Has anyone with sarcoidosis got pku?
Do you mean phenylketouria?
Yes sorry that's what I mean. Do you have it?
No, I don't. Do you?Is there a connection with it and sarcoidosis?
Yes I have and I don't really know, nor do the docs so just asking out there if anyone has.
Just googled it there but nothing comes up about it. Did you get results of your brain MRI? Are your headaches any better?
Yea I did the same it doesn't say anything about links between them. I'm on a waiting list I'm not getting it until March 😔 the waiting lists here are 6-7 months and that's suppose to be fast track.
Could you go private? Or is that an option for you?
Well I did inquire with my specialist nurse and to my surprise she told me I'm better of staying public because waiting lists are just as bad and I would have to pay for everything IE consolations, scans, xrays, I mean I pay between €60-70 euro a month just for tablets any time I visit my gp it's €60 and if I'm in hospital it's anything from €150-€250 a pop.
6-7 months is such a joke, it's not acceptable to expect someone to wait that long. You can get an MRI in limerick privately at an acceptable time frame. I know it would be an awful haul from Dublin. Don't know how much it is but you should think about it.
There is a place here in kildare to I think but I belive it's highly expensive few hundred anyway.
Are you private? If you don't mind me asking?
I do have private health insurance i was thinking of getting of it then the kids came along so I hung on to it and I'm glad I did now. I ask my mother and she thinks an MRI brain is around €250 in a place in Limerick. Am I allowed say the name of the place on here or not? I could find out for you.
Yea I'm going to try go for it next year see how I get on. I'm not sure if you can say maybe pm me instead. My doc will have to give me a referral.€250 ain't bad.