Hi, I went out for a meal with work on Saturday night and have been feeling under the weather ever since. I initially said I wouldn't go but it was a special evening and I really felt that I should make an effort and go. I only had one small beer and lemonade but the food wasn't what I would normally eat and I did feel stressed as I had to sit at the top table which made it difficult to hear and join in conversations. I went to bed about 11.30 and slept for 12 hours. I spent Sunday afternoon in my pjs and slept snothet 12 hours last night. My muscles have been really twitchy and jerky and my appetite has been down. Do any of you suffer in either a similar way or differently after going out?
I was diagnosed over 20 years ago..and I can say yes..in my early years I definitely did have such fatigue like that...often if I had done something or been out..like you did..grr...Not being able hear others is very stressful and stress is just sooo bad for Fibro....I was often off my food..and I had temperatures too, yet there was nothing else going on..You didn't say how long you have been diagnosed with Fibro..but it certainly sounds like my early years...please don't stress it's the worst you can do..if your too bothered by anything just talk to your dr or someone like that who you trust..be blessed, hooe you get answers really soon...have a lovely week..:-) xxx
Hi caroline, yes I love socialising but I have almost given it up these days :-(
I have never been a big drinker but these days even after having a small glass of wine I don't sleep well, twitch most of the night and the next day I can hardly move my whole body, and has been known to start off a kidney infection,
I'm determine not to give up going out with friends and family, I now have a soft drink and mostly a steak or chicken with salad and a jacket no sauces which can hide foods that will upset me, ie different spices oils etc,
I have a hearing problem which I have through lupus so I always get there early so I can sit around the middle of the table as I used to find it very isolating not being able to join in a conversation, that in it self used to make me stressed just sat there with the odd smile and nod, I spoke up once and informed everyone how this was making me feel and I didn't want to go anymore, my friends were mortified and it didn't even enter there heads, but now it's different we sometimes depending on why we're out move two paces so that everyone can talk to everyone who is out, this avoids little clicks to,
Might be worth a try if there good friends they should feel accommodating to your needs,
Hope this helps you a little, your not going mad or your not alone.
Hi! Thank you for your reply. I've had symptoms of fibro for many years but they became much more evident when I had to reapply for my job 4 years ago. I also had to take on a lot more responsibility last year when our manager was off sick for 4 months. It was then that I applied for early retirement and I am due to begin my new job in a couple of weeks. I initially said I'd like 10 days a month but I'm going to ask for 8 as the days are quite long.
Really good that you are looking after YOU-Reduced working hours...we do have to take our health into our hands...with soooo many differing symptoms...well done you...you have had some stress alright... No wonder you've had problems...a Rhumotologist will diagnose very quickly..if only most of us knew that way back.....stay strong and stressless if you can...being positive is a great help too.....be blessed:-) xxx.
I haven't been out for the past six months due to this. I also loved socialising but just can't sit anywhere for long enough to get comfortable. It's just too much. I can't drink alcohol anymore either. It now has a dreadful effect on me. I just don't feel like getting into conversations. Feeling achy doesn't help :-(
Yes going out does take it out of me too. I find sitting on the uncomfortable chairs you get in restaurants etc make my pain worse for a start of that plus a late night and it can take a few days to recover. But we can't never do anything or life wouldn em so boring, I do pick and choose though. Hope you recover soon xx
Yes, totally agree....although it's nice to go out and socialise once in awhile. It can become very tiresome. Yesterday my nephew agreed to take my youngest son who is 10 to the cinema to watch the new Spongebob Movie. I was so relieved he took him as Spongebob is not my cup of tea.....
He arranged to take us all out for a much later as my husband was on late shift, so my two sons and my nephew and his mum went for a bite to eat at Nandos. It was a lovely meal and we all had fun but I was so exhaused and it was only 9.30pm when we got home. It took alot out of me but I know that it is ok to go out once in a while and induldge in treats. It just makes a change.
Even though I was so exhausted still found it difficult to sleep as my cold is still around unfortunately. But I do believe in ONE DAY AT A TIME !!!
Hi Leona, what a great idea you have regarding moving seats, it will certainly stop the little cliques and be less isolating. My friends just can't grasp it when I say that going out makes me ill. I usually leave early but make sure I'm not the first to leave! I just can't believe how much I've been twitching for 2 days now. Thank goodness for diazepam.
Hi Julie, people just don't realise how isolating fibro can be. There is no information regarding the effects that going out can have on us and how we avoid socialising to prevent an increase in certain symptoms. I too find I can either no longer drink alcohol, especially wine or can only have a micro glass. Also sitting for a while makes me ache and if I take my tramadol, it's like What are you taking those for? It's time for a deep sigh and count to 10! Oh well, I expect Christmas will be my next do!
I know Caroline. I've read so much but as you say there is little info on the illness as regards socialising. All my friends are going away for a hen weekend in about three weeks time. I've had to decline and they just don't get it. I can't drink. I have to go to bed early and my sleep pattern is awful. I'm a misery because of pain and dread the thought of travel. One of these days i just won't be asked to go anywhere anymore. People don't realise how debilitating this thing is and without a cure its hard to feel positive at times. I went out shopping today and even that can be hard work xx
yes hun i know any hard seat just seems to send pain right up from your buttocks to your neck and shoulders its so horriable plus your legs often go numb
i like going to shows to see comics and bands as we live on the coast we get a summer season in the thertas but the last time i went to see an act i was on the fidget so much and was so knackered when i got home i decided not to go again .