hi ive had ascs fitted on the 19.08.14 and ive had it reprogrmmed three times already and woul like to know if theres any one out ther that is or has had the same sort of problems with there scs as i am compleatly fed up with mine and thinking about haveing it taken out thanks in advance for any help i might recieve graham
Hi what type of SCS do you have & at what level? I have a nevro covering my legs & lower back, been reprogrammed several times, I had mine fitted in July, still take oxy but its got me out of bed & back to work. Sorry yours isn't doing anything for you?
hi edna i have the same scs for lower back and legs except at the moment its only working on my mid back and belly the prob is instead of two leads i only have one one had to be taken away when they done stage 2 as it was not working can i ask ware you had yours done i had mine at the whitechapel london
Hi Graham,
I had mine fitted at the Spire in Leeds, without the two leads I wouldn't get the coverage I get, I'm running several programs over 6 lead sections, it hasn't really hit my lower back enough yet but my rep is working on that, the difference its made to my life is amazing, they have said unless I'm willing to get a new career maybe I'll never get full coverage, I'm a corporate electrician. Are they going to replace the faulty lead? Seems unfair you should suffer because a lead didn't work! There is an SCS support group on facebook, Spinal cord stimulator support Uk, I've had lots of useful advice from the folks in there
hi edna no they havent said about a replacement lead and to keep thinke simple at the moment ive only got one programme which is supossed to cover my lower back and both legs thats when its working i had an email today from my consultant saying that he wants a live time x-ray to see whats going on before he dose anything else will post when ive got more news thanks graham
hi edna had the xray and the lead has done a 180 and bent forward which makes it unusable they now want to replace it with a paddle lead which gets stitched into place will let you know what i decide when iv spoken to the consultant hope all is well in your world graham