see a specialist in that field, but with Capita they are doing the exact opposite, your so called Health Assesor was no more than a Physiotherapist or Paramedic, because ATOS bought them out from the NHS last year at £30k a pop! They would know nothing about you personally - I have detailed out many issues that are obstacles that we have to tackle ourselves, in that post and I made an additional post to follow it up.
Don't believe what you read on the white paper inside these brown envelopes, half the time they are denying you just to lower their backlog, which entirely wrong - the DWP was instructed to do so, and a number of top people are now under investigation, because of the way the sick and disabled are being treated in the UK.
They are changing me over to PIP in the next 3 months, and I don't stand be lied to by the DWP, which they recently tried. There is an Act known as the Statute Barred Act, that all companies must abide by, that is until you read the small print - it states the DWP is Exempt from this order! Says it all really!!
Regards,
Les.