Your situation and the way your explaining things reminds me of myself. A only recently found out its becoming more common in women. As they couldn't understand why a kept getting them. But most doctors don't know what they are dealing with. Sounds like you have been left with a huge scar like myself. My scar tissue still not healed and still have an open wound which needs dressed 2x a day right know. It's good to hear people being positive regarding the situation this gives me hope things will get better.
Thanks so much. A really hope your son gets this problem sorted it's horrible to wake up every day with this thing and the pain. A really wish you all the luck. Am hoping that mines heals. But if it doesn't unfortunately my next step is skin graft and plastic surgery which scares me. But a would do anything to be rid of this problem. Fingers crossed for you son x
Were u awake? U say the pain was unbearable..?
I was put to sleep both times .. They cut me so deep, 4cms
I lost all nerves
I haven't felt nothing in the 7 month even when they were packing it.. They said ppl normally climb the walls whilst getting something packed like this but I haven't had any, cos of nerve damage, gues that was lucky in a sense
Now u mention lanced.. About a year before these surgeries I got it lanced to skin level in local doctors but in the month a was off work for it to heal it grew back believe it or not, that's why I had to go in hospital and get it done properly like deep etc
2 times a day? Does it bleed quite a lot or ? I only ever got dressed once a day.. They say the less u touch it the better etc but obv if it's bloody or weeping puss, needs fresh dressing due to infection in the area it's at
My scar tissue seems to be getting there , part of the wound broke down but 80% of wound healed and closed.. Now the part that broke down as healed and now needs to catch up to the other part what's been healing like 6 weeks, the part what was open as been closed 2 and a half weeks now.. So just hope it stays like this.. Guna start trying having badidas baths soon, at moment only just started showering the wound..
I only started sitting one week ago, half hour at a time.. Cos my bum feels so weird like bum cheeks feel tight cos scar tissue doesn't stretch much, so when I sit, my bum feels like flat, and lead.. Really hard to explain lol no one understands when I try to explain to family.
You need people being positive cos all u normally hear about these is horror story's! Glad I've done this now, feel I've give ppl a bit of hope
I think I'm going to start having badidas baths now
Nurses were saying it good for wounds, scars, etc
And they said women use it like when had stitches after giving birth, so it sounds good for our problems we've had wound etc
Hope all goes well for u and u heal asap
Hope it doesn't come to getting a skin graft etc
Try and keep off your wound.. Only lay on stomach, on ya bed etc or lay flat on couch.. I stayed off me side and off me bum for four or five month
The slowly started laying on side like laying on hip bone not me bum..
Just can't see putting pressure on bum helping it heal although each time I came out of surgery, the bloody doctors had me sat on a chair, it just didn't make sense after coming from theatre then sit me straight on bum lol
Thanks you very much. It's a stressful time ,,as I find it hard laying on my sides as my hips have began to seize up when a do this. A was on crutches there for 6 weeks but currently came off them ,, as my wound was really big after karydakis flap procedure, I'm on morphine every 4 hours which helps with pain. But I can't feel certain parts of my back or bum anymore due to nerves being cut away. I'm hopeful reading your story that mines won't get to skin graft and might start to heal.
Try laying on front.. My elbows got very sore always propped up but it was just to take pressure ofnot sitting on back or laying
I've watched everything on Netflix and used my ps4 and probs wore it out lol 7 month of laying practically lol
Get a decent vitamin tablet also to take daily, and try and eat plenty of protein.. I was having my gym protein shakes at one point, they say ur diet helps heal too bare that in mind..
Let me know when u heal, I hope it's soon, fingers crossed
Hello is your wound still closed?.. We spoke a few month back
Myn finally closed a month ago then it's opened and been open for the last 3 weeks and infected for 3 weeks aswell can't get it to close, and can't get rid of infection cos it's inside my cheeks were no fresh air gets there
Hope to hear yours is still closed!!!!!
Hi there, I'm replying on behalf of my son!! He had another op privately in London on 1st sept. The surgeon said it was complex and he went 6cms deep again, but this time he stitched it up to 1cm deep, 2 wide and about 14 long. I'm packing and cleaning daily for him, a new skill for me but so far so good. The surgeon is amazing. For the first time my son has hope, and we are both being positive. This disease is unbelievably hard to live with and you have my complete respect and sympathy for just getting up each day to deal with it all over again, it affects every area of your life. All the best with your wound, I hope it's on the road to recovery soon