Good luck to you!!!!
One year before PMR, my left hip started hurting after one block, preventing me from walking my usual many miles around town (I don't drive). The nurse practitioner said, without tests, oh it's arthritis and gave me 500 mgs Napraxon. I could not bear the strain on my heart and took the milder form, Ibuprofen. Midyear, A doctor gave me Levofloxcin for possible pneumonia that triggered PMR but was not diagnosed as such until months later.
PMR on Ibuprofen: I lived on the maximum amount daily for a few months before PMR diagnosis. During that time I lost 20 lbs, had a torn rotator cuff that was relieved by a steroid shot, and had the PMR waddle from stiff hip muscles. I could not get up from the ground without pain when pulled up by my arms My knees swelled with fluid that was labeled arthritis (one knee was damaged by falls) and had to be drained. I saw a new doctor who suggested trying 15 or 20 mgs of prednisone and I became a new person. The rest of my story I told you previously in this chapter.
Out of a clear blue sky for me!
Hi peggy_56092
Ah! so pneumonia triggered your PMR..glad preds did it for you...eventually...🤗👍
Hi BettyE
Your PMR was not triggered by anything specific....so so far:
Audrey: PMR triggered after eye surgery peggy: PMR triggered after pneumonia Mary : PMR triggered after foot surgery BettyE:PMR no triggers
So far surgery showing most triggers..
Thank you all for your input, but of course, we need many more patient triggers or non- triggers....👍
I had had no surgery for 15 years previously. Nor infections.
No! Levofloxcin triggered PMR. There have been many lawsuits against this drug for various ailements. PMR was not mentioned as far as I know.
By the way, I did not have pneumonia.
Prednisone improved my life within 24 hours or less after being on Ibuprofen for months!
Hi peggy_56092
Sorry....so it was medication that triggered your PMR...that's a new one on the list...
Hi EileenH
No triggers for you same as BettyE. Graph is changing now:-
BettyE: No triggers EileenH:No triggers Audrey:Triggered by surgery Mary: Triggered by surgery peggy: Triggered by Medication
So now we have 5 patients:- 2 patients PMR no triggers 2 patients PMR triggered by surgery 1 patientPMR triggered by medication
Interesting, would get more interesting with a lot more patient triggers. Still, so far we have 50/50 trigger with 'surgery' and 'no triggers' and 1/5th medication trigger....
Just to muddy the waters a bit more, sorry! After almost five years of pred. for my second round of PMR and when I was down to 1mg. I had a hip replacement. It was wonderfully successful and I was finally able to stop taking the Pred. six months later. No sign of PMR.
Two and a half years ago my partner of more than fifty years died. Obviously a very stressful time but no PMR and still no PMR. I count my blessings but cannot explain them.
My PMR was triggered by a stressful career situation that overtaxed my adrenal system -- like living with medium level fight or flight for about 3 years. The predisposition -- Northern European and Viking ancestry -- was there but the catalyst was stress and a hyper-inflammatory response.
Hi BettyE
Sorry to hear about your partner of 50 years passed away that must have been an extremely stressful and upsetting time for you. So glad your hip surgery was successful and PMR hasn't returned....
Hi peggy_56092
Levofloxacin can cause very painful muscles and tendons among other things. Muscles are affected by PMR so yes, the antibiotic could well have triggered your PMR....image.
Hi EileenH
Can you recall any stress or trauma pre PMR?
I'm now at 2 mg pred, after close to four years, three of them below 5 mg. I'm also trying to keep the edge off pain and stiffness by using other analgesics but not every day. They do "take the edge off". Which is why I wonder if PMR is actually in remission. Thing is, I'd been somewhat stiff and achy for years (osteoarthritis) until after a year of increasing suffering I was quite disabled, and PMR was diagnosed and I started miracle pred. I had lost weight beforehand while I was ill, and have not regained any of it although I could use a bit more flesh on my bones. Had to give up nearly all carbs from grains because of my blood sugar going way up (not quite diabetes) early days on pred. That problem is sorted now, blood sugar perfectly normal, and in fact was in a safe zone within months of starting pred. Anyway I don't think I can expect to feel better than I did before succumbing to PMR, so trying to continue a very slow taper. But it was nice to have several years of feeling pretty well....
Hi Harrie4
Yes, stress is very detrimental to our health and with your disposition you were a prime candidate for a hyper-inflammatory response. We haven't got any stress triggers on the graph yet your the first. I imagine there is many more out there. If i do get quite a few more various PMR triggers i will draw a graph see what it reveals and post it. I do hope you are managing the pain well....
thx Mary, for your good work and analytical instincts!
Mary,
Mine came out of the blue......or brown. I think Lyme's disease may have triggered it for me.