Thank you for replying ! makes me feel a little better.. I’m just hoping this all goes away and I can live my normal life again. I’ll look into physical therapy as well and see if it helps (:
Thank you for your reply, I’m sorry to hear about your daughter.. were they all on the same lung? and I looked into the fb page ty
She had one on the right lung and two on her he left. They were also small so surgery was not suggested at that time.
Hi sorry to hear about your daughter. I had spontaneous pneumothorax too a month ago now. It’s my first time and with the symptoms I experience I never thought it was pneumothorax. It took me 6 days before going to a doctor because I thought the pain and the SOB with exertion is nothing serious.
I had chest tube for 2 weeks.
The first week was in the hospital and the second week at home. I didn’t have surgery just like your daughter. But the thoracic surgeon told me that it can happen again and next time it happen I have to undergo surgery.
Your daughter had 3 and never had surgery.
Does she have blebs in her lung too?
I see thread is pretty old but I’m surfing looking for other Pneumothorax survivors. I have had the bubbling sound I think Sounds like what I call "Aqualung ", literally. Or like the sound of vaping. My lung collapsed and I’d never heard of SP until I was rushed to ER by ambulance from work. I was given the chest tube although it was actually inserted in my side about an inch under my arm. Talk about uncomfortable! I was put under and don’t remember anything except waking up in a hospital room that I stayed in for 14 days I had the VATS PLEURODESIS and it’s only been three weeks since surgery.
I have very little paint but I do have clavicle area discomfort especially when I try to inhale deeply. I had the bubbling sound a week ago and I got scared immediately! Walking and talking at the same time is out of the question and I have a strange deep reflexive inhale -like heartbeat while sleeping
My worry is recurrence. I can’t believe this has happened to so many people more than once! How do people handle it? I didn’t have any lung cut just the whole mechanical scrubbing thing for purposeful inflammation to blow up the lung to keep it in place.
Has anyone had a recurrence? How soon after surgery? Do they repeat the same surgery or something even more traumatic and invasive? Answers please I’m p worried about nothing Bu.
Her first was on the left and 3rd and 4th were on the right. CT didn’t show any blebs, but that is what the docs think she has. We did consult with 2 surgeons one suggested surgery the other said he wouldn’t have a problem waiting. Her pulmonologist said she can always have the surgery, but you cant undo it. So we decided to wait and see what happens. It has now been almost 4 years and no more collapses. She has had a some scares…pain that seems like a collapse but resolves on its own. XRay didn’t show collapse. She is 19 now and happy with her decision. But every case is different. Hope you have a good outcome whatever you decide.
I had 2 SP’s this summer, i’m a 47 yearvikd woman. It turns out mine were due to Endometriosis. (Catamenial Pneumothorax). It might be worth mentioning it if it happens again. Good luck xx
I have had multiple collapsed lungs as well. With two surgeries to repair both sides. My lung did collapse again since the surgeries and I had to have the chest tube again. So yes it can happen. I also have found out recently that I have another large bad spot Blib again the doctors think I should get removed to prevent another collapse lung. I don’t want to scare you though the doctor did say I had a pretty sever case of primary pneumothorax. I also do get some chest pains that I have though was bad enough to be collapsed and went in for chest X-ray and it was not collapsed. Well good luck to you. I had more of a question for people if they are experiencing a lot of numbness in there hands due to the surgery years later or if it is just from something else.
I do have another question about the lung surgeries. I was wondering if any one gets a lot of pain in there back area where there lungs are if you lay on your back for any long period of time like an hour or more? I had the surgeries where they went in with a camera in the middle area of my lower back, then they cut where my shoulder blade is and went in and cut pieces off my lungs, scraped up the cavity walls, and stuck the lungs to it. This also now causes a lot of pain when the lung collapses now, because the lung has to rip away from the cavity wall now, where as, before it would just be hard to breath. I had my last surgery back in 2001 and I cannot lay on my back for any long period of time due to a agonizing pain located where my lungs are?