This condition has really affected my life. But I am simply stunned tonight. M ybest friend told me that I should be thankful I don't have something worse. And I need to just live with it and get over it be glad I don't have cancer or something really bad. Ha ! It really hurt me. All I said was I am worried about the long car rides I need to take in May and July and I hope I can handle it. Honestly I don't think one person in my life gets it. I'm just going to shut up and suffer in silence from now on
It takes a lot to get me down, I work right through any illness I've ever had. I am just exhausted. Telling me to forget it and just get on with my life. Wow I would really love to do that
Typical uneducated comment for those you have no idea of what it's like to live with.
i would tell her to try and live with what you do just one day.
It waht hat most refer to as chronic invisible disease. We look good isn't that what most friends would say. Or pass of a painful,comment like you never even said it. Ignoring your feelings and pain that's not a friend.
I am am sorry it is so frustrating. There are a lot of great support here. Anytime !
This condition is by far the worst thing I have ever dealt with. Here, we all understand.
No one who has not lived it has no idea. It is life changing. Some friend but people don't understand
Oh Donna
Im so sorry to hear that from your friend......she just doesn't know .....and unless someone experiences this they cannot know. When friends or family ask what is VA or symptoms .......I just say it's like having a UTI all the time at its worst and other times pressure pains....or just feeling raw down there...most respond back Oh no, as most women have experienced the uncomfortable feeling of UTI.
Ladies....it is so important to try and keep busy to try to keep our minds off this discomfort. It just seems to take awhile for some to start to feel normal again....Hang in there ladies.....I'm doing much better.....there is hope!! I'm not totally at 100 percent but I pray I'm getting there with the help of Vagifem........this blog is a blessing!
Wendy
Oh no...don't suffer in silence. People act that way because they haven't had problems...their day is coming!
The car rides bother you? Would stopping every few hours help? I'm okay in a car, but I know someone else who cannot sit on hard chairs. So is it painful or just stressful? She, my friend, who cannot sit on hard chairs says it causes pain and soreness.
This is a chronic pain situation. Someday your friend may find herself in a similar situation. It is one of those things that you have to experience to even begin to understand. I have had cancer and believe me VA is worse as far as chronic pain. Surround yourself with understanding people. Do what is right for yourself and forget anyone who brings you down.
Donna
No one who hasn't experienced this can understand.I t has changed me and my life in 7 months. The only person who knows what I am going through is my husband because he sees me and what is/has happened to me. None of my friends understand, they can't see it and they think it's 'nothing' or 'just menopausal'. Probably your friend doesn't understand and how could she? I wouldn't have known about this 7 months ago. Hope you are OK x
Donna, if they suffered like you and felt what you felt on a daily bases they would be singing a different tune! Hugs to you!
Thank you so much. I just didn't know how to even cope last night. She has been my best friend for 20 years. I'm still shocked. She has been through some pretty big health issues herself , life threatening ones. And I've always been impressed with her strength. But I guess she thinks burning 24/7 is small beans. She said if I'm hurting it means I'm alive and I should be grateful. ugh ! Of course I am grateful to be alive. I'm just really hurt
I know you do Kay and I swear if I hadn't found this site I would be in a straight jacket right now.
It is frustrating that they don't. I talked to a couple of people about the MOna Lisa and one even said that's just to fix your sex life right?
My sex life was just fine before this started 7 months ago!
I agree this blog is such a blessing.
Car rides are really painful. We just went to a furneral last month and it really hurt. I have memory foams on my chairs in my studio, I paint. And at my desk chair. The trip we just took got me burning worse for about a week after we returned.The only place I can sit with little pain is my recliner. But I have to earn a living so I can't spend my days there
I may tell her you said that. I was just amazed at the things she said. She has had many health struggles so I was shocked.
Catherine 7 months ago my life changed overnight just like yours did. It has been the roughest most emotional 7 months. I feel like I have lost a friend. My heart is just broken that she could act like that. I just told myself she is going through some major health problems too. So she probably thinks I'm being silly.
Thank you ! I guess I'm going to have to accept the fact that no one that isn't living this doesn't get it
Thank you all for making me feel I'm not alone. When I saw all the replies I just started crying !
BTW: The Mona Lisa is not just to improve your sex life. I lost my husband to cancer a number of years ago. I also have had three Mona Lisa Treatments and have the yearly one scheduled for April. It has really helped the VA. I was dry and burning 24/7. I still use vagifem 2x a week but those in combination with the Mona Lisa have made me feel so much better . I suffered for almost two years before I got treatment. There is hope.