I have had pain in my testicles for 3 years given all the usual antibiotics and they did not work.
recently I have had pain in my lower stomach and anus also testicles .
I have now been told by the urologist I have chronic Prostatis.
he told me not to have too much tea or coffee .
i don't drink alcohol now as I understand it makes things worse.
I am taking Amitriptyline and Pregabalin 75mg 3 times a day.
i am feeling very down waking up to pain everyday and I'm unable to work full time I'm self employed .
please can someone advise me what to do next? Do I ask my DR to increase the dosage of the Pregabalin?
after just one visit to the urologist he has referred me back to my Dr.
when the Urologist pressed on my prostate it was very painful.
i am peeing a lot with urgency.
after 3 years I am feeling desperate.
Thanks in advance for your help.
p.s forgot to mention I had a ultrasound which should I had cysts in my testicles and was told it's not those given me the pain.
SORRY TYPO.
The Ultrasound SHOWED I had some cysts but was told they should not be given me the pain.
Hi Surfer21
I fully understand your pain,frustration and the feeling of if and when this will all go away. I was diagnosed with having Prostatitis 6mths ago and have had all your symptons. You will know by now how difficult this condition is to treat and that there are lots of different opinions and grey areas surrounding this disease. You must find out if you have an infection and this can be confirmed by having a prostste massage(not much fun but it won't harm you) speak to your urologist about this. They send the sample to the lab for tests and this will confirm if you have an infection. Only 5 to 10% of Prostatitis is caused by infection and antibiotics is the best route of treatment. If it is not an infection antibiotics WILL NOT help and may even hinder. If an infection is not found it could well be Chronic pelvic pain sydrome. You will need to repair your pelvic floor. I have had acupuncture,seen 2 Urologists an osteopath,pelvic pain specialist,pain management consultant and Physiotherapist to find a solution. My symptoms have improved and it's all about tention release and relaxation of the pelvic floor. There is a book called a headache in the pelvis read this and it all makes sense.
Good luck
kevtorecover.
Hi Surfer,
I know you stated you have had an Ultra Sound, have you ever had a CT Scan or x-ray done? As for the Ultra sound, I would ask your Urologist to refer you for both of the aforementioned, as well as blood tests. Bear in mind that blood tests can give false/positive results.
Having cysts or polyps on the testicles can mean a few things, if you feel a 'dull' ache in one testicle, then I would ask your results to be checked by an Oncologist for a second opinion.
I was treated for an infection for about 6 weeks, before I asked for further tests to be done considering antibiotics did not make any difference, and that turned out to be cancer. Pregabalin is not really a strong painkiller and Amitriptyline used to be issued for depression, but it is now found to be a mild painkiller.
I would definitely ask your doctor to refer you to what I have mentioned.
I have a testicular epidermal cyst teste, but it is benign - yet, it gave me all the symptoms of Prostate Cancer, this was just before Christmas last year. I had Testicular cancer, and the remission period is the longest in any type of cancer, which is 7 years.
Hope that helps.
Regards,
Les.
Hello my young friend. I'm sorry for your problems. At your age you don't need this. I went on the internet and looked a few of the thing up to better answer you if I can. First of all chronic prostatis has to do with pain in the lower pulvic area. I read some of it and it can be cause by infection, food or some early truma can trigger it. Stress is also a big part of it. Our bodys are all connected to many veins and go to all parts of our bodys. Have you looked up and read anythings on the internet. Maybe you would find something that the doctors are missing If I were you I would not have the doctors up your meds. Amitriptyline is a antidepressant and you have to be careful with that. The other is a pain pill. As for the cyst I have one in my epididymis which is in the back of the testicles. Which stores the sperm. Right now it is the size of a half of a dime It is not hurting me now but when I had the infections it felt like someone was trying to pull by nut out. I feel your pain. I hope you can find some relief. Maybe if you don't think about it you will have less stress. I know it's hard but no harm in trying Take care Ken
Hi Kevtorecover,
thank you for the reply.
The Urologist did mention Chronic pelvic pain sydrome,I will look into it further.
as you can imagine the last 3 years have not been nice.
he also told me to avoid any stress and to go on holiday as I told him I ain't been away since this started.
if you have Chronic pelvic pain syndrome will the amount of tea or coffee affect you?
Thanks
Yes. Some food will cause you to trigger it. Coffee and tea do effect the prostate. I have a enlarged prostate. Just had a urolife done 4 weeks ago. My urologist told me to stay away for tea and coffee. I love sweet tea but try to not drink alot. There is alot of information on the internet read up on it and try diffrent things you never know. And please try to relax a little. If you have a girlfriiend take her on a weekend trip and just relax and enjoy life....Ken E-mail me if you like anytime I can look thinks up for you if you like
Hi Les63.
thanks for replying.
I don't have a dull ache in the testicle.
i was already taken amiltripline as a preventive for migraine,amiltripline and Pregabalin cause weight gain ,being on 75 mg is quite low apparently.
I was prescribed every antibiotic going but I believe it was to late as I
understand if it's treated straight away they work.
at the time I had a bad back and my Dr told me the pain in my testicles was referred pain from my back ,at the same time I told him I had painful ejaculation I wish I was more persistent at the time.
I don't have painful ejaculation anymore ,since I started the Pregabalin I have erectile dysfunction,if I do have an erection very little sperm comes out.
thanks for your help.
Thanks Ken,
I just found this on chronic pelvic pain syndrome,
Signs and symptomsEdit
Chronic prostatitis/chronic pelvic pain syndrome (CP/CPPS) is characterized by pelvic or perineal pain without evidence of urinary tract infection,[2] lasting longer than 3 months,[3] as the key symptom. Symptoms may wax and wane. Pain can range from mild to debilitating. Pain may radiate to the back and rectum, making sitting uncomfortable. Pain can be present in the perineum, testicles, tip of penis, pubic or bladder area.[4] Dysuria, arthralgia, myalgia, unexplained fatigue, abdominal pain, constant burning pain in the penis, and frequency may all be present. Frequent urination and increased urgency may suggest interstitial cystitis (inflammation centred in bladder rather than prostate). Post-ejaculatory pain, mediated by nerves and muscles, is a hallmark of the condition,[5] and serves to distinguish CP/CPPS patients from men with BPH or normal men. Some patients report low libido, sexual dysfunction and erectile difficulties.
I get all the above,I forgot to mention that it makes me feel very tired,did you get tired feeling with it?
Do you drink any alcohol now? I don't now.
ive always been a big tea drinker but now cut it down to just 3 a day
thanks Surfer21
Hey Surfer. Had some of the problems that you had. This a little personnel but I'm glad your not having trouble getting a erection. The amount of sperm may improve drink alot of water and try some zinc. I was on iv's and pills that it was like russian roulette had three diffrent kinds off orgasm. When I would have sex or JO. I did not know what was going to happen. Sometimes I would have some sperm come out another time it would stay in the urethra and sometime nothing would come out. Thats a dry orgasm. When the sperm goes into the bladder. That will hurt for a while. Like I said read all you can on your problem and try a few things. Your doctor and I both told you to relax and have some fun.......Ken
Hi Ken. I am having erection problems sad to say, I am thinking the Pregabalin is causing this.
when I do have an erection I also have a dry orgasm,not as good as before all this started.
I wonder if one day everything will work like it used to??
thanks.
Ask your doctor if there is something else that you cold try tell him your concern. I am glad I'm not taking anything for ny bladder or prostate anymore Did not like the side effects I will look into it for you and see if I can help any Ken
The urologist did say he could give me something to help with the urgency and frequent peeing,as he said they have side effects so I told him I will try and manage it,I just watch my fluid intake when I'm out and about.
Thanks Ken
I have look up the pregablin side effect and there are many but says nothing about ED in men I will keep looking ust relax Ken
One a day cialis will help with your flow and a full strength one for your erections when required.
Surf I forgot to tell you that I do drink wine and mixed drinks when I do drink but can take it or leave it Ken
ED is a side effect of Pregabalin its on the leaflet with the tablets.
I was told to avoid all fizzy drinks and alcohol
After being treated for prostatitus apart from a painful testicle the other symptoms went. I went back to the doctor and he found that I had Epididymitis that cipro does not clear up. He then gave me a different antibiotic that cleared it up. Thee months later it seems to have retturned.
I will have to look it up again. It did have about 30 side effect but did not see that. Derek just e-mail you and he is right cialis may help with your bladder and erection. Check with your doctor and ask him for sample for a week to try them. My doctor gave me some but it was only 20MG. It help but the cost was to much. If it works. check to see how much they would be with insurance.I get my viagra from canada with my insurance here in the states it was over $300 for 30 pills. In canada I get 140 for $147. Don't take them all the time Talk later Ken