purple feet

Allergies, blood and immune system
1

Hi I went to doctors in 2012 about a number of problems after the birth of my Son I had complications which left me with anemia I then started to suffer in the cold my hands became numb and white or really red and my feet too also feet would go purple he did not even look at me twice said it's reynolds and left me to Google what it is .

It's now 3 years later and I have purple feet everyday they do go to a normal colour too but they are cold constantly and turn a really bright purple where people have now started to comment when I wear sandals ect that my feet are purple and they have never seen anything like it in there life I also get yellow toenails when my feet turn the purple I freak out so much I have health anxiety and I even mentioned it to doctors at hospital and a cardiologist and they all do a smirk at me that is it but feet are not the best thing as it is even when I do a hot bath my body can hack the heat and it feels normal but my feet it feels like im putting them under a kettle xx

2

Hello. I've had Raynauds for years and suffer symptoms similar to you. After getting totally fed up with chilblains even in the summer I decided to see my GP. I was prescribed Nifedipine and my symptoms have improved dramatically. For the first year in about 45 I haven't had chilblains and my hand and feet haven't suffered as much. You have my sympathy because it is so debilitating but if you find a sympathetic doctor who understands then you can get help.

3

YOU NEED TO GO AND SEE A SURGEON WHO SPECIALISES IN CIRCULATORY PROBLEMS. DON'T PLAY IT DOWN, THIS IS NOT NORMAL BESIDES BEING VERY PAINFUL

 

4

Thanks matron . I have mentioned it to number of doctors even in hospital all turn there nose up and act like it's nothing major obviously it's not the worst thing as people are dying ect in hospital but I thought it may have been connected to why I was in / probably why they wasn't listening I did ask my doctor at the time is they anything to help it he said just stop smoking but even when I did quit it stayer it seems to be getting worse I will mention what you said to my doctor I think it's because I'm only 23 why they are brushing it off but I have had it since I was 19 it's been a nightmare xx

5

Hi Jenny unfortunately my doctors won't just reffere like that so I have to just go back and hint or nagg them xx

6

You have my sympathy Stephx....

 I have Raynauds, my feet go purplish-blue at the end of the day, it's an awful site!  Many Doctors try to brush it off...put us off and the like, lots of us on here have been through the same thing as you, we just have to keep on nagging them...eventually, you will get help....I used all my money up paying privately because I was getting nowhere at all with the NHS..but, having no money left, litterally, I made someone understand that I NEEDED HELP!!   Now I have insoles made my the hospital, that's been a fight, but, no need to go into that now, they are built up under my toes and the inner arch of my feet, I cannot stand or walk for long because my feet go numb, can't stand on hard floors, have to have a hot water bottle every night, even in the hot times, unbearable! but, needed!  my circulation is cut off to my toes, so, cramp, cramp, cramp and more cramp!!  

 There IS hope for you...So,[lease carry on nagging the Doctors Stephx, they will just have to get you sorted out, it's just so unfair that we have to get a bit 'stroppy', ( for want of a better word! ) to make ourselves get listened to!!

 What a problem for you, keep on, there are lots of folk on here who understand how you feel, and we KNOW  how very bad a problem this if for you.....YOU ARE NOT ALONE!!  Think of us on here when you go back to the Docs, and let them know what you have been told...we can't all be crazy?!! 

 Thinking of you and looking forward to what happens next, we all hope it's good news.

 Best wishes. xx

7

Just tell them that you will not stop coming and reporting the state of your fee until they refer you. I find getting past the receptionist the hardest bit, but eventually got to see a great doctor, who listened, inderstood how hard it was and sent me on to a vascular surgeon. I could either have had pills, which would have affected my high BP or infusions , which worked. I had to go into ospital for four days every year, but am so much better now.

Best of luck

Jenny

8

I have been very lucky then. I've seen 2 different GP's and they have been very good. I also see a rheumatologist who has told me if my raynauds gets worse to let them know and the can give me an infusion to help. I saw a podiatrist 2 weeks ago and I'm having inserts specially made for my shoes. Jenny has suggested you see a surgeon but they won't operate on you for Raynauds. Ask to see a Physician or Rheumatologist 

9

 Hello Matron,

 Yes, that's what I have made by the hospital, insoles fitted especially to fit my feet or rather my shoes!...but, oh boy, did I have a fight to get even them??!!  YEP, I did!   Anyway, after yet more fights because the hospital lost my prescription....TWICE!  I had to start all over again...TWICE!  As we know, it's hard enough being listened to and more importantly..heard, once, never mind having to go through the whole process another 2 times......I even went to another hospital the first time my prescription was lost, found an absolutely lovely Doctor, but, he left after a year and a half, so, back to square one then!  back to the original hospital...back to the measuring up of my feet, back to answering endless questions...back to....getting my insoles made!  Next time, just a year later, my prescription was lost, I made flippin' sure I HAD THE FIRST SAY!!!   I went in and said something along the lines of:  I don't need tablets, I don't need poking and prodding about, I don't need sending from one Doctor to another, I just NEED TO BE LISTENED TO!!!!    The lovely nurse I saw, said to me " You do know what you need don't you?" .... Yep, I do!  I did have Nefedipine for a while, but, they didn't suit me so I had to stop taking them...... I don't know how I wasn't sent to the 'Loony Bin'.......I'm sure they thought long and hard about it though!!   All I need is to be able to ring the hospital and ask for more insoles to be made for me, not hard is it?   At the moment, that's what's happening...only one pair a year though!  Charming! when I need these insoles in my slippers, boots, shoes...otherwise, I simply cannot walk!  I'm not sure they believe that either!  but it IS the truth.

Phew!  sorry, gone on...again! 

I am happy to hear that you have a good Doctor, I wonder.....could we ALL go to him/her?!!   

 Best wishes...xx

 

10

It is awful reading your posts and what you are having to contend with. I am lucky but to be honest it's what I would expect. Talk about postcode lottery! I was always told that a GP cannot refuse to refer you to a consultant if you ask to be referred. It was always your right. I would look into that. To be honest I started to get fed up with all my appointments. One always led to another. I have osteoarthritis as well but the Raynauds has always been a priority when I see the rheumatologist. 

11

 Thank you Matron..I will have a long think about that.

 I have osteoarthritis too, makes everything worse doesn't it?

 As long as I can keep ordering my insoles and as long as the hospital doens't lose my prescription agian, I will be fine...well, you know what I mean?!

  I don't think any of us ask too much of Doctors, we just want the treatment that could have us live a better life.....and be listened to.

 I thank God I have a good sence of humour, like many others on this site!     we'd be lost without that. 

 xx