Ranitidine - silent reflux

Hi

After months of a bitter taste, sore burning tongue and constant mucous/throat clearing, I was prescribed Ranitidine along with Gaviscon.

I've altered my diet, cut out dairy and all the negative foods such as tomatoes, onions etc

My question is could there be something I'm missing?

What I mean is, a lot of the time these days my symptons are ok - they only rate a 1 or 2 out of 10 but then all of a sudden - BAM! It's like I'm still eating something that is reacting with me and causing the bitter taste/sore, dry tongue......

I've started using almond milk as I was struggling to find anything to drink except water. A few days after staring the almond milk I though I would give muesli a try - I've not had it since this reflux all started back in November. Within 10 minutes my tongue is burning and sore and I have a horrible bitter 'paracetomal' like taste in my mouth. Would the acid be caused so quickly? What could be in muesli that causes such a reaction?!

Or could it be that the Ranitidine is not working and that I need to try something else?

I'm fed up with this - it's taking over my life.

sad

If a lot of the time your symptoms are ok, my guess is that the ranitidin is working.

I mean it is never working 100%, but is should improve your symptoms.

When I get a reaction from a food, I feel it very quickly.

What are the ingredients of your muesli?

I usually stick with oatmeal which is safe.

Which brand of almond milk do you use?

I avoid milk and I was looking for a replacement too but I am afraid of trying something else.

I am eating foods with Ph level above 5 only, and it is hard to know what is the ph level of almond milk, soy milk, etc, especially with the added vitamins.

Also I avoid fat (triggers my symptoms)

, and the low-fat version of those milk substitute usually don't taste good.

Hi there ines6375

Thanks lots for your reply!

What are your symptons please? I think I still worry at times that I've been misdiagnosed sad

Last November I woke up with a 'bitter taste' which was dreadful. I gradually noticed excessive mucous and a sore tongue. It's taken all these months to get to the LPR diagnosis but I'm not 100% convinced. Saying that, after keeping a food diary, I did notice that foods like pizza, milk, tea, tomatoes etc seemed to make the 'taste' worse. That was BEFORE I read anything about acid reflux etc!

Anyway, I've only been on the Ranitidine a week. I've been using Gaviscon for about a month I guess.

I was kind of hoping for a miracle with the Ranitidine wink

The muesli contains nuts, raisins, wheat, barley, gluten and oats.

The almond milk is Tesco Free From - it's lovey! Like a nutty milk shake. I'm really pleased to have found it.

I had a cup of tea yesterday - first time in moths and it was very drinkable, just smelt a bit 'nutty'. I'd previously tried soya milk which I found disgusting tbh!!

A wondered if fat could trigger my bitter taste. I've been on chicken dinners for weeks, but had burgers on Sunday and sausages last night??? They tasted yummy at the time, but it's a possibility I guess?!

I have gastritis and acid reflux, I used to have that bad taste in my mouth all the time and a sore throat but it is better now, and the sore throat is gone.

What helped me most is the diet recommended in the book by Jamie Koufman called "Dropping acid: the reflux diet cookbook and cure".

Fat is definitely a no no, it triggers symptoms very much.

I have been on chicken dinners for a while too, I vary with lean fish, shrimps, tofu, tempeh and beans.

But I don't eat beef or other red meats anymore.

I am not sure what is wrong with your muesli, raisins are acidic, nuts are fatty but it should be tampered by the cereals. Maybe it is the accumulation of little excess of the last days that just showed up after the muesli.

Tea is a known trigger as well.

For the sore throat, water with Ph. 8.8 in between meals might help.

Ranitidine worked very well for me as long as I stick to the diet. But I don't like being on medication for too long, especially since it prevents you to absorb vitamine B12 (which needs stomach acid). So I am trying now to get off the medication (avoid the rebound effect) and control my symptoms with the diet only.

Hi again, thank you for such a great reply.

What a coincidence - I was looking at that book on Amazon earlier today! I will go ahead and order it.

So would tea cause it then? I thought it was the milk!

And would pork sausage still affect me?

The burgers were beef though!

Was the taste in your mouth or throat?

Mine is in my mouth/on my tongue and tastes like paracetamol. Although some of my symptoms match LPR exactly, there are a few that don't which is why I worry. If I knew 100% this taste was LPR it would put my mind at rest and I'd be better able to cope I think. At the moment, it's on my mind all the time - even on good days sad

Thanks again for taking the tine to reply smile xx

Tea is a trigger food to avoid, but I forgot why, she explains it in the book.

You can replace with Chamomile tea.

I don't know if almond milk is good or not, you can buy little strips on amazon to test its acidity (Ph level > 5 is totally safe, Ph level above 4 is for when you get better), check the fat content as well.

I would be curious to know.

Pork sausages are full of fat, even if you don't react immediately to it, it might add up and make you more sensitive to other foods later. I would switch to low-fat chicken sausages (most have black pepper in it though, chicken breast is better).

The taste was in my mouth, like a metallic taste, just weird and unpleasant.

If you are not sure of what you have, you can try the diet and see if it helps. It is a healthy diet, it doesn't hurt. It sounds very likely that you have acid reflux though.

Thanks for taking the time to reply to all my questions!

I've had the 'taste' all day (since eating the muesli) despite taking 2 lots of Gaviscon......

Is that normal with LPR? I mean, should it be constant? Xxx

I had the same thing, a constant bad taste.

I just realized that I am not taking the same medication though, I am taking dexilant (PPI), you used the chemical word of the medecine so I got confused.

I tried Ranitidine once in addition to dexilant when my symptoms were too bad and it helped though.

Did you check the book "fast track digestion heartburn" by Norman Robillard? I have not read it but it has good reviews online and it seems to make sense. It is a different diet based on limiting sugars that create gas in the lower intestine..

The diet from the book of Dr Koufman helped me a lot and I don't get really bad "acid crisis anymore" but I am trying to get off the medication dexilant (PPI) now, and some light version of my symptoms are coming back when I don't take the medication, so I will look into it.

After stopping the dexilant, I had some symptoms coming back for a few days.

So I tried DGL licorice and it works very well, I feel normal again.

Hi guys - I have borderline barrats- 4 weeks ago I developed a metallic taste in my mouth flowed the next day by a horrible burning on my tongue and a soreness on the roof of my mouth.

i recently had magic eyes both of my bowel and my esophogus and it showed borderline barrats, I have always been troubled with heartburn or indigestion.

recently my symptoms have altered. I have had no heartburn no indigestion - but I seemed to have developed the throat clearing the white foaming stuff from my mouth after coughing - dry eyes and blocked nose.

my Gerd consultant has changed my medication to nexium, but things are still the same, my mouth is so sore, a lot of burping,I'm frustrated now as I have been having private treatment and nothing seems to help ------ I have found it comforting reading on this site it seems quite common and there's some helpful suggestions- any further help would be appreciated 

mrspinrat - we seem to have been having similar symptoms - you have my sympathy as it's awful 

Hi there - please could you tell me what you mean by DGL licorice 

and is dexilisnt a medication 

apologies this is all new to me, this burning tongue and mouth is driving me crazy - any suggestions please 

Hi it's Wilfie again - excuse the interruption in yup conversation - I like you am trying to find some help for this horrible condition

please can you explain what the abbreviation LPR stands for IV not heard that before,

thank you 

High PH water and alkaline drops have worked incredibly well for me.  If you have pepcid coming back up, the alkaline effectively kills it off (PH 8.8).  I've been taking it for 3 days and can notice the difference.  I gargle with the alkaline drops usually before and after meals and I drink a small bottle of water each day (PH 8.2).

So I haven't gone mad with the drops or water, but it has made a difference.  Some people use it as a throat spray, but I find that gives me a thickly cough!

​I' m also going to do a nasal rinse as I get a blocked nose and ear pains sometimes (the pepcid vapours can stick around all the airways!)

 

Thank you so much Suzeq1972- I too suffer with a blocked nose - I have been told to get a nasal rinse - but not where to buy one.

if you have time please can you tell me where I can buy the products you talk about

i also have the dry eye syndrome which is parr for the course, I have done well until recently only using the ranatadine -but it seems to have gone up a gear  after my endescope - the burning mouth is horrible , the other things I can deal with but my mouth is on fore the whole time.

thank you for responding to my mail - I'm so glad I found this suet I was beginning to think I had some horrible illness

Hi Wilfie.  It sounds like you're suffering too!

I purchased everything from Amazon.  I'm sure you can buy them cheaper elsewhere, but I was so desperate I just didn't care how much it cost!

Also, if you're on Facebook, search for a page called 'justpassingthrough'.  I found the information invaluable!  

Please let me know if you need anymore info! :-)

Thank you Sueq1972- thank you for the information - it's so miserable at the moment- the burning mouth just doesn't go away, if it wasn't for that I could cope with the other things and manage the symptoms- but the mouth is relentless 

I don't care what I pay or from where having the where's buy is the invaluable part - thank you so much Suzeq - your brilliant for that.

my gastro consultant put me on nexium 10 mg satchels -1 per day which haven't done anything so far - however I read this morning on the enclosure the usual doseage for a 12 year old to and adult is 2x 10 mg satchels per day- I wondering should I double up on my own steam or wait to see the consultant in 6 weeks -mmmm!!! The local boots pharmacist would confirm for me to take the extra satchel ( even tho the directions state two) until I confirm with my consultant - I'm confused as to what to do as it's the long weekend.-I feel like screaming I really do !!! - thank you for you support Suzeq 

I'm the same Wilfie.  I can put up with most things, but the throat and mouth issues really were getting me down!  Did you find the page I mentioned on Facebook?  If not, I'm happy to email you some info it provides.

Have you thought about starting a new discussion on this site about the dry mouth?  I'm sure there's lots of ways that people have coped with it (I think sucking an ice cube has been mentioned?)