hello ladies,sorry for my english ,i am from greece and i am 21!!! i have been suffering with vulvodynia since july this summer. i had a throat infection and as you know i should take antibiotic for these!!!so i take 3 days procef but did nothing and for the first time i gave a try with augmentin!!!its the first time that i take it!!! usually i take amoxill and i never had a problem!! ok so let me tell you about my horrible experience with constant burning!!! after the antibiotic i had a strange feeling a burning feeling in my urethra so i thouthg maybe i have UTI. so i went to the urologist and all the tests came back negative no infection. i told him that i feel that horrible pain something its wrong!!!! he told me that he couldnt do anything for me because i dont had an infection. so because its my fist time that i had problem with my vulva area i went to the gynecologist he prescribes me medicines for yeast but the medicines made my pain worse and spread the burning in the opening of my vagina!!!!its the worst pain i ever felt i couldnt sit and i cried all the time. i said something wrong with, me this pain isnt normall!!!! i went to 4 gynecoligist all prescribes me medicines like fluconazole antibiotics for bv creams but nothing seems to help me. so i made a search in the internet and i found about vulvodynia.....i read that is no cure for that and its a chronic pain.....i felt awful and i was terrified!!!! i went pack to my gynecologist i told him about vulvodynia and he said that i dont have vulvodynia because he made me the Q tip test i didnt feel pain when he touch me....i can have intercorse with out pain and i can insert a tambon too!!!but i have a constant pain when i sit!!!! i feel a burning sensation between my labia minora and labia majora and my skin is red and i feel this burning in the opening of my vagina in my urethra and sometimes in my anus....i have good days and bad does i dont feel the burning all the time but is horrible i cant do anything i cant go out with my friends i cant wear tight clothes.....my life is awful i cant do anything without pain and i am afraid that i will have this burning in my hole life.....my family and the doctors believe that is all in my head....but i try to explain them that all these feellings are real and these condition ruins my life....i had a normall life i was happy until these happened!!!!i want my life back with out pain i am 21 i cant do anything!!!sorry for the huge text and for my english too!!!
Georgia, i had vulvodynia in 2013 and after 1.5-2 years i was completely pain free. If you click on my name you can see my posts and there is one called "how i cured my vulvodynia" which tells my journey of becoming pain free. Other women have posted their success stories on there too.
thank you for your reply....i saw your post and i am very happy for you that you are pain free.....i dont know if i have vulvodynia i diagnosed my self because nobody seems to understand my conditions i dont know what makes my pain flare up an i dont know what can i do to figure it out....any advise?.... its weird because i dont have pain with intercorse but my pain is constant.... although i think its an amazing feelling that you are pain free and you feel that area "normall" again!!!!
for 3 days now i am taking neurontin 300mg but i dont feel any difference....i feel desperate because only my boyfriend understand the condition and my pain.....my family believes that all these are in my head!!!! because here in greece my father was a pharmacists and never heard about a pain like that.....who nobody find anything and any medicine help me!!!
HI, I understand how you must feel I seem to have similar which also started after a course of antibiotics after a UTI. My gyny thought it may be Lichen Planus and gave me DERMOVATE ointment which did reduce the burning a d took the redness away. after several weeks of being absolutely fed up with soreness I was sent to a specialist dermatologist who thought it may be vulvodymia as she said there were no signs of the Lichen. SO anyway she gave me amytriptiline which acts on the nerves in that area and takes pain away. she said also I could try gabapentin or pre gabolin which I HAVE 't done yet. i am finding mornings are fine but when I start to move around and walk distances the soreness comes back which I can only seem to remove with putting ice packs on that area. so a little help there but as mine not entirely gone I am sorry not to be able to say it is a cure. if you find anything else helpful please do post. meanwhile, good luck it is awful.
you need to try everything in my post 'how i cured my vulvodynia' - manual desensitisation , acupuncture, physio, pelvic floor exercises (get the book '7 steps to pain free sex' by Claudia Amherd)
thank you for your reply....i am so sorry that i hear you are in the same condition and in so much in pain. How long do you have that feeling and in which area? this condition its awful i know!!!!
mine started at the end of JUNE!!! it has resolved about 90% but to get rid of all the soreness and forget about it every happened is, so far, not obtainable. today i ordered the gel SUKI was talking about from AMAZON so hope it works. good luck. x
i am so happy for you that you are getting better i hope all the soreness go away.....where exactlly you feel the soreness....i feel the burning between labia minora and labia majora but most in the left area and in the left at the opening of the vagina
hi Georgia
Dont worry Vulvadynia is curable, i had it last NOVEMBER and mine is now almost gone, i get no more pain now at all. Your symptoms sound exactly the same as mine were, pain in vaginal area and back passage, unable to sit without pain, unable to wear tight clothes, such as jeans.
My GP had no idea, so i paid privately to see a gyneocologist and she knew straight away that it was VULVADYNIA. I am a lot older than you, gone through the menopause and was so upset and stressed with the pain, i too though it would never go.
She started me on NORTRYPTILINE at a dose of 10mg and said to increase every 2 weeks up to 40 or 50mg. I also started to have acupunture as read it does help with Vulvadynia, which it did. When i got up to 30mg, the pain got a lot less, and when I reached 40mg, it had almost gone. By MAY this year i felt abke to do things again, so decided to slowly decrease the tablets. I got back to 30mg and felt ok, so after a month i decreased again to 20mg and still felt good, so last month i decreased to 10mg which I am still on but have no pain whatsoever, so very soon I will try 10 one day and none the next and then stop completely.
Please get on NORTRYPTILINE ASAP. Also start acupuncture. Also no bath oils or soap near that area, and wash underwear in mild detergent. I also washed that area every time i went to the toilet with warm water only. I also did yoga at home, you can look up on line which poses are good for Vulvadynia. I also had counselling as i was so depressed with it all. I bought pure coconut oil from the chemist and smothered it all over that area 3 times a day which helped too. I also cut out certain foods, tomatoes, potatoes, tea, coffee, which they say may help. But to be honest I believe its the NORTRYPILINE that was the cure. I have helped another girl going through the same thing and told her to get NORTRYPTILNE and she is now on 30mg and feelimg 70% better she said.
NORTRYPTILINE is a mild anti depressant but also used for nerve pain, which is what causes VULVADYNIA. IT has side affects, not too bad, sleepiness for first couple of days, slight weight gain, and constipation, small price to pay for getting better i thought.
Hope this helps you. Linda
exactly in the same places as you describe but also at the urethra opening area which is why it can also feel like a UTI starting up. a crazy situation which I HATE? Hope you feel better soon.
Linda, thanks for helping me spread awareness that vulvodynia is curable. You and I are proof of that! But there are so many ladies on here with the problem, I feel overwhelmed sometimes.
thank you so much for your advice....and i feel your pain because i am in the same situation as you... i hope you will be better soon.....anything alse that help you with the pain let me know.Have you ever do a test for ureoplasma i had ureoplasma because sometimes these bacterial make your urethra burn....i had take antibiotics and i didnt feel burn because it has gone.....but my boyfriend didnt take antibiotics and we had intercorse with out condom and i start feel exactly the same burn again maybe i have again ureoplasma because when it has gone i didint feel that burning in my urethra.....sorry for my english.....give a try.....good luck!!!!
thank you so much linda for your advice.....i am depressed with this situation....i am 21 and i cant do anything at all and nobody understand my pain i cant figure it out anymore. i am in an awful condition and this semptember i try to commit suicide cutting my vein in my left hand.....i know its not the way to cure my self but i felt horrible and i couldnt stand with the pain anymore....i am so afraid that the pain would never go away....sorry for my english....i feel hopeless I WANT MY LIFE BACK!!!!!!
thank you linda so much for your advice....i am so depressed i am 21 years old and i cant do anything i feel burning sensations and i cry all the time i feel so hopeless nobody understand me....i had read that some ladies take everything and didnt help them i dont want to live with these for the rest of my life....i cant stand with the pain anymore.....I WANT MY LIFE BACK!!!!! i want to be happy again go out with my friend wear my skinny jeans.....but i am so happy and "jealous" at the same time that you are pain free....enjoy your life again.....sorry for my engish....the drug that you take is pamelor??? and how can i started....because now i take neurontin gabapentin an i dont feel that this help me at all!!!
these days i had my period and i didn feel the burning sensation in my urethra but today my period stopped and these awful burning begin again!!!
Not sure about pamelor, the drug i am taking is NORTRYPTILINE? Try and get on to that one, it has done wonders for me and another lady i advised to try. PUSH for it with your GP or specialist.
Believe you will get better, that positivity helps a lot too, try to see it as an illness that you WILL get over.
GOOD LUCK
I had amitriptyline and that helped a lot.
Hi Suki, How much amytripyline were you on, i am taking 25mg per day but still a bit sore doesn't take all the pain away?
Hi georgia58031
We note from a recent post which you have made to our forum that you may be experiencing thoughts around self-harm. If we have misinterpreted your comments then we apologies for contacting you directly. But if you are having such thoughts then please note that you are not alone in this, and there are people out there that can help.
If you are having these suicidal thoughts then we strongly recommend you speak to someone who may be able to help. The Samaritans offer a safe space where you can talk openly about what you are going through. They can help you explore your options, understand your problems better, or just be there to listen.
Their contact details are on our patient information leaflet here: https://patient.info/health/dealing-with-suicidal-thoughts, which also offers lots of other advice on how you can access the help you may need.
If you are having such thoughts then please do reach out to the team at the Samaritans (or the other people detailed in our leaflet) who will understand what you're going through and will be able to help.
Kindest regards Patient