PMR - associated weight loss

[nh_user_3641]

I have had PMR for almost 2 years now, for which prednisilone more or less masks the symptoms. At one stage I got down to 8mg a day but a ‘surge’ of symptoms last November meant I had to go back to 15mg. I am now taking methotrexate 20mg a week, and have simultaneously got the prednisilone down to 9mg. I supplement this medication by taking co-dydramol two or three times a day, when necessary.

Prednisilone has induced Type 2 Diabetes, but the worst side effect has been weight loss (now arrested, thank goodness) which is the opposite effect to that usually experienced. This loss is mostly from my leg muscles, which has resulted in my having little energy for walking.

All sorts of tests have been done to see whether the weight loss is caused by some other illness, but nothing has been discovered.

I shall be grateful to hear whether any others have had similar unexplained weight loss.

[nh_user_1249]

Patrick

In the side effects leaflet in my tablets it says:

'You may find that your appetite increases and that you gain some weight, perhaps around your face. Alternatively, you may find that you lose weight or feel weak'.

How I wish that I came under the 'Alternatively'. I have put on over 4 stone.

But I have bought an exercise bicycle with a large 'fat bottomed lady' seat to keep and build up the strength in the leg muscles. Luckily it cost just £149.

Mrs K

[nh_user_1249]

Patrick

I also meant to say there is a support group for PMR-GCA sufferers located in East Anglia.

If you want to contact them - follows the links on this site and email me.

[nh_user_3641]

Dear Mrs K

Thanks for your replies. I am a member of the group you mention: they are very good, and get good speakers at their twice-a-year meetings.

Patrick.