Hi all,
My wife has been battling an extremely rare, painful skin condition for over 10 years now. She has been to over 20 different doctors, infectious disease specialists, primary care physicians, etc. and it’s the same thing every time: a regimen of antibiotics.
Please see pictures below for examples.
The antibiotics usually help for the course of the regimen and for a couple weeks after that, then it’s right back to the bumps, even worse than before the “treatment”. When she calls them back to tell them, they often tell her they don’t have any clue what it could be, send us a massive bill, then ghost her.
They’ve taken 5 different biopsies on her skin so far, each time leaving a deep permanent scar, and each time with no conclusive results. The general consensus from most of the doctors she has seen is that it’s some form of staphylococcus infection. But no one can tell her why it’s happening, what’s causing it, why it’s so bad, or how to permanently address it.
She has been prescribed almost every antibiotic on the market, and last year, they even put her on anti-depressants and anti-anxiety meds to keep her from scratching and picking at them. She’s been on so many antibiotics, her body barely responds to them now. I fear that they are leading her down a path of destruction with the reckless overprescribing of antibiotics.
We’ve also tried almost every skin cream on the market, from natural, organic creams, to prescription steroidal creams. Nothing has made a lasting impact.
We’re thousands of dollars in the hole now, with not a single ounce of hope in sight.
Surely there has to be at least one person somewhere else in the world that has had this condition. Please help!