Random Paresthesia with Burning, Electric and Pins sensation and Muscle Twitching

Bones, joints and muscles
1

On 23rd June, I woke up with a pain in my right hand palm which felt different compared to all the pain I experienced before. It doesn't looked like some bone pain or pain after cramp. It felt like the pain was coming from inside the body and to be precise it felt like it was coming from Nerve itself. I woke up to investigate what was going on, but it vanished. 

The next day, the same kind of pain again came on right palm, and then it radiated from right palm to mid-arm and came and went for few minutes. I ignored it, but the same week, I started developing higher intensity of same pain which on one day used to stay on left arm, radiating whole arm and next day changing place to next arm. It was not stationary nor there was any pattern for the pain. I had a bit stressful weekend as I work for tech industry so it usually involves lot of typing. So I assumed it was due to that. So the next week I de-stressed a bit, but the strange pain which was generally in arm. Now I could feel the same behind the head (occipital part) , neck and back as well.

I went to the doctor and they prescribed me a anti-inflammatory pain killer but nothing happened. The pain had one characteristic : If it was paining in one part, it didn't pained in any other part. So one body part at a time. The sensations were generally Pins and needle, Burning like fire & Electric shocks. I did a cervical X-Ray which turned out to be normal.

In July, the pain intensity decreased compared to June's but the area increased. Now, I could feel that same kind of come and go pain in chest and legs. That means my whole body was now paining. Then, I did tests like

ANA Titer, CPR, CBC, Vitamin B12, Typhoid, Vitamin D, Hepatitis, West Nile Virus, CMP, TSH, HIV etc. It generally took 7 days to get the result. Meanwhile, I finished ECG & Doppler; both came normal. So I was relieved that it wasn't heart related. 

MRI of brain, spine, cervical was done and it was normal as well except few swelling in Cervical Spine which doctor said was minor. Then, I was referred to Neurologist who conducted NCV/NCS and it was perfectly normal. 

Then the blood tests report came, The only two which stood out was

Vitamin D = 13.5 ( Range 32-100 )

Salmonella H b,d = Positive

I was stoked to see 3/5 Anti-gens in Typhoid test being positive. I had no viral symptoms like Fever, cold, chills, Cough, Vomit, Nausea. So, I did Widal Test again after few days and it came out Negative. Very confusing.

So, it's Mid-August and still my symptoms are persisting. I changed many doctors because some doctors are very quick to say this is anxiety but it is not. The pain and suffering is real and I am very positive thinker, I don't get anxious quickly. So this is for sure not anxiety or depression related. 

I also noted, that my weight before this thing started was 145 pounds and now it is 139 pounds after 2-ish months. Also, the most pain I feel is when I wake up from sleep. One Neuro told me this is fibromyalgia. As per the Internet, Fibromyalgia is a debatable term. Nobody knows if it's real and it means end of diagnosis. So, I won't buy that.

So, my questions are:

1.) What do you guys think, all these symptoms are related to ? Is it due to Vitamin D deficiency or cervical swelling is the culprit?

2.) If someone is diagnosed with Fibro, can they please see if I fall under that category ? I am yet to see rheumatologist.

3.) Is this something serious going on ? Because I have constant Muscle twitching and pain that strikes every 2-3 hours and goes. Also, I am experiencing sleep issues as well. Couldn't sleep more than 3 hours =(

I am so confused, HELP

2

Hi I just had both wrists done carpal tunnel surgery I had those symptoms you need to have a ultrasound don’t to confirm it and a nerves conduction telst soon I would say yes it is myvfg

3

i have had all of these different forms of pain sometimes it was so sharp like an electric shock, other times i have deep aching bone pain, also i have had a vibrating like a phone buzzing in my legs. mainly at moment it general aching pain and last night i had spasms in legs and toes which looked like they were playing a piano  (involuntary spasms)   i sprayed some magnesium oil on legs to calm them, i get this all the time its exhausting.  all my bloods tests, scans,  except feet (which had inflammation)  have always been normal, but i was diagnosed with fibro about 8 years ago by a rhumatologist.. You have to stress to them how your pain is not normal, as i was told EVERYONE HAS PAIN and left almost in tears first time i saw a rhum specialist. i still feel that people and doctors dont realise how bad it is. good luck and persevere.

4

Hi... I am sorry about your pain. Please go to a rheumatologist. I do not know what you have been reading on the internet but Fibromyalgia is very real, not debatable and I have never seen anything saying it was not real! That is very upsetting making it seem like its all in our heads. It is now recognized and has been for years, as a real disability and acknowledged as such when you apply for SS Disability. I know because I am receiving it in part due to Fibro. Good luck and I wish you well.

5

My neurologists had done Nerve Conduction Test, but it turned out to be normal. I can try to push him for EMG/EEG though. Was your NCV normal as well ?

6

I am sad to hear that. Is fibro chronic in the sense it will never ever go =( ?

7

Do you still experience pain ?

8

 Yes I do. It is not any better. I do get the symptoms you do but not often. I also have severe degenerative bone disease (arthritis) in my lower back and spine, a bulging disc and sciatica that kicks my butt. Hip on my right side hurts because I also have piriformis syndrome which is that muscle compresses the sciatic nerve. 

9

My conduction test came back inconclusive because it hurt me to much only by ultrasound I was diagnosed then went and seen a surgeon and said yes I had and did the surgery the next week have you had a ultrasound my surgeon said sometimes the nerve conduction test can not be very accurate ❤️

10

Sorry my spelling was awful to understand definitely have a ultrasound done on both wrists that’s where I got my accurate reading that I had it good luck 🙏🙏

11

Which tests have you done to confirm the diagnosis ? MRI ?

12

Ok, I will try to push him next week. My neurologist now thinks this all is in my head. I am planning to change him as he doesn't seem to care anymore.

13

Honestly it’s not in your head just see your GP he can send you of for a ultrasound and a referral to a surgeon who will ultimately make the final decision good luck stay strong ❤️

14

I have fibromyalgia and it’s very very real pain ful I had to leave my job after 15 years of teaching my carpal tunnel pain and surgery is sometimes caused by fibromyalgia I also have spondylitis arthritis so in pain 24/7 it’s awful and changed my whole life hope you get some answers definitely seee a Rheumatologist that’s who diagnosed me ❤️

15

Yes MRI, Xrays and most of all an excellent Chiropractor (who knows more about the body than any Orthopedic Dr. I have ever known, yes I am lucky to have him here) who told me what I had before all of the tests. But the tests did show the bulging disc but that was years ago.  I am getting wonderful physical therapy from him and doing stretches everyday that he taught me for the piriformis syndrome. I do take ibuprofen and it helps immensely because it is an anti inflammatory and it calms down the nerves. Just make sure you take with a meal so as not to upset your stomach. I take two in morning and if I need to I take 2 more after dinner. Most of all, try not to stress too much. That makes fibro worse. Take care. Here if you need me

16

A neurologist did nothing for me. Find a good rheumatologist who will be the one to diagnose you with fibro or whatever.

17

Agreed. Stress make Fibromyalgia worse. It flares it up