I have today been sent for tests for PMR and as I already suffer with hyppthyroidism am concerned at having two conditions that seem little understood and incurable - only controllable. Has anyone else experience of these conditions together and if so can they offer any advise partcularly on whether exercise makes PMR better worse or no different. I feel if I don't keep moving then everything will cease altogether and yet it hurts so much it's very difficult to get motivated to get going. Sorry to ramble - I just feel so old.
Betty :? :?
I have been taking Thyroxin for several years now for hypothyroidism - I don't think of if as an incurable disease - it's just a slight malfunction, that's all. Thank goodness it can be controlled so easily and with no side effects! So don't worry about it.
PMR is not as easy. Although you can control the symptoms to some extent the side effects of the Prednisolone are more difficult to tolerate. But again, don't think of it as an incurable disease (even if it does feel like one). Most people get over it - it takes patience and a lot of cortisone! All of us on this website can empathize. Keep checking in, join PMR fighters, see if there is a support group nearby. And you can copy my mantra
\"THIS TOO WILL PASS\"
I'm going to put a call out to PMR sufferers who are beginning to see the light - there are many out there. Maybe we can rejuvenate you :D
Thanks for that. It puts it all into a better perspective. I guess I was a bit shocked and bewildered yesterday but am feeling much more positive today. This too will pass
Betty
Betty
I am a great believer in gentle exercise whilst suffering PMR.
We have to find the fine line between not giving in to PMR and not over doing it. Its not easy when energy is in such short supply and everyone is different. Exercise will not cure PMR but it will keep your body in tone for when you recover, and you will
I have always championed swimming and aquafit and I recently attended a meeting held in my local Rheumatology Dept with representation from all the self help/support groups e.g. Lupus, Arthritis, RA etc and ALL valued the hydro therapy treatment they recieved through the physiotherapy Dept of the hospital and wished they could have more.
In the water you almost feel like you have control of your own body again and you feel so much more flexible afterwards.
I also use a power plate in my local gym twice per week, this tones muscles, builds bone and improves circulation.
I walk on the flat for at least 2 miles twice per week, at my own pace, and hills can be conquered with small steps, much puffing and many stops. I believe the recommendation is at least 30 mins weight bearing exercise each day.
If you wish, contact pmrfighers@yahoo.co.uk we are working towards a new charity PMR-GCA UK and helping to set up self help/support groups throughout the UK. You are not alone
take care
Thanks Pammy - that sounds like really good advice and up until recently I have been a regular visitor to the swimming pool and gym and as soon as I can I plan to get back there. I find it very encouraging that exercise will be possible again soon and look forward to getting back to normal.
Many thanks
Betty