:? :?
My husband was diagnosed as having lung cancer nearly two years ago. This turned out to be a \"mistake\" and he was given the all clear. We went through 10 days of hell before we were told that there had been an error. My husband was just glad that he was ok but three days after the \"all clear\" I woke up in the morning unable to move. At first my G.P. thought I was suffering from a post viral illness?/fibromyalgia. I was soon put on prednisalone (20 mg per day) which completely eradicated all my symptoms. I thought I was cured. I was taken off steroids and my agony returned. I was then prescribed prednisalone for one month 10 mg. of predisalone, and again my symptoms disappeared. I was taken off steroids one month later and I had a dramatic relapse. I have now been on a reducing dose of steroids until I reached 3 mg but gradually my symptoms returned. I have now developed athritis in both knees, I am going through the menopause, and I have increased my weight ++++
I am due to have blood tests but I feel that I have been overlooked+++
Hi there Jean
I was told that I had symptoms of Polymyalgia off my Gp and three other specialist say maybe fibromyalgia, however when I put this to the rhuematologist my blood results showed that the sedimentation rate was 32 and as I am 35 and the result wasn't high enough I wasn't in the category of Polymyalgia but still to this day my gp has not not clinically noted either! !!! However, I have been told by my physio I have arthritis of the hip and secondary Fibroymalgia so hopefully once they communicate which other once my sessions have completed an overall conclusion may be made?
Kind Regards
SES
:diva:
Hi to both SES and Jean
It is not uncommon for PMR to be misdiagnosed and although - according to the NHS website - most people who suffer from PMR are woman over 50 - there are quite a few younger women and also men who suffer from PMR.
So keep on going to your GP for a diagnosis and also ask to see a Consultant Rheumatologist.
Most GPs have about 3000 patients each and as PMR is not that common, but more common than is thought - the average for a GP coming across a patient with PMR is about 3 - 4.
If you want to contact a group of us who are setting up self-help/support groups, email pmrfighters@yahoo.co.uk
Mrs K
Hi there All
Just to say that I have been diagnosed with Fibromyalgia and even though my sed rate is 34 it isn't high enough or am I old enough to have Polymylgia (35), so relieved as the Consultant was very sympathetic and re-assuring, finally someone listening to me, now I can confirm it's not all in my head Embarassed .
Kind Regards
SES :lol: