HELLO TO EVERYBODY! I HAVEN'T BEEN ON THE SITE FOR A WHILE AND IT'S ALL CHANGED TOO! DOES ANYBODY KNOW IF PMR IS LINKED TO SJORGRENS SYNDROME
PLEASE? HAVING ALREADY GOT PMR I NOW HAVE ALL THE SYMPTOMS OF SJORGRENS AND AM WAITING TO SEE MY G.P. I GUESS THERE IS A LINK BEING BOTH AUTOIMMUNE
CONDITIONS. WITH ALL GOOD WISHES TO YOU ALL FROM LABRADOR LOVER.
There isn't a definite known link as such except that once you have one syndrome associated with an autoimmune disease you are more likely to develop the symptoms of another. Remember the symptoms you experience in PMR or Sjorgrens or whatever are not the disease itself - that is an underlying autoimmune process that causes the symptoms. The name given to them is often a description of what they are (PMR, polymyalgia rheumatica, many painful muscles) or the name of the person who first noticed the constellation of symptoms which recurred in various patients so they then described it and published a medical paper about it.
If I remember rightly, MrsO had a problem that seemed initially to be Sjorgrens but eventually was awarded another name - either way she had the symptoms! However, hers has improved with time. I'm sure she'll be along later and tell her tale! I have a lot of discomfort with my eyes, they feel sort of hot and slightly achey, I can't wear my contact lenses for long and have to use disposables as I seem to react to any of the solutions. I've just been in hospital for 3 weeks and had allergic reactions to a few drugs, any form of adhesive on ECG electrodes or tape and to the gel used for an ultrasound so maybe the eye problem is a bit like hayfever. But the common denominator is probably an immune system that's gone mad.
Eileen
Hello Eileen. Thank you for your reply and interesting comments as usual! I am so sorry to hear of
all your problems, all this can be so debilitating at times too (as we all know). I am now at that 5mg stage where I can't seem to get under. Well I have been on 4mgs of Pred for the last 3 months but sorry to say the pain has come back. Anyway we plod on! Take care of yourself Eileen.
Kind regards, Labrador Lover.
My Mother has this polymyalgia with dry eyes & swallowing but she has also severe multi infart dementia where she is hoisted around has food pureed & cannot speak. The only positive thing is she appears fairly happy & everyone loves her. The system says if you have some chronic problems they cannot cure you cannot access appropriate assistance when it becomes acute .The system deliberately diagnoses when its too late to address the issues causing the family home to be sold . Beware.I too have severe acute problems but because of multi conditions they all pass the buck which isn't too funny when virtual paralysis & acute pain resolve in hours by upping uti medication .Does anyone want to know? They say not their remit?Where are the patient orientated researchers who pursue matters till a fair conclusion is reached.Someone said thought my problems could be Hughes & Sjongrens on investigation they may have a point.
Thanks Skybluepink for your reply. I fully sympathize with you and your mum and know only too well
how the system fails us as I work in a nursing home with severe dementia residents. What a sad state of affairs! I wish you well and best wishes to your mum.
Sorry to hear of your problems Eileen, Lab lover and Sky bluepink.
I have had dry eyes for a few months now too. My GP thought it was a side-effect of Amitriptyline, which I was taking for bladder pain but stopped that med 6 weeks ago and the eyes are still dry - actually it's mostly the left eye. I have wondered about Sjogrens as I have needed to carry a bottle of water with me constantly for a few years.
Beev