I finally have an appointment with a specialist in New York who is going to help me get the proper diagnosis. I am going to request a biopsy and update on what the news is. However, i wanted to ask, does Ls cause a burning sensation in your anal area as well? This is so TMI but it happens on and off, more so around my period. Also, i have noticed fissures here and there. Is this common for LS? If i wear tight jeans or am on my feet all day, i will get a prickly sensation in that area and it looks irriated. Sometimes i get an intense itch that will not go away unless i relieve it. I am only 19 and feel so crappy that i am going through this. if any of you ladies could give me some insight and tell me any of your symtpoms that would be helpful to me. (just to add, i use coconut oil every night and A&D ointment on any tears. thank you
Hi Nicole, Unfortunately, LS hits the entire genital area, anal area too. Its happening to me. I'm curious what the NY doctor says. Is he a Vulva specialist?
I'm sorry this happened to you. It's not a pleasant thing. The trick is to manage it.
Take care.
i have the same questions. i recently started itching and burning and tiny spots of blood on my paper. ive heard it does happen in the anal area. my symptoms seem to move from way up front to my butt. i will be very interested in what your specialist says. so very sorry you are going through this at such a young age! praying that you can get it under control!
Yes, he is! I will let you know what he says after my appointment.
its the worst. i will update on what he says!
good luck :)
Great, because I was also looking in to specialists there too. Good luck.
Nice to see you so proactive! to me that is key to a successful journey. you got this! keep us posted! I have been able to manage it quite well as to where it no longer disrupts my day or thoughts. I have an active sex life with no complications.
My OB luckily never doubted me and got me on my clobe asap. a little goes a long way. glad you got a demonstration!
Nice to see you so proactive! to me that is key to a successful journey. you got this! keep us posted! I have been able to manage it quite well as to where it no longer disrupts my day or thoughts. I have an active sex life with no complications.
My OB luckily never doubted me and got me on my clobe asap. a little goes a long way. glad you got a demonstration!
i meant, get a demonstration! this reply system has a mind of its own!
i feel silly but i dont know what CLOB IS AND i see most everyone uses it.
it is the steroid cream that you may be precribed.
nicole, I would listen to ellen. If the doctor says it is LS but does not prescribe Clobetasol he/she may prescribe a milder one which is what I have been using. Don't get yourself all worked up over this. I think of it as like psoriasis which many people have. That can't be cured either, but can be managed. Good luck.
thank you!
NICOLE- Yes, LS affects the anal area as well as the genitals. The tingling sensation you feel is active LS and that is the area that a steroid would be applied. I was diagnosed in JUNE, went on vacation and self treated with moisture barrier ointment and emuaid. Finally saw DR again JULY 20 and got CLOB ( CLOBETASOL). By that time my right labia was nearly gone and my clitoris shrunk and became less sensitive. The CLOB halted the loss of architecture and I am now " in remission"- no pain, no itch, no white patches, normal color has returned. I have eliminated wheat and sugar and follow a low oxalate diet. I let LS run me for 2 months, now I am in charge and am determined to keep it at bay. I am following a 21- day autoimmune protocol to find the weak link in my immune system- no gluten, dairy, sugar/ alcohol) . I'll let you know if it helps. I am determined to find out why I hv this and how to heal my immune system. HANG IN THERE, it does get better.
I love this reply! We have had the same experience. Must be proactive! Keep us posted on yiur success!