anxiety feeds anxiety as far as i'm concerned. Unfortunately for me i take after my dad, (worry wart). i was thinking the other day, that if i lined up 100 people & asked them "do u know what parkinsons disease is"? everyone of them would say "of course". But if i asked them "do u know what SFI is"? i'll guarantee, not one of them would be able to tell me. As we both know thats how rare it is.
i cannot talk openly about that stuff but use your brain a bit and think does it really exists and the documentary you have seen are they really true and the answer is no do u know that its so rare that medical sciene they didnt even take much interest in it and when u look on the internet they were mentioning it as an rare component which affects 1 in 10000000000 the question is if its that rare why its on the internet Answer is for money cause i became insomniac when i first heard about it cause my anxiety got worse and i start thinking that i have this horrible disease and a very interesting thing ive seen on the internet that so many young people were on the same boat as me it means that they get there self in that horrible cycle from which they can never come out they are visiting drs wasting money on medicines and want something for there satisfaction but what they end up in psychatric hospital thats all business plz open up your eyes and see cause in some parts of the world medical services are not free at all
and when u see there articles they were like micheal corke has this or that the question is did you see anyone's dead body yet?
Wake up this fake this something else not fatal insomnia a missnomer dont believe on everything you read or see on the internet
moderater plzzzzzz
fatal insomnia is fake
moderator come on man
i was trying to say something but moderator come on man
I suspect posts get delayed when certain of us mention an S and an F and an I. I have this problem myself. I think it's because I and at least one other poster asked the previous moderator (Alan) to remove all posts mentioning the dreaded initials. That was 2-3 years back when there was a real epidemic of panic-stricken young men on these boards convinced they had it - plus at least two trolls assuring them that they did. I was genuinely concerned it might provoke a suicide attempt somewhere along the line. (Yep - I know the 'S' word will provoke an earnest message from the automatic moderator!)
The paradoxical upshot seems to be that those of us who were around then (I know neckbone was) are blacklisted from mentioning it by the automatic moderator, whereas new posters can say it. Funny, isn't it? I get round it myself by using gaps or full-stops between the letters.
I'm going to report my own post, to see whether I can bring this anomaly to the new moderator's attention.
Hi lily65668
We note from a recent post which you have made to our forum that you may be experiencing thoughts around self-harm. If we have misinterpreted your comments then we apologies for contacting you directly. But if you are having such thoughts then please note that you are not alone in this, and there are people out there that can help.
If you are having these suicidal thoughts then we strongly recommend you speak to someone who may be able to help. The Samaritans offer a safe space where you can talk openly about what you are going through. They can help you explore your options, understand your problems better, or just be there to listen.
Their contact details are on our patient information leaflet here: https://patient.info/health/dealing-with-suicidal-thoughts, which also offers lots of other advice on how you can access the help you may need.
If you are having such thoughts then please do reach out to the team at the Samaritans (or the other people detailed in our leaflet) who will understand what you're going through and will be able to help.
Kindest regards
Patient
Fatal insomnia is not fake but the rarity of it makes it almost non existent but not fake.
Oh dear - I said as much in my post, didn't I? As soon as I mentioned the S-word I knew I'd get an earnest little message from the automatic moderator telling me to seek help. You have to laugh sometimes...
For anyone who's only read the e-moderator's post and not mine - be assured I'm really not planning to top myself!
Sfi or ffi do not exists? im not a cruel person but sometimes the truth is stranger than the fiction they are playing games with our minds and in this modern age we rely on the internet to much that if it tell us that someone is standing behind your back and u can see that theres no one there but you will start believing it i suffered from insomnia for about 12 months and im still dealing with it some nights i sleep and some nights i dont or if i do i wake up multiple times in the middle of the night or i sleep but i do not remember that i eventually sleep or not but it got worse when i heard about this thing which is Ffi or sfi i became so stressed and start believing that i have it and i go straight 4 days no sleep and then get 3 hours it was an rare component n it says that it effects one in 1 million but the impact was so strong that so many people like me they start also believing in it that they have it cause what my daily routine was before going to bed i read posts on this forum about this disease and i became obssesive with it this is a horrible cycle i have suffered alot of times from insomnia but i recover cause i wasn't aware of all of that (ffi and sfi) and i was not worried at al
but after when i read ffi and sfi on the internet my mind played that trick on me that i have it and horrible videos on the internet like ricard siagan that fake videos has such a huge impact that so many of young teen agers start believing that this thing is real and they have it they create documentaries for other to get that mentally and dont believe on everything u read or see on the internet and sometimes u cant openly say words about something which is fishy cause ur life is the most important thing take care god bless insomnia is something thats hard to deal with but its not fatal and will not kill u and dont get yourself in a stage where u find no way out cause this is non existent
SFI & FFI do exist, BUT, because your odds of getting this disease is so rare, it is almost non existent. By the way, the odds of getting SFI is like 1 in 100,000 million but we are trying to stop people from coming onto this forum thinking they have this incredibly rare disease cos they DON'T have it but thats not to say it's not real, it is, but just so incredibly rare. You would have a better chance of winning lotto 10 times ova. God i wish! lol!
the man who played the character of an f and f and i patient i found him on the internet the whole people were saying that he is dead i was also feeling bad about his death and then i found him alive on the internet on social media site when i asked him about that stuff he said that he was paid and that was a promotion of an sleeping aid medicine and i was like wtf the things that you see are not real fatal insomnia fake
sorry omien but i disagree. SFI & FFI are prion diseases of the brain, but again its rarity does make it almost non existent. I'm not sure what country u are from but i'm from australia & about 18 mnths ago a news reporter from australia, her mother was diagnosed with FFI (FFI is inherited only) which means any offspring have a 50/50 chance of getting it, & guess what, both her & her brother are carrying the gene. Their mother died from it 6 months after diagnosis, but again this disease is as rare as hens teeth.
Also begs the question, why would a sleep aid company go as far as to say that the person died. Nope, sorry doesn't make an ounce of sense to me. Maybe u should stop believing everything u see on the internet. Goodbye & good luck with your sleep issues.
Nope don t believe either! My nephew is a Dr and he's never ever heard of a case either. Dont believe everything you read just scaremongering
you are talking about my friend hayley web from channel 9 some of the prion disease are not accurate and they were also the part of there drama this world is full of evil dont believe everything you see hayley web has cjd not ffi it was misdiagnosed jus wanted to create that fear of Disease for selling there products fatal familial insomnia is a fake hoax dont believe on everything please this is my request even medical drs who are in this field for 34 years they didnt even heard of that disease fatal insomnia is fake as lunar landing not just a sleep aid company behind there there is so much evil going on this world and the Australian reporter u r talking about hayley web and her brother they are my friends on Facebook from 7 years ok my Aussie buddy i love australia
the journalist that you are talking about she is my friend from 7 years
hayley is my friend on fb before she was not even a journalist ik her husband as well so plz but i love Australia
yes this world is full of lies dont believe on everything you read or see on the internet Fatal insomnia Fake and the documentaries were paid