PMR diagnosticado após 21 meses de consultas médicas

Sorry you're having no success with your local doctors.  Did you take the info on PMR/GCA with you to emerg.? If they ignored that you'd better go to Edmonton to emerg.  Maybe your GP could call and give them some background info ahead of time.

You said they did a trial with prednisone a couple of months ago. What dose and what was the response? Did they wean you off at that time?  If so why?

Have you had your Vit D checked. We need to watch that living above the 49th, especially with everyone wearing sunscreen these days.

15mg to 20mg are the typical starting doses for prednisone. Your response to that is usually a 70% improvement in symptoms within hours to a few days. Since you have only had a 40% improvement have they suggest any further testing?  

What Eileen said about fighting pred is very true. Despite all it's side affects that do affect us so personally both physically and psychologically we need to be it's friend. At this point it is the only thing we have that gives us any quality of life.  You will find that as you have more understanding of PMR and accept what you can and can't control you can focus on the enjoyable things you can still do.  

I expect if we only breathed clean air, ate organic everything and didn't touch processed foods it might help but very few of us have that option or choose to do that for a variety of reasons.

I hope you get the care you need very soon.  Taking your daughter is a great idea.  Keep us posted on your progress.

Hugs, 

diana🌸

Personally I'd say she was just being impatient - 50% in 4 days isn't bad and some is more better (lousy grammar but you know what I mean!). If you have bursitis that usually takes longer to fade with oral pred. I'd stick at the 15mg for another few days at least.

Quite a few people have found that cutting carbs drastically helped them avoid weight gain and no too much hamster-cheeks. It is definitely worth a try.

I definitley do have bursitis in at least one hip and one shoulder.  I think I will go back down to 15mg.  I've been up since 1:30 am.  I also have an area around my mouth that is much more pins and needles sensation than at 15mg.  I hope that doesn't mean I will develop an allergy.  Thanks for the advice.  Much appreciated!    

 

I am splitting my prednisone dose as suggested by a member of this forum, and it is working well for me.My pain is now 95% under control. [* happy]

Appointment to see new Rheumatologist on Nov 16th, hopefully this one has a clue.I don't want to hear one more time I'm too young for PMR.Have a great weekend my friends [* winking]

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