Hi I was diagnosed with Raynaud's phenomenon a couple of weeks ago. I have always had cold hands and feet. The last couple of months my hands were turning purple, looking bruised. Also had shooting pains, tingling and pain on bending fingers.
The med given is Nifedipine 5ml X 3 daily.
My legs have started to go purple now espcailly my knees,they look bruised and swollen so do my elbows. I thought Raynaud's only affected hands and feet, not legs and arms. Any info would be appreciated THANKS
I was put on adapex mid December and finally I'm realizing that all these issues are happening to me too- cold hands- feet my feet sting with the cold-my teeth have been going crazy with root canals, and infections! Over the past 2 months being on this medicine skins with purple feet when going to take a bath with water change! I have inflammation detected in my blood work- I went off the meds finally 3 days ago- I hope this isn't permanent I have cold utericia since I was little hives when I get cold on occation. So how are you feeling on this medication? I'm going to my rheumiyist this week to discuss this!
Hi, I too have Raynauds and was diagnosed in 1990. Long time ago. Raynauds is a small vessel disease where our blood vessels constrict. Therefore our circulation and blood flow is not good. I have been on verapimil since day one. It is a calcium channel blocker helping to dilate our blood vessels. Nefedipine is also a calcium channel blocker. Any part of your body can be frozen like a popcycle to hot and swollen. No matter what the temperature is. It does get extremely painful when it is cold. The only tho g that has ever helped me is taking a hot hot bath to thaw myself out. Just be careful it could be dangerous because we can't really feel if the water is too hot and that can cause serious burns.
God bless you,
Kristy k
Your "extended" symptoms are not the norm. The bending fingers pain, sure, but the bruised knees and elbows are something you need to bring to the attention of your physician. Excessive bruising is more often associated with other things than Raynauds.
Hi Kirsty
Thanks so much for your reply and explanation. It makes things a lot clearer. No wonder I like my baths red hot. Does stress make it any worse ??
Thanks again x
I went in our hot tub a month ago and nearly jumped out because they were stinging! Did I mention it's freezing here with tons of snow! My husband was like its the sane temp it's always been! But I bet if you looked at my feet they were purple! Do any of you get purple feet in the bath? But as soon as my body warns up all is fine! Do your legs look pink & blotchy colored?
Also, have you ever heard of people getting Raymond's from diet pills This all started when I started them.
Stress is our enemy!!!
Hang in there. It is so hard to deal with all the stresses in the world today.
God bless you
Kristyk
Hav nt felt no relief as yet. I have high blood pressure and was on beta blockers before new med. I ve had gum infections which made throat swell. My teeth hurt often too. My hand annoys me as hurts to do basic cleaning and other tasks.
i m going back to doctor as feel I have something underlying as have lots of other symptoms too .
Thanks. X
I experience exactly the same. Turning red, white and blue. Its hard to explain the pain and discomfort.
Kristyk
I have never heard of diet pills being an issue. But you know now I think of it my Dr prescribed redux around the same time I was diagnosed. I need to.check that out. Thanks for the info.
God bless
Kristyk
Hi Lisa,
I think I sent a message incorrectly and meant to send to u. Your information about diet pills I have never heard about before. My Dr gave me redux during the time I was diagnosed with raynauds. Thanks for info.
Kristyk
Hi everyone,
You are talking about teeth hurting and root canals etc. I suffered through dental issues for many many years. I hope you don't suffer with these problems long. Our immune systems are not the best having a autoimmune disease.
Take care
Kristy k
Yes, I had a root canal- and they gave me about 7 meds to help the pain go away! And then the top teeth started hurting- then I got a sinus infection more meds- then I felt my bite was off fro. My teeth and the dentist looked at me like I was crazy! It was because of inflammation I finally found out from my bloodwork! I swear it's crazy how my body is reacting! My chest was so painful it last month & this month for a week straight never any problems like this before felt like I was Brest feeding and didn't pump! Ouch couldn't even hug my kids or husband for a week!
My feet are freezing now! It's been so cold out! I need to take a bath just to get them warm!!!
Hugs to anyone going though this! All dr's don't know anything about what is going on! Finally I have an apt this week with a rheumologist I hope she knows what is going on
My throat is swelling too!! They though I had laryngitis with all the mucus and sinus issues- I still can't swallow that good- it's so annoying sometimes I'm glad it's time to go to bed! They have put me on so many steroids thinking I was allergic to all the meds I was taking to clear up the root canal!
Is the medicine working for you?
Hugs for all that I have talked to tonight! Thank you it's nice to talk to people that are going though what you are. It's just been two months of craziness for me 😰
Oh my stress does make it so much worse my mouth is burning now- if I have an upset it's makes it worse! Have had 4 panic attacks twice at the general dr's office, when they said nothing is wrong with me.
I dont have a correct 'bite' and dentist can't seem to find it! Novocaine doesn't work and for yrs. People thought I was nuts. All these autoimmune issues are inflammation in our bodies. Take care of you and your family and God bless.
Kristy k