Hi bili and Donald V. Just want to mention that all of us withPV have feelings of malaise,(tiredness). If one isn;t feeling well, they get tired, and need naps now and then. Also, when we are on Hydroxyurea, our blood sometimes gets a little low. WE can be lacking certain vitamins. But in order to keep the blood from getting too high, we have to not worry about it. I do take a one a day vitamin,
but if I get tired, usually around noon, i lay down or take an hour nap. Problem solved. My CBC blood test usually shows which vitamins I am low on. My GP gets a copy of my cbC and shows it to me.
harrishill
Hi! You can view the latest med information about PV from the Dr. Richard T. Silver research.
The 1st Annual International Symposium on Myeloprolifertive Neoplasms
Saturday, Jan 9th, 2016
"Is Polycythemia Vera Curable?"
In his study, I think the PV is curable in the future.
Best wishes and be well.
Hi DonaldV. Yes, I've also heard that PV may be cured in the future, using gene therapy. However, we can still live a fairly normal life span with pv. That is, if we don't have too many complications. As I am, I've been diagnosed for four yrs now, and I still work around the house and yard like I did before. I still work out at curves, go for walks, etc. I have rheumatoid arthritis, and I really hate that it affects my feet and hands. I don't take the arthritis drugs because they have too many side effects. I see my haematologist regularly, and he is very good.
universes1