Hi - my son had this condition and was operated on at 4 weeks. We were told at the time it is usually noticed at 3 months plus and he was very young and the muscle was very thick. He is now nearly 21 but has always been thin but with a good appetite but always had a 'full' feeling. GP now thinks he may suffer from IBS. I have always wondered if the PS has had an effect and wondered if there were any studies undertaken to question long term effects or eating habits of boys with this condition. Any info would be appreciated.
I've been interested in this too, not as a medico but an ex p/s patient. Have not been able to check the medical libraries and journals, but not seen anything on this topic on the web's growing selection of books and research articles re IHPS.
The research interest seems to be on other issues around IHPS, relating to issues like its diagnosis, treatment and its immediate outcomes.
I share what you write about your son, though I'm glad not severely so 
, and have written some more comments in answer to an earlier listed experience at this site.
Hi. My son Had pyloric stenosis and was operated on at just short of 4 weeks old. We were also told that he was very young to have ps but by the time he was treated he was losing weight dramatically and his blood had become alkaline due to the loss of acid through vomiting. Unfortunately he had an incisional hernia caused by the op and was operated on again the following day. He is now 4 months old. The severe vomiting stopped immediately post op but he has barely had a contented day since. His bowels open infrequently and he appears to be in discomfort much of the time.I too have tried to research post op issues and can find nothing. He is my fourth child and his behaviour is totally different to my others and I just feel he has residual issues from his ps. Would love to hear from anyone with similar experiences
Not wanting to detract at all from this excellent site, have you considered adding your query to sites similar to Patient UK? FaceBook has a large PS Support group (270 members) and so does the US \"BabyCenter\".
Hi I am 27 F and had Pyloric Stenosis at 2 weeks. my scar is also about 4 inches acriss and on the right side right under my diaphragm. I have been told that the surgery was supposed to be a permanent fix but that also as I age and develop more scar tissue, I will eventually need another surgery to remove scar tissue and release the muscle and fat that has grown on top of and on the scar. I also tend to have spasms and a pulling sensation sometimes during/ after exercise, eating, or just randomly. Mine is not an intense pain at all though just kind of a weird feeling. Whenever I get the stomach flue or drink a little too muc I tend to have trouble ending the vomiting unless I take phenigran or another anti- nausea medication. I also have Irritable Bowel Syndrome so I wonder if there's any correlation there?
So two questions-
Have any ladies out there who had PS as an infant carried and delivered a baby? Was just wondering if that effected your scars in any way. My hubby and I are considering starting a family soon and that scares me a little, with the extra weight in the belly could it pull too much???
Also, has anyone out there had there scar surgically \"released\"? If so, for what reasons and how bad was the process?
Thanks All!
would like to say i had a ps 54 years ago as a baby last 5 years have been terrible constant pain bloating constipation feeling of pulling in and around scar and under right ribs have been told its ibs defo not convinced still fighting 4 answers. have lost weight as when the pain gets really bad cant eat properly
\"Mouth\" may be interested to visit the experience of \"ljh446\" posted today (11 March) on one of the MedHelp PS discussions - go to http://www.medhelp.org/posts/Gastroenterology/pyloric-stenosis-scartissueinfantcausingproblemsin-adult/show/622104
It suggests that adhesions from early PS surgery do sometimes cause significant problems in later life. Thankfully not often, and there can be other issues behind gastro problems, but what you mention sounds quite similar to this story.
Hello, My questions is directed toward any parents whos child has had corrective surgury for pyloric stenosis. My daughter was different baby after her surgury, she smiled finally. However she is now five and I am having trouble getting her to gain weight. Her eating habits are a bit irregular however we encourage her to eat as often as she feels she needs to. She weighs 35 lbs and has been at or around that weight for almost two years. She is strong and otherwise healthy. The women in my wifes family are petite as well as those in my family so her doctor says she is fine. I am just curious if anyone else has a child with weight gain issues or irregular eating habits?
I am a 43 year old female and I had surgery for Ps when I wss7 weeks old. I have 3 children no Ps in any of them...thank goodness. I was always thin and have some Ibs issues. For all you moms out there do not worry about yourchilds weight...I was super skinny super fussy eater...now I am average weight and though still fussy I have grown up in that area.
Thank you for the feedback psbaby. I cant stop thinking abour her,and if there is more I can do. She is 5 and a half and still only 36 lbs. She is strong and smart,and I am thankful for that she is just not growing. Inheight a little but in weight none...were you small as a child also?
At 57, I'm probably amongst the first to have been diagnosed and successfully treated for PS. When my first son was diagnosed with PS, I was told it was not hereditary and the chances were 1 in 10,000. When my second son was diagnosed, the odds increased to 1 in 100,000,000 and the genetic link was established. Both my sons are now fine, fit young men in their twenties. They are both tall but very slim, and struggle to gain any weight.
I'd be very interested to hear from anyone who has evidence of the longer term effects they believe PS has had on their adult health or development
Hello, my son was diagnosed w/ PS at 3 weeks old. I noticed vomiting, though not projectile, about an hr
after each feeding. After a few days of this he started to become lethargic and we knew that something was
terribly wrong. We took him to the ER and after an examination we were immediately transferred to another
hospital to prep for emergency surgery. Since his surgery he's been fine but I found that he seemed to no
longer be able to digest dairy products and he would become extremely constipated afterward. I've since
switched to soy milk and he's given prune juice from time to time. I was wondering if anyone else's toddler suffered from constipation seemingly due to PS?
To NigelH:
What you write about is it seems quite normal, though not universal. I have the same: fit and healthy but never any weight gain. Mkaes eating fun. However, this is also in my family, so who knows the cause? I research and blog about PS (as interested and not medically trained) and have found that there are several medical reports on this fast digestion - the op often speeds up the digestive system and can cause IBS. There are also reports on other possible long term effects on health and development, and I've written about all these on my blogsite.
Btw, the heredity stats you were given were wrong: the widely published figures for the son of a PS father are 5%; for a girl born of an affected mother it's 20%. As with all stats, what actually happens is a bit of a lottery!
Jen1228....Hi, my son had pyloric stenosis when he was 3 mos and he is now 7 yrs old and is suffering with terrible constipation. He's been to the er numerous times now which they put a tube in him running fluids to him use the bathroom. It works for a little and then weeks later he is constipated again. I think its dairy products also. I just need help and answers
Hi Jen, so sorry to hear about the pain and difficulties your son and you are having. I'm no doctor but having had PS myself, having sensitive bowels and researching and writing about PS and related matters, let me mention what I've learnt about what you mention -
1) several studies have shown that PS surgery often results in some degree of digestive issues, but hey, much of the population has the same problems.
2) people with a PS history usually complain like I do on having too fast and loose a system and not being able to gain weight. Some report constipation and/or weight gain.
3) I try to forget about my PS past and work out what works for me. My wife has constant constipation issues and I the opposite. We've each learnt a lot about about our different diet needs and how to re-jig our systems when they lose the plot. Have you tried a GE specialist or a dietician or an allergist? Some of these will be good, others not for you, so ask around and be prepared for some trial and error.
Best wishes and hang in there working with your son on his needs.
Hello, as of now I am 19 years old and had surgery at about two or three weeks old. My parents took me to a ton of doctors to diagnose me and only one doctor knew what was wrong with me, he immediately preformed surgery and I had a speedy recovery but ever since then I've been having some underlining problems. I am five feet four inches and can barely weigh 90 pounds, all my life gaining weight has been a struggle for me and I think my surgery has something to do with it. I have been told by friends and family "the way I eat I should be a million pounds." More recently though I've been experiencing some type of acid re-flux and extreme cases of random nausea, i'm not quite sure if that's connected either. I have been reading all these discussions on the later symptoms people have been having and I wonder if that's my problem too or if I have some serious medical condition I have not found out about. Anything would be helpful!
I was born with Pyloric Stenosis, and had an operation after 10 days, my question is, that I started puttiing on weight when I was 5 years old, and been obise all my adult live, I am now 47, is weight gain a sympton of the desease or is it due to something else
James, I aimed to include people with your problem in my Comment just up from here. It seems the majority of us with a PS history (I also had mine at 10 days) find it hard to put on much weight - but there are many like you with a slowed metabolism. So ask: is obesity an issue in my family genes? Are my diet and/or lifestyle a factor? If no to all these, I'd see a doctor and probably a GI specialist for advice. The PS op can cause both problems but so can other factors. Best wishes.
I just thought I would share my story.
I have been a coeliac all my life and knew that I had had surgery as a baby but assumed it was to do with the coeliac disease. All through my 20's and 30's and 40's persistent heart burn led me to believe I had a stomach ulcer which I treated oith OTC medicines and finally got PPI's from the GP. These gradually lost their effectiveness and over the last few years, I have suffered symptoms more related to GERD, eventually culminating in long periods of painful eosophagitis and persistent nausea and night time vomiting.
Anyhow the relevant bit! After gastroscopy a couple of years ago the consultant informed me that actually I had had a suspected PYLORIC STENOSIS as a baby, and had had a portion of my stomach and duodenum removed. This surgery - whatever the standard procedure was at the time ( I think called a Biliroth or something) - has left the entrance to my BILE DUCT too close to my stomach, which is obviously shorter than it should be - and that actually I have been suffering from severe BILE REFLUX for the past 50 years!
So yes - this surgery has had a lot impact on my health for the whole of my life.
For the lady considering pregnancy - I have had two children - my scar is quite messy and 'tight' but was not at all affected by pregnancy.
I cant believe it has taken 50 years to be told this, and I am now considering surgery to reposition the bile duct!
Indiam, thanks for sharing your experience, unbelievable as it is.
I looked up "Biliroth" in that treasure-house of information, Wikipedia, noted the slightly different spelling, and learnt that -
"Billroth I, more formally Billroth's operation I, is an operation in which the pylorus is removed and the proximal stomach is anastomosed (reconnected) directly to the duodenum.
"The operation is most closely associated with Theodor Billroth, but was first described by the Polish surgeon Ludwik Rydygier."
Wikipedia also tells us that Billroth's operation II is a variation on this and is also known as a gastrojejunostomy: the pylorus is also removed but the stomach is connected to the jejunum. It is often used to bypass a gastric ulcer.
When we look at how these rather radical ways of dealing with PS brings the bile duct closer to the stomach AND cuts out the valve (the pylorus) - it's small wonder you've had problems.
We hope the surgery you're considering brings relief.