# Raynuads and link to autoimmune disease 

**URL:** https://community.patient.info/t/raynuads-and-link-to-autoimmune-disease/684289
**Category:** Allergies, blood and immune system
**Tags:** Raynauds phenomenon
**Created:** [1 November 2018 16:10 UTC](https://community.patient.info/t/raynuads-and-link-to-autoimmune-disease/684289 "2018-11-01T16:10:09Z")
**Posts on this page:** 5
**Page:** 1

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### Author: ![nh\_user\_1214244](https://community.patient.info/letter_avatar_proxy/v4/letter/n/35a633/32.png) [@nh\_user\_1214244](https://community.patient.info/u/nh_user_1214244)
#### Post date: [1 November 2018 16:10 UTC](https://community.patient.info/t/raynuads-and-link-to-autoimmune-disease/684289/1 "2018-11-01T16:10:09Z")

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Hi is anyone suffering from raynuads due to an autoimmune disease? My hands and feet are permanently like ice. Summer and winter. I have a possible autoimmune disease with various non specific symptoms. Would appreciate any replies related to this.

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### Author: ![nh\_user\_1135732](https://community.patient.info/letter_avatar_proxy/v4/letter/n/aeb1de/32.png) [@nh\_user\_1135732](https://community.patient.info/u/nh_user_1135732)
#### Post date: [1 November 2018 18:31 UTC](https://community.patient.info/t/raynuads-and-link-to-autoimmune-disease/684289/2 "2018-11-01T18:31:59Z")

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I don’t really know why I am suffering with Raynauds, but had chronic fatigue syndrome for 7 yrs or so. I have been officially diagnosed with Raynauds for probably 3 years now. However, I only have it in my toes and the symptoms are all but gone after the cold months have gone. I find a big, positive difference in taking 400 mg. Pentoxifylline 2 x a day. My Dr. wants me to take it yr. around and I find it to help.

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### Author: ![nh\_user\_1214244](https://community.patient.info/letter_avatar_proxy/v4/letter/n/35a633/32.png) [@nh\_user\_1214244](https://community.patient.info/u/nh_user_1214244)
#### Post date: [1 November 2018 18:38 UTC](https://community.patient.info/t/raynuads-and-link-to-autoimmune-disease/684289/3 "2018-11-01T18:38:24Z")

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Hi no dr has offered me anything for it. I just thought it might be related to another condition. My feet get sore because they’re so cold. I have to put them in a basin of hot water

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### Author: ![nh\_user\_1135732](https://community.patient.info/letter_avatar_proxy/v4/letter/n/aeb1de/32.png) [@nh\_user\_1135732](https://community.patient.info/u/nh_user_1135732)
#### Post date: [1 November 2018 19:52 UTC](https://community.patient.info/t/raynuads-and-link-to-autoimmune-disease/684289/4 "2018-11-01T19:52:12Z")

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I went to a Podiatrist and as soon as he looked at my ft. he knew what it was. He said that the larger percentage of people who get it get it in their fingers. I’m so thankful that my fingers aren’t affected by it. Oh, he also gave me Nitro Bid cream. It goes a long way because you just use a thin layer of it on the toes (and fingers). It opens the capillaries that allow the blood to flow to the didgets. With Raynauds, the capillaries are so small that the blood flow is restricted and the lack of ability to circulate causes pain and burning. These are both prescribed meds. I hope you will get the help you need. I’m sorry it’s gone un diagnosed for you and you’ ve been with out help.

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### Author: ![nh\_user\_1214244](https://community.patient.info/letter_avatar_proxy/v4/letter/n/35a633/32.png) [@nh\_user\_1214244](https://community.patient.info/u/nh_user_1214244)
#### Post date: [1 November 2018 19:59 UTC](https://community.patient.info/t/raynuads-and-link-to-autoimmune-disease/684289/5 "2018-11-01T19:59:56Z")

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I’ve different specialists about other things aswell. But no one has offered anything. I’m still in the process of trying to get a diagnosis for my autoimmune disease. I just thought it could maybe be related as it’s gotten worse lately.
