I AM 43 YEARS OLD AND GENERALLY A VERY ACTIVE PERSON, KEEP FIT ETC 4 TIMES A WEEK . MY MUM HAS PMR AND MY AUNT FMR.
OVER THE LAST FEW DAYS I HAVE NOTICED A GRADUAL INCREASE IN PAIN ESPECIALLY WHEN STILL THE PAIN BEING AROUND MY HIPS AND THROUGH MY MUSCLES IN UPPER LEG, IT PEAKED TODAY I CAN HONESTLY SAY I WOULD RATHER GIVE BIRTH IT WAS SO PAINFUL, I HAVE TAKEN ANTI INFLAMMORTY TABLETS AN HOUR AGO AND IT HAS EASED THE PAIN SO MUCH, I AM WONDERING COULD THIS BE THE ONSET OF EITHER PMR OR FMR. i HAVNT EXERCISED SINCE THE 18TH DEC WHICH IS A LONG TIME FOR ME, AND WAS WONDERING IF MAYBE IT IS THE EXERCISE WHAT KEEPS THE PAIN AWAY NORMALLY AND IS THIS WHY I HAVNT NOTICED TILL NOT DOING ANYTHING AS I KNOW EXERCISE IS MEANT TO HELP EVEN THOUGH IT IS THE LAST THING I WOULD WANT TO DO IF I WAS IN THE PAIN I WAS 1HOUR AGO. i WOULD BE INTERESTED TO HEAR ANYBODYS VIEWS ON THIS , AND BY THE WAY I AM NOT A WIMP HA HA HAVE HAD 3 CHILDREN NO PAIN RELEIF !!!!
HI there, Debbe
Polymyalgia is diagnosed through mainly blood work showing high readings of ESR if this is elevated then this is a usually diagnosis. This test measures how quickly red blood cells fall to the bottom of a test tube of unclotted blood. Rapidly descending cells (an elevated sed rate) indicate inflammation in the body. While the sed rate measurement is a helpful diagnostic tool, it alone does not confirm polymyalgia rheumatica. An abnormal result indicates only that tissue is inflamed, which also is a symptom of many forms of arthritis and/ or other rheumatic diseases. Before making a diagnosis of polymyalgia rheumatica, the doctor may perform additional tests to rule out other conditions, including rheumatoid arthritis, because symptoms of polymyalgia rheumatica and rheumatoid arthritis can be similar.
Fibromyalgia on the other hand has no blood work abnormalities and so therefore is difficult to diagnose, generally it is due to having widespread pain more than three months and you have more than 11 out of 18 tender points.
I would go back to the doctors if I was you and insist in blood work being done tell him/her your difficulties and then the investigations can take place. I have seen many Specialist's and it takes some time to get to the bottom of things so the sooner you go and see the doctor then the sooner you will get the appropriate medication....... I am on Pregablin (lyrica) which is only prescribed through a pain Specialist for Fibromyalgia, once again your doctor will have to refer you, it can be a long process to get to the bottom of your pain. At the beginning of my rollercoaster I had anti inflammatories with Tramadol which seem to work, but again your GP will have to assess the situation.
Kind Regards
SES
Hi Ses
I hope life is a bit better for you and that you had a good xmas.
It sounds like you might be getting some answers to your health.
Wishing you all the best for this year.
Lizzy
Hi Lizzy,
The weight I have gain since the beginning of this is stressing me out, and cause I am less mobile on my feel like I used to be this hasnt done me good neither, I weighed this when I was pregnant with my first lol so not really happy!!!!! PBC makes you struggle processing fat intake, and as I have to be careful with certain toxins like even too much Caffeen this all contributes to me feeling like cr*p too, I even have to be careful regarding paracetamol only allowed upto 4 a day, not allowed asprin so getting to know more now what I can and can't have no Alcohol ..... makes me sick tho as I was ignored for years and it could have been fatal!!!!! I am so annoyed tho that DLA commissioner after fighting my claim for help relating to mobility he apparently has refused submission for my calim to be looked at again, even though it went to supersession what ever that is.... still fighting that one!!!!
Anyway my dear friends I do hope you all are keeping your chin up..... I hope this cold weather isnt make you all to miserable xxx love to you all and lets hope that 2010 is a better one xxxx
Regards
SES x
Hi Ses,
Glad you are getting some answers at last! As far as I know supersession is like Ray has middle rate care and GP said he could ask for supersession to see if he now qualified for high rate care? Don`t know if that`s what happened to you. Hope things get really sorted out for you in 2010 we all deserve some good luck for a change.
Linda
Hi ses,
I am glad to hear that you now know what is wrong and that you can look after yourself better.
I am still getting more conditions added to my list. It would seem once you have one autoimmue problem you can collect a load more. The names are really hard to say. :roll:
Take care and wishing you all the best for the future.
Lizzy
Hi Ses
Like Lizzy and Linda said it is good that you are getting somewhere with your pain etc. I hope you had a good Christmas and New Year. I do hope 2010 is a better year for you and things work out for yourself and family.
I am off to see my cancer consultant for a routine check tomorrow. Although saw doctor today and said my levels were a bit high and making them overactive. Going to see what Consultant says tomorrow about whether to change level or not.
Take care
Tess
HI Tess, I hope all goes well with seeing your Consultant xxxx and yeah I do feel relieved in some respect, but now and again I am tearful, I went to see the Pain specilist and he said how was the pain killers tramdol and I said they dont work, he was going to give me something for my joint pain but after I explained I have PBC he said he couldn't give me them, he expressed that I should keep off as many tablets as I can, in order not to further harm my liver :roll:
Lizzy yeah auto-immune disorders seem to link somehow with each other, hope you are feeling ok too x
Hi Paddy how is Ray? how are you too, yeah I phoned the appeals office up and they said I hadn't been successful and should have heard from Commisioners office around the 15th Dec 09 but that was around the time my hubby sent them a letter with my new diagnosis, so I am wondering whether this has made a difference why I haven't actually heard anything from them? I hope you are coping ok too xxxx
My lack of concentration is getting worse though and I get so edgy now as I am getting frustrated with not being able to do things like a normal 37 year old should be able to do..... Xmas was ok, cause I can't drink and so new year was kind of boring, but on a good note my daughter moved back new years day so that was a good start to 2010.
I see the Liver Specialist in March so hoping these meds are working, as all this is a bit scary, anyway my dear friends so sorry I haven't been in touch for sometime xx love to you all xxx and keep smiling xx 2010 will be a better one, I hope you are all coping too xxx
SES xxx
Hi Ses
That is good news about your daughter I hope it all works out well for you both.
I hope your health improves for you. Its really hard living with a chronic illness knowing that you are always going to have to live with it. I am now coming to terms with all my problems and I am slowly begining to get things under controll so that I can have a better quality of life.
Tale care.
Lizzy
Hi Ses,
I`m glad your daughter has moved back, and I wish both all the best for the future 
Well, we should now be able to cope with the physical side of our conditions better as the lift and the wet room are now complete, its lovely to be able to have a shower whenever I want without having to worry about getting into the bath or loosing my balance when showering.
Hope you get more answers from your app in March and they can work out how best to treat the different conditions.
Linda
Hi Ses
Like Linda says it is good your daughter has moved back home. Must be nice for you to have her there. I hope they can sort things out for you when you see them in March. Do they think it was any of your tablets that has caused your cirrohsis? It is such as worry taking lots of different tablets. :cry: I can't take any anti inflamatory tabs as they give me acid reflux.
I know they can cause stomach bleeding if you take to many.
Its not very nice when we can't have some form of medication to help with our aches and pains. We all have to try and go from day to day and do what we can. I keep getting sinus headaches at the moment on waking and then coming on suddenly sometime during the day. I would rather have pains in my legs than in my head. :cry:
Well all the best for 2010 and talk again soon.
Tess
Hi Tess,
PBC isnt caused through Alcohol or medication, its just something there in the genes, usually after a pregnancy around mid thirties..... My doctor whom said i had autoimmune hepatitis so predicted in these lines what was wrong, it was him that got the ball rolling as my SED RATE has always showed inflammation since I had my little boy, and as my GP took a look at the time this had gone on as he took my file home to read, he recognized there was something wrong, I asked my old surgery over and over again why I had raised SED RATE and they just said was the medication I was on!!!!! Anyway, when I was referred to the Rheumo he did the AMA test Mitrochondrial anti-body, which is a marker for PBC, this test isnt widely done I dont think but due to my history it was only done because of this?? Anyway I am waffling now and not sure if what I have said makes sense lol......
As with the Acid reflux that has been a nightmare, the lansoprazol I take twice a day doesn't seem to be working and so I am off to see the doctor tomorrow as the acid build up is kind of coming up through my nose and my eyes are stinging.... I have dry eyes anyway.... so do not think it is linked..... the acid reflux though does seem to effect my breathing and again is a bit of a concern so I hope the doctor can help me for that too???? So sick of moaning :oops:
Yes My daughter is home and is a relieve she is very hormonal though bless her!!!! Anyway my dear friends thanks so much for your replies and hope this cold weather isnt getting you too down!!!!!
Take care everyone and hugs sent to you all xxx
:wink:
SES x
Ses
I'm so pleased that things are begining to unravel for you,so that things can be treated properly. I think doctors really have no idea how we feel and what its like to deal with an autimmune condition 24 hours a day with no relief.
How is your daughter? It must be a relief to have her home again.
Take care. Sending you a gentle hug.
Lizzy
Aww thanks everyone xxx
I went to the doctor and he said he thinks I have a stomach infection as the acid is coming up through to my nose and my breathing is effected. Gotta to do a stool sample too.... but suppose they have to .... give me meds to relive it for the time being????
Anyway my dear friends thanks for your replies once again xxx hugs to you alll xxx
Hi Ses
I hope they can soon sort out your stomach infection and the meds will help until they know for sure. Poor you getting one thing after another. It must be good for you have your daughter home. Just had my daughter, her partner and the two grand daughters Molly and Sophie to dinner today. Molly is now 6 and Sophie is 17 months old now. Time goes so quick.
Take care
Tess
Aww bless Tess, how nice, yeah time goes by so quickly xxxxx i bet it cheers you up xxxx love to you all and I hope you all are coping ok with this dreadful cold weather xxxxx
Hi everyone,
It`s good to have you back on here SES, hope you get your infection sorted out quickly. How is your daughter, hope she`s settling back into the family now.
Lizzy and Tess hope you are both ok, how`s the tiredness Tess :?: I`m still struggling to stay awake, but all my bloods were normal. No surprises there then :?: Well, Ann had a letter from the housing association today, saying there was an estimated delay in releasing the flats of about 4/6 weeks 
She was surprisingly good about it, but I guess having something in writing may make her feel better. She had her alergy tests today because of the chronic cough and low and behold she is alergic to most normal things :!: House dust, trees, plants, cats, dogs the list goes on :!:
We seem to be on track with Mum`s move, but I discovered something interesting today, she was on Tramadol for 6 weeks which has the side effect of causing confusion :!: She was much better today and has been off the drug for about 10 days. I wish I`d realised sooner, we might have saved some of the distress the added confusion caused her.
Well going to write some change of address letters for her now, take care everyone,
Linda
Hi Linda. Lizzy and Ses
Good that Ann has heard something definite about the flat. Like you say it is better having something down on paper with a date for the move for her. Your mums move seems to be going ok for you. Will be nice when she can finally go and get settled.
I don't like the tramadol as my Dad takes it as well for pain. That is why he gets confused sometimes and it makes him very drowsy. Another reason for falling over.
He is still in hospital but off the heart monitor now and they have started him on a new medicine to help with that. They have also been looking after his ulcer while he has been in there. They were going to let him come home yesterday but have kept him in as want to get the carers into place before letting him out. They will come in the morning and again at teatime. Should be able to make sure he takes his tablets correctly. Its important with the new tablet as it thins the blood and he needs to take it regularly. He is going to have a walking frame as well so they have had measurements of his doors etc.
My Dad will hoard bits and pieces in his flat and make it difficult for moving around. My brother has been in and given it a good clean and moved things around to make it safer for him. He is so stubborn though and will bring all the bits out again lol. :cry:
Good news your bloods were alright but disppointing not knowing why you are so tired. Yes I still feel tired as well but said my bloods were ok. Put mine down to Fibro or Thyroid lol :cry: Going to give it to the end of the month and it I do not feel any better going back to see the doctor. :cry: :cry: He last did my bloods the middle of January. Still waiting on a blood test result from the hospital.
Lizzy hope Alans interviews went ok and he hears something soon.
Ses hope you are doing ok!
Tess
Hi Tess, Linda and Ses :lol:
How are you all? Tess and Linda has the tiredness improved? The cold is making my joints a little stiff.
Tess I hope your Dad is able to go home soon. My Granny use to hoard lots of stuff, she use to give me bits and I use to take it home and mostly bin them. It still took me months to clear he bungalow after she died.
Linda i didn't know that about Tramadol you learn something new every day. Theres so much to do when you move, I hope your Mum will settle in quickly when she gets there.Ann must be getting excited about her move. Were the allergy tests done on the NHS or private?
Ses hows it going for you? Do you actually feel any better ? Does knowing help you. I hope your daughter has settled back Ok.
Well my thyroid appt. went better than I hoped, I have nodules and other bits wrong with it, but all bloods are normal apart from calcium and Vit D. He asked me about my cycle so I said what do you mean? I had forgotten about periods as I had a hysterectomy 8 years ago.So he wants to investigate my hormones. (so it could be the menopause :roll: :lol: :P )
I will feel so silly if it turns out to be the menopause. Anyway he wants the doc to give me a Vit D injection, sort out a 24 hour ECG and to treat the anxiety/depression properly. I go back in 6 months.
Take care.
Lizzy
Hi everyone,
Lizzy, glad your thyroid app went well :!: I think we feel better if just one thing goes ok. Ann had her alergy tests on NHS at the chest clinic where they are investigating her chronic cough, she doesn`t have asthma, they have confirmed that, so not sure yet what the signifcance is of the alergies! I don`t know about her being excited over the flat, she`s like a bear with a sore head cause of the long wait :!: lol Lizzy, if you don`t mind me asking, how old are you :?: I went through an early menopause at 42yrs and have never felt right since, only the other day I thought I was having hot flushes and told myself not to be stupid, but now I`m wondering if it could still be going on and that`s half the problem :!: Will be interested on how you go along with that one.
Tess, has your dad come home yet :?: I know just what you mean about moving things and then he moves them back. The Social worker told my Mum she couldn`t got home unless all the rugs were taken away, I had to bring them home with me otherwise she would have put them straight back :!:
Well, things seem to be on track for mum`s move, I was getting really wound up about it, so sat down and made a sort of timetable/plan so I could pace myself, and I hardly dare say it but it`s the first time I`ve had any success with this pacing lark :!: However I`m doing nothing in my own house, but will worry about that when the move is over.
Well have a good weekend all,
Linda