Hi all, i am 19, female, and healthy since this condition ruined my life. i have been suffering with ebv for a little over a year now since my initial infection of mono. i never feel that great and am constantly experiencing new/bizarre symptoms everyday. (including, bone pain, shooting pains, neck pain, muscle pain, nerve pain, tinnitis, blurry vision, fogginess, achiness, etc). i was then diagnosed with Hashimotos. but my newest symptom is oral thrush. i woke up 6 days ago with this and i am utterly petrified. I am a horrible anxiety sufferer and hypondriac and i googled oral thrush and it only mentions HIV or cancer. my anxiety is making me believe that those are the only two reasons i have it. i cant think straight bc im so worried. Could oral thrush be due to my reactive ebv, high amounts of stress, and/or hashimotos? please help
hey Nicole- I too have been sick over a year (going on 16 months) Since getting mono in July 2017. It really is the most horrific sickness. So I totally empathize with you. Yes I get crazy symptoms still. Although mine tend to be cyclical. When I get a crash it brings shaking and muscle aches and pains and IBS. It’s now looking like I might have Lyme disease which could’ve set off the EBV reactivation and the mono. I would tell you not to stress yourself out on the Internet - I know it’s so much easier said than done. I do the same thing where I feel so out of control and need to find answers that I think researching will give me. But 90% of the time it just makes me more anxious and it ends up not being right anyway. Oral thrush is a yeast infection of the mouth correct? I would think that has more to do with a bacterial imbalance in your body. Do you see a natural path?
thats when i got mono too! its been such a draining year. and yes, thats what it is. ive never had it before and apparently it only happens in immunocompromised, thats why im so scared. its definitely not a sign of health; however, i would feel better knowing it was due to ebv or the imbalance hashimotos causes. i pray thats what it is. currently im suffering a mono "flare up" again and this anxiety is making me go mad
its candida i believe and you can get supplements to do a 'yeast cleanse' try and stay away from sugar dairy and all the other things it feeds off . i think its ALL the virus ... i have so many weird things popping up all the time .try not to worry it has a way of affecting everything. its such a horrible strong virus ...and so sad that there is no cure for us . keep healthy and rest as much as you can .... i know ...its boring but thats all we can do .
thank you so much for replying. yes this virus is unbelievable. i never knew about how bad it was presviously. i hope your right, i mean ebv wears down the immune system which im sure helps yeast overgrow. kind of common sense. reading online literally only says hiv or cancer. i need to stop reading!! hope you feel better soon too xo
HI Nicole, i had mono in May this year (2018)and have had some horrible symptoms changing weekly and one of them being oral thrush. I had two different treatments which eventually treated it, along with careful diet, no dairy and limit sugar. I think its just another sign of how run down our body still is. I have also been struggling with anxiety on a daily basis. Hope it clears up soon for you.
your reply just reduced my anxiety significantly. Thank you so much. i hope we both start to feel better soon.
Hi Nicole,
Just a quick note to let you know that I've been dealing with the virus since Feb 2018. Yes, it is horrid - sooooo many symptoms, including anxiety, which I have never felt on this scale in my life....also, 24/7 headache, neck + back pain, joint pain, facial pain, dry mouth and white tongue. Mine was at it's worse in the first 4 months or so, but I still am suffering. I used to have a perfect mouth. I have also had a few canker sores on my tongue. I know exactly how you feel. I have been taking 'nystatin' prescribed by my naturopath for candida and mycotoxins which I also am dealing with. I am still suffering but feel that I am making progress.....this virus can really do a number on us. If you are in an area where you can find a good naturopath, I would recommend seeing one. In the mean time, boost your immune system as best that you can with a low sugar clean diet and rest. Acupuncture has been helping me as an immune booster as relaxing has been next to impossible on my own. I am also supplementing with Chinese herbs and reishi mushrooms. Please try to relax as much as possible and have some patience with your body that is trying to find homeostasis. Trust me, I know how hard it is but it WILL help.
Hang in there, Kiki x
Thank you for your response. i already started looking into acupunture! i hope we can all heal soon.
Hi Nicole,
Oh what an awful year you've been through by the sounds of it, just wanted to let you know I was thinking about you and empathise with how awful the EBV / mono virus is having went through it myself many years ago.
Many of these symptoms sound similar to mine Nicole when I went through it, and I want to reassure you that you will get better and this horrible virus does go away eventually. Goodness knows you must be so weary and drained after more than a year, but please know that this can be normal for this virus, it took me over a year to start to get back to any kind of normality, but got there thanks to God only and I believe you will get there too Nicole - this thing doesn't last forever and from my own experience of it I truly truly believe you will get better - and that is coming from someone who thought they may never get there with it at one point - but did thanks to God and you will too - I believe God is going to get you through this 100% I believe that, no matter how tough things seem now.
I hope so much these thrush symptoms and all these symptoms settle down - I do understand how awful it is to worry and be overwhelmed when you keep getting hit with things and to panic when you start reading things on google. Please know Nicole that it most likely isn't anything any where near as serious as you have been thinking, these things can be common and caused by many things and clear up, it may well just be a wee infection in the mouth which can happen and clears up. Of course it's always wise to go and see the doctor, and hoping they can offer some reassurance and hope - and remember it's only the scare stories that people put on google, the vast majority of people who have these kind of symptoms do get better without any harm and these stories are never recorded anywhere because people become well again! And you will be well again too Nicole you really will - you are a young person and will be healthy again and have lots of good and healthy times ahead, just a tough tough phase in your life but you will get by it you really will - God will get you there.
In terms of the EBV, taking vitamins and herbs really helped me during my recovery. A good strong multi-vitamin per day (Immuance here in the UK was one I have taken and found good), a B complex vitamin per day (great for nervous system and energy levels), higher doses of Vitamin C (1000mg-3000mg per day) and immune boosting herbs like oregano, siberian ginseng and echinacea - these can all help with any oral thrush too I think - but of course always worth asking a doc or herbalist.
Just be kind to yourself Nicole, breath deeply in those moments when feeling overwhelmed, and tell yourself that this is temporary and you will feel better again - hoping and praying so much for things to get better for you soon and will say a prayer for your recovery Nicole. Hang in there, one day at a time and don't put yourself under any pressure and do talk to someone close that you trust about how you've been feeling is so important too. Thinking of you.
Craig
ME TOO!!! JULY 2017
that made me tear up. thank you so much for your kind words. its very comforting to hear that from someone who has experienced this virus. thank you again. i hope you continue to be healthy and that i soon can say the same
oh my gosh that's nuts! I went from totally healthy to completely sick in one day. It’s been so awful! I even had a brief recovery. For about a month in mid October to mid November 2017. And then I attempted exercise and I totally relapsed and I’ve been sick ever since. Although now I am going on antibiotics for a month because I may have Lyme disease. My tests keep coming back indeterminate and it’s the only treatment we haven't attempted so I’m giving it a go.
This muscle fatigue and pain plus shakiness is so scary and debiliating. I'm beyond ready to live a normal life again! Hang in there guys – I’m rooting for you!
yes ive had the shaking too its so embarassing and awful . and yes i was doing 'ok' until i completely stopped working out ...then i went really bad . go figure i dont understand how or why ... this horrible virus works
Oh Lisa,
So sorry to hear you've had this setback, I know how discouraging and disheartening that can be when you see some progress and then it stalls or seems to go back the way. I've been feeling a bit like that too had a better week last week and just feeling things worse again this week and it drains you so much I know Lisa.
Just hang in there Lisa, remember things won't always be this way, there is hope and there will be a phase of complete and total recovery where setbacks don't keep happening - I do still believe that for you Lisa and just remember this is only going to be a setback and you will get by it again and feel better - thinking about you and sending best wishes and hugs. I'm still grateful for all your wise and kind words to be over the months Lisa even when you've not been feeling well - we should just continue to be there for each other and encourage each other through the hard times right now, it's so important and you will get there Lisa I truly believe that.
Craig
There's nothing to be embarrassed about Lori - this virus is awful and it is just dreadful when you get that kind of shaky and uncontrollable feeling, it is frightening but it won't last forever - in those moments just talk out peaceful and encouraging words to yourself, and remember it will pass over and is only temporary. And one thing I learned is just to stop trying to figure the virus out (easier said than done), it does it's own thing and goes its own way, but it will burn itself out and you will endure well past the lifetime of it!
Craig
Oh thanks Nicole for your kind words too, been going through a hard time myself and need God's help and strength every day right now also!
Just remember you will get through this Nicole - words can't describe the awful experience and way this thing makes you feel when it goes on for such a period - it was life changing for me but absolutely there is hope and it does get better, just so frustrating it can take a little time but truly you will get there.
You are young Nicole and God has amazing plans for your life- He needs you well for that and is going to get you well again so just hang in there and don't give up! Better times are ahead, but for now just take things slowly and one day at a time and don't panic if recovery isn't overnight, because it will definitely come - it really will Nicole. I thought it never would with me too but it did and you will get there! And you know what you will be so much stronger, healthier and happier for having gone through this and have a new sense of freedom. Will say a prayer for your recovery today.
One step at a time - don't look far ahead - hoping today can be a settled one and remember can come on here and chat any time.
Craig
i will pray for you and hope you get better as well. this is a rough virus. wouldnt wish it on anyone... enjoy your holidays and thank you for being so supportive to everyone on this site. it makes all the difference
Hi Craig! oh gosh thank you for the encouraging words. It's been a rough few months. This sickness just seems to go on and on without an end in sight. But as long as I have treatment options I still feel like there's hope and something I can do.
I'm glad to hear you had a good week! But how stressful to relapse. I know that disappointment well. But having a good week must mean your body is healing and will continue to do so until you are fully well! I'm sure of it.
It's easier for me in the colder months- it doesnt feel so depressing to be stuck inside when it's storming outside. So that's a plus!
thank you craig ! yes i hope it burns out soon its driving me nuts !