come on moderator come on man
Well then that will tell you that it's real & i know i'm repeating myself but sooo incredibly rare & that's why people don't believe it's real but due to it's rarity it almost isn't.
thats not real why dont you get it if u loves to live in a fear then u will but they were a part of the programe a tv show if it really exists why the research centre is only in usa and the reason they gave is that people take less interest in rare diseases if its that rare which runs in an genetic lines dont make people fool how can it be an insomnia when u have worms in your brain i want to discuss this topic on youtube but not here cause i dont want that fear in my country United kingdom it is fake 100 percent fake i safe my country and wont let this anxiety and fear in my country cause i will bring them out and show them there real strength and give them that mindset to do something good for there country dont scare my people my youth thank u people sleep well and if u get hit by insomnia dont worry youll b good and fine but dont get yourself in trouble by believing everything on the internet u can ask any Medical neuro professional they will all laughed at your face cause f an f an i is fake it was created by some to create fear
welldone moderator welldone
this is my last reply Love your life and dont believe on everything which is on the internet if u use internet use it for great things and for educational purposes but dont look for ur symptoms and the horrible terminal illnesses which is mentioned on the internet ive done my research of three years of Fatal insomnia and i come to that point that this is fake cause my friend read about this on the internet and he make him ill and he didnot have this and md were saying that he is fine but he strongly believe that he had it pet and mris every medical report was fine but the impact was so strong that he committed sucide because he thinks that he will never sleep again Rip james thats my friends name
but i wont let this happen to anybody f and f and i or s and f and i is fake And all of its patients who are dead in so called documentaries are still alive thank u
and u know why it doesnt even exist
come on moderator these are my last posts come on man
People come on this forum to discuss their issues, not to cause arguments but you seem to think you know best so lets leave it at that ok. Learn to pick your battles on some other forum & especially not with me. Oh & i don't live my life in fear just pointing out plain facts you clearly don't understand. U came onto this forum asking for advice. DON'T come on here to cause dramas. Or i could be accused of calling u a troll.
I think the discussion has run off the rails. Obviously, there is such a thing as the disease we are posting about here. The intent of the original post however is not to suggest that it doesn't exist, but rather appeal to the common sense of and appease the many, many people who post in this forum asking if they have the disease or worse, suggest they already know they have it. Fact is, the disease in question should be the very last stone un-turned for people in their search for the causes of their insomnia. Unfortunately for many, it is the first place they look after doing some googling and finding other fools (like I once was) on discussion boards talking about the disease as if it is as common as the flu.
Rather than worry yourself making observations that have no basis in medical science, focus your efforts instead on the things that can make a difference in you sleep.
- Therapy and/or medication for your anxiety and depression
- Exercise
- Proper sleep schedule (constant "to-bed" and wake times)
- Don't toss and turn in bed when you are unable to sleep. Get up!
- Meditation/Relaxation/Stress Reduction practices
- Stop drinking alcohol, period
- Get away and stay away from night/swing shift work. Yes I know you have bills to pay but they are not worth your quality of life. Look for something else with daylight hours.
okay okay sister but im not arguing you you know what is wrong with people these days thT they dont want to hear the truth now i realise that if u want to live u have to mind with your own bussiness im not a troll or anything but it hurts that the children of my youth they are having problems with anxiety it feels bad and it hurts me so i can keep my mouth shut and delete me from your forum i will never say anything again ive lost my frnd who use to think that he have sfi his md reports were normal but his anxiety got worse and he killed himself shut me off now Bye and delete me from here
but i was just trying to tell them the truth like prophet jesus pbuh said : "they want you to mind with your own bussiness if you tell them the truth they will treat u with hate and stones " ive learned my lesson im quite now God bless Ameen
Where did you find him?ive seen that vdeo anc im still very scared from it
Ive also seen that videoof that guy who was claiming he had it..scariest thing...how do you know he is alive?
Where did you find him?
Well said, neckbone, well said. As i have even mentioned, yes, the disease is real but due to it's extreme rarity that in itself makes it almost non existent.
It's a neurological disorder and a prion disorder but it is NOT CJD. CJD is its own disease and is not related to FFI, however they are both prion disorders. Its good to keep the information factual so people don't get confused.
Thank you ! people come on these sites and act like fools, not to mention they scare others in the process. I never even heard of SFI/FFI until I came on this site. I understand people are scared, I'm going through hell with my sleep fear; however, I'm very cognizant of what I say, so as to not cause further fear in others when seeking help on support sites.
Finding this post was a Godsend. Im 30 and new to the insomnia game and have been dealing with it for two months now. I also have extreme anxiety and horrible acid reflux. That magical combination has caused me to have some crappy insomnia. As per usual, i went down the rabbit hole of sleep problems and, like everyone else, fell into this rare disease. I was terrified. Crushed. My hope of living a full life was crushed. I first got my insomnia after staying up entirely too late on night building a new computer. For some reason, that sparked my inability to fall asleep easily. Ever since then, I've had the cliche insomniacs "normal nights" of sleep. I truly started to feel like hope was lost. Then, as i was on google trying to find a way to prove to myself that i dont have this awful disease curse, i found a title saying "read me you dont have it". I was naturally drawn to your post, neckbone, and had my teeth sunk in as if it were a good book. I read your post 3 times, cried some, then continued on to the rest of the discussion. Seeing everyones replies on trying to help people like me realize i dont have this made me feel quite a bit better. For me, and im sure everyone else with intense anxiety, CONSTANTLY being CONSTANTLY reassured that youre helps calm me down. It helps bring me out of the awful sink hole that is anxiety. Being told im ok, i dont have some wild rare disease, what im going through is absolutely without a shadow of a doubt normal and manageable helps bring me back to the light. Im not cured of this idea like I just took a miracle pill to make it all go away, but i absolutely will say that reading this, and having this now on hand to reference when i need, is going to help me believe that i truly am ok and am not a unicorn lol. People have said thank you for posting this in a way, i believe, as "thank you for clearing up something making people feel crazy. Thank you for posting good information". Im saying thank you in a different way. Im saying thank you for saving me from myself. i dont want to bring too much religion into this because i dont know the rules or policy on that, but i truly believe i stumbled upon your post for a reason. i believe i was meant to see this to help me let go of this heinous idea that i have something or that my problems are far worst than anyone else in the world. so, neckbone, i may not be cured yet lol, but i thank you for slapping me in the face the way i needed. insomnia is normal, its not going to kill me, and ill be ok.
Thank you for your post. I can't lie, it's hard to remember that the chances of actually having this disease are 1 in 100,000,000 according to many sites, when you have every one of the symptoms listed! A doctor I saw hadn't even heard of the disease which I thought would be comforting for me, but it was actually the opposite. I'm doing my best to remember that chronic insomnia is quite common and treatable and can really wreak havoc on my mind and body. The longer I dwell on it, the longer it will last. Praying we all get the rest we need to live long, healthy lives!
thank you for trying to reassure, and i really want to believe it BUT i can not sleep more than 2-3 hours with 7.5mg zopiclone or 15mg diazepam. Surely theres something wrong?
this is making me feel better in such a rough time please if you see this reach out to me im having the worse time of my life at the moment and because ive stupidly read about that horrid disease i feel my self having symptoms, i know its ridiculous but i cant get my head out of it.