Pip

Ears, nose and throat
1

hi everyone.

i was wondering does anyone on here claim pip. For us living in the uk. I tried to claim before and they told me I wasn't disabled enough. Don't think the person assessing me knew much about this illness. I was wondering if it would be worth tiring again, cause with the amount of attacks I'm getting, along side the balance issues and brain fog etc. I'm sure no employee would employ me.

any advise would be helpful 

Sarita x

2

Hi

Sorry to hear that you did not get approved for PIP.

Did they say what the reason for refusal.

One of the difficulties we sufferers of Menieres have is the variability of the disease . I did receive DLA because of Drop attacks and the danger they posed.

It is always worth trying again and getting help with the forms so that you make the case as well as possible to meet the criteria.

Have you contacted the Menieres Society who were an excellent source of help ,advice, and support when I was diagnosed.

Good luck and best wishes

3

Hi,

they just said I didn't get enough points. I've been researching online about how they score the points. Haven't got in contact with them, I will try now. Thank u xx

4

Hi

Your welcome.

Hope you don't mind me saying but it's important that you don't minimise the effect it has on your life. For example if you have dizzy spins it makes it potentially dangerous to cook a hot meal. So you have to spell it out for them at every turn. Keep telling them that the spinning makes it impossible to do many of the things you used to do because they can happen any time. So it is unsafe to go out on your own .

Please remember you don't need to be receiving the care that in an ideal world you would get. The payment is to help with the extra cost of managing a disabling illness.

Hope that will be helpful .

Best wishes

5

Hi,

i think that's where I went wrong last time, I do go out on my own, but only to the local shop which is five mins away and walk my dogs up the road. But all my neighbours know of this  disease and keep an eye out for me. I hate going out on my own because I have had a few attacks while being out but lucky my children was with me and got me home. They are teenagers. X

6

I hope you have tried again...I had the support of my GP and Consultant and am now claiming the daily living component...

7

Hi miss Kent,

i have just rang this week for another form, to try again. Fingers crossed. I from my consultant I have got a letter confirming Ménière's etc and it stats to contact him for further info, I have also got a report from my hearing test. My family are going to also write how it effects my life. I am hoping this will be enough evidence for them. What's the daily living component? X

8

Hi, PIP is similar to previous DLA and there are 2 components, daily living which involves all daily routines and the mobility component.

Hope you get it this time.

Ruth x

9

Hi Sorry only just seen your reply.

What you describe needs to be spelt out .

It is impossible to go out alone safely because the attacks are random and you need someone with you to keep you safe.

Another important one is it is unsafe for you to cook because it is danngerous to handle hot fat etc.

You need someone with you because you may fall at home when you have an attack.

In short you need supervision which your doctor should put on their report.

You have to spell it out or they won't know.

Good luck

Best wishes Robert

10

Hi, when completing the form...make sure you emphasise your problems and always state the worst you feel...like Robert says..spell out how much it affects your everyday life. Good Luck.

11

Hi all,

i have just filled out the forms and they should receive them today, wish me luck, fingers crossed xxx

12

Good Luck...x