At 60 I had a TURP then a Radical Prostatectomy in 1996. I was fine for 6 years but when my PSA started to move up again when it should have been dormant I was sent for 37 doses of Radio Therapy. Needless to say it did nothing for my sex life but I was clear of the cancer as my PSA was almost undetectable. Now in my 80's and suffering with heart problems I was put on Warfrin for a long time but having to go for blood tests every few weeks was a fag so my doctor put me onto Apixaban and it seem to be ok until I developed what appears to be Radiation Cystitis and suffer regular bleeding from that area. Not massive but worrying. The Cystoscopy and scan show that the RT left its mark with veins near the surface and angry and this is causing the regular bleeding. The doctor says its quite common and something I have to live with. Really? Anyone else had similar and found a cure?
I developed Radition / Hematuria Cystitis 14 months after HDR Brachytherapy for PC…it can happen anytime between year one and year 20…Do not let a hack doctor perform a rigid cystoscopy on you…Get a Cytology and urine test , NP22 urine test , Urine analysis , hematacrit and a CT Pet scan.
If suspicious findings go to a major clinic and then a real pro to gently perform a flex cystoscopy.
Once you are treated with radiation you are fried inside ..injury is very easy ..the only non invasive treatment is Hyper Baric Oxygen Therapy…but there risks for some…there are many article son line about Radiation Cystitis and Hematuria …there is also the Radiation Cystitis Foundaton that will communicate with you…I made the mistake of allowing a local hack perform rigid cystoscopy on me and he injured me in the right ureter groin area…I ordered a truss last nite been fighting RC for 5 months , you may get pain on urination…the RC is..probably permanently as the area does not heal on its own and now have pain in the groin that increases blood in urine when active with golf or duck hunting hiking etc…Drink lots and lots of water all day long to pass the clots that will be forming…to my knowledge HBOT is the only treatment …please let us all know if you decide to go for it there are lots of studies on line…best of luck to you
Thanks. The urologist who did the cystoscopy is a partner in the same practice as the one that did both the TURP and the radical. The top man is well known for his surgical skill and early development of robotic prostate surgery. He is now a professor and I have since had communication with him. The answer apparently lies in the administration of new drug I am on for anti-coagulation. It is Apixaban. Bleeding in the bladder is a well known side effect.