could spmeone tel me what symptoms they had before there diagnosis for a piturity gland tumor
Hi Joyce. I had a pituitary tumour removed in 2013. Before diagnosis I had:
Loss of body hair
Constantly feeling cold
Loss of weight and muscle
Low mood
Odd eyesight (having blind spots and blurry vision)
Near-fainting episodes (due to low blood pressure)
Those were the main ones for me. These were due to very low Cortisol and Testosterone hormones due to the tumour. Once the tumour was removed, my eyesight returned to normal and I now take Hydrocortison tablets (20mg per day) and Testosterone injections.
Hope this helps
Thanks for that Info I really appreciate it xx
Hi, I have suffered from a pituitary Tumor since 1969, or should I say I was diagnosed then, after suffering years of headaches that would come and go. I could go months without a headache, but I used to be woken up with a pain in the back of my head, which when it occurred I could have banged my head of the wall. I would have it for approx a couple of hours then it would go. This went on for years, I had many blood tests which all came back as ok. After years of suffering I started to lose my sex drive, which is a symptom males suffer from. Eventually I attended hospital on two consecutive days, of 8 hrs each, I had a range of tests carried out including canulated blood tests and MRI scan, that's when I was told I had a pituitary Tumor. Currently I have been off medication for 3 years, although I continue to attend hospital, where I have bloods taken to check my prolactin, last month I had an MRI scan and a bone density scan carried out. I hope you find this of some help.
I cant beleive how long it took them to gve you a diagnosis .
The only tests I have hhad were for throid problems and they came back ok
good luck to you x
Hi, if are suspected of having a pituitary Tumor, dependent on your symptoms, you should request an MRI scan, this is how mine and I suppose everyone's was detected. I have a prolactinoma, which makes me overproduce on prolactin, which normally would apply to a woman. Haveing regular blood tests keeps an eye on my prolactin levels. I suppose everyone's symptoms are different, for example while I was having canulated blood tests, I was told by the ward sister of someone, who had a prolactinoma as I have, she said he could be walking down the street, and for no apparent reason would burst into tears, he was waiting to have his removed by surgery. Once again I would suggest you request an MRI, this will surely put your mind at ease. Good luck
Hello Joyce, I was digiagniosed with a pituitary tumor about 3 years ago. My symptoms were crazy. I worked construction for a living and one day I noticed I was starting to have problems with my hands gripping the trusses and I would fall ( thanks for safety harness). Then I noticed my weight had went down, bright light flashes would make me pass out, Moy voice changed know my eye sight is going down fast and the worse things I was concerned with was my sex drive was gone so depression. Then I finally went to a doctor he asked what my problem was. I laughed well first my shoulder were hurting and I was having numbness in my neck, shoulders, arms and I was losing my grip in my hands. Well had to do mri's, we'll the results came back with just bone spurs. I asked what should we do cause iam tired of losing my grip. Doc said I have idea to do another mri's on my neck and then he told me then that he was glad he had it done because they discovered the tumor. Sorry so long but this is helping vent. Iam 48 now still with the tumor that is measured at 8mm x 5mm but has stopped growing at this time. Doc are saying since at this time it's not cancerous they said there not doing any thing just maintain medication.
Hello I read about you saying that your eye sight had gotten better that is so great. My question is was your tumor cancerous. I have a 8mm x 5mm pituitary tumor they just told me it's not cancerous and as of now it stopped growing so they said stay on medication. Just don't know what to do cause my eye doctor believes the tumor is causing my eye sight problem. Plus now bright flashes of lights cause me to go into having seizures. Thank you for listening
Hi James, sorry you are having such a bad time, I was diagnosed in 1996, took medication from then until 3 years ago, I didn't suffer as you have done, mine was mainly headaches, but I did loose my sex drive. I have a prolactinoma which means I over produce on prolactin. Yours is quite a bit bigger than mine, I was told at the begining that they won't consider removal until it reaches 10mm. My prolactin at present is standing at 780, which is higher than it should be, my own GP considers treatment if the level is over 300, which I think is the normal level, my endo won't treat until levels reach 2000. It becomes a little confusing for me as different hospitals treat at different levels.
I am sorry to hear about all the problems you are having James.what medication did they give you x
Sept 2016 I ended up in the Hospital for 6 days with severe head aches and extreme is ion distortion. They did an MRI and found the Pituitary tumor. The specialist said the Tumor was not causing the head aches. I was out of my home state then went back home and my Doctor wanted to redo a MRI, which he found that I had a cyst.
In hindsight I was very tired for the last 6 years.