✨💚✨ Ready to Conquer FM

Bones, joints and muscles
1

✨💚✨ Hello FM friends ✨💚✨

just joined up up and thought I would say hi.

My legs are asleep, so don't want to sit for too long!

Can you relate? !

Quick background...symptoms started over a de are ago. Was health, had 3 kids naturally (no meds..so 'pain tolerant',). Had a reaction to Wellbutrin at 38 which had me hospitalized with erthyema prupura, and the following yr had a tubal ligation. Never had another period. From fertile to post menopausal in 2 years at 39, without so much as a hot flash.  Health seemed to head south around that point.  

So for the next 10 years, I was very aware I was declining, and gave it all sorts of names, like 'busy mom', '3 kids', 'getting old', 'stressful mgmt job'.   But in the back of my mind, it wasn't making sense.  I could not hold my baby on my chest. I would give a wee Yelp if hugged too hard. I was dragging, and my analytic mind could see the slope of it, despite the ups and down, was going to run out. 

10 years later, it did, despite my best efforts to reduce stress, reduce work hours, and be active.  2 rear Enders probably pushed it over the edge.  

Diagnosed with FM in 2014.

was quite shocked by the diagnosis at first.  Had a rather poor view of tibromyalgia..thought it was were the lazy, complainers were slotted. But after doing some significant research, I came to realize its validity.  

So, now to conquer it! ✨☘✨ 

spent 2014 in Physio, deep tissue massage, ultrasound, EMS, dry needling, exercise.  Have reversed the decline, but need to get over he hump and back to better health.  ✨🙏✨

2

Hi R2ConquerFM

Many of us have been in the High Pain Tolerance Zone, and busy life styles..  Which all amounts to a 'Hard thump' when hitting the FM Wall.

I have battled all my symptoms for years now, and with various things and could still managed walking for long long distances, keeping aware of bad balance.  My legs were the only thing I had left that worked well.  My upper half always failed me.  I would push through exercising, swimming, physio all carefully of course, would still regularly have to deal with the flareups on top of the normal pain and stiffness every day. Headaches 24/7, are normal with Tinnitus to.  Fatigue is always a biggy.

Now I have progressed to using crutches as a walking aid.  My hips lock up painfully, I can lose my bladder because of it.  My legs will also stiffen terribly, and now my legs, ankles and feet Blow out and swell up.  

There are levels of Fibro...  one can elevate rapidly or slowly.  Remission for me is a dream.  I remember when I had experience two occasions when I went into remission.  Once for a approx 3 days, no symptoms at all, pure bliss. The other I think was 2 days... In all a week.   I progressed to half a day or a couple of hours once every 7 months.  I have had no remission now for a couple of years.  My days into months, now into years.  I can no longer walk very far without aids, and full body stiffness and pain.  

DO KEEP STRESS FROM YOUR DOOR....  Stress in NOT a Fibro sufferers friend.  External triggers, weather, sunlight and regular loud annoying sounds also not good.   Yes, it sounds like we need soft floaty clouds to lay down on, soft piped music and pleasant aromatherapy smells.. Healthy food groups, and very gentle water aerobics.   And That Is What a Sufferer does need, to be able to calm the brain over pain...  But of course it's very hard to do in a modern world ...

Keep up what ever does work for you R2CFM  it is very important.  You obviously have very good supportive family to, and that is a biggy.

All the best... keep us posted how your doing.  Vent away if ever you feel a need, continue please to let us know what is working for you.  Many others on their Fibro path welcome input, and pick up pointers they haven't yet tried.

ANY Latest Research you may stumble across is also VERY WELCOMED...  

Welness Hugs

 

3

Thanks for taking the time to reply. Most appreciated. It is good to hear I am not alone and crazy!  Which I know am not...but some days, well, you know...are harder than others.  

I would really really like to recover and get back to work and life.  

But time is ticking on, and despite my conserted efforts, I just don't  see how I can be consistent, reliable and focused for my job.  🤕

4

Your definitely not on your own and your defo not crazy!! although we do feel it ...   Our processing gets slower, and if we try multi-tasking to much we get into trouble.  We have to be kind to ourselves.. and realistic.

I personally had a terrible time trying to cope in my long term employment in management/admin with a company,  I was with them for 17 years, the last years were hell trying to cope.  I got to the point I couldn't even manage the reduced hours per week, not being able to even complete actual 'Work obligations' of 1 - 2hrs out of 15hrs.  

I used to be full time in a very, very busy situation.  My Boss and CEO/s were wonderful to me. They had such patience and never grissled at me.  I felt terrible for my boss though as he actually took on some of my work.  (I was originally doing my job, and that of one other person when they left)...I loved my job, loved the folk I worked with... hohummm   One never envisages that life can turn upside down, inside out and the subsequent struggles there after because of Fibromyalgia.  MIne was bought on due to head and spinal trauma from a MVA.

One learns to accept what Fibro does...how it impacts on the brain and body.  We don't like it of course, but we have to learn to be realistic about the condition and how it impacts on us now, and then daily there after.   We are all different and our changes can be rapid or slow..  Remissions can happen for some folk in varying degrees.  

But the reality is, one is never free of the condition, as there is yet NO Cure.  

So living with the condition, and learning what works and what doesn't on a day by day, or minute by minute basis is what it's all about.

I wouldn't wish the condition on anybody EVER!  At times some Flares and some Allodyna is like having surgery without anesthetic...

Sleep is a huge problem...getting enough of it. And as we don't produce apparently enough dopamine it causes us issues.

ROLL ON THE RESEARCH....  Fingers X'd for knowledge of what really is the cause/s of the condition. Where it stems from (brain) and the peripheral issues. The Long term affects on the brain and body...The total impacts on our overall health..

AND finally 'Voila'... -  What, When and How to treat to Cure it.

Knowledge and MIracles....