6 years ago when i was 18ish i got what i thought was a uti infection/sti/d as lymph node raised in my upper thigh/ groin area which caused terrible pain when touch and i had an frightening amount of discharge, the infection grow daily. I got this after having a sexual activity. when looking down my urethra i could see the infection starting in the meatus and it was like the top of the urethra was sticking together. naturally i went to the sti clinic to which all tests where done and my results came back 2 weeks later which meant the infection was ten times worse. Due to delay in getting the results and the infection getting so bad i ended up in hospital as my white blood count went to 0.6. i have been re tested many times for Sti/d including a mycoplasma genitaliar screen and they have all come back negitive, at the point of infection i had a lot of blood in my urine but I don’t think I’ve ever had a urine culture at the point of a flare up. As i was on doxycline the flare up went but looking at the meatus i have been left with redish patches that are hard to see as so small with have little grey/white/ patches in the middle. These patches flare up after mastication or sexual activity. i have seen multiple urologist all to might have given me no hope. I have a mri scan of the prostate and a full body ct scan which have all shown no signs of concern. i currently have reactive lymph nodes in my groin that flare up from time to time. all blood pathology has come back normal apart from having past signs of a positive EBV infection (and I’ve had a lot in the last 6 years). my quality of life is nothing compared to what it used to be 6 years ago and every day is a struggle not only physically but mentally due to strain of not feeling well. im 24 and feel like im 90. I’m a shadow of the person I used to be. the daily symptoms are muscle aching, ichy skin around my abdomen and back, pains in lymph glands and chronic fatigue. i feel like im going crazy all consultants seem to do there basic checks and once they come back normal as nothing shows in my urine cultures (as I don’t currently have an acute flare up as I’ve been with the same partner for 5 years) they discharge me or brand me with health anxiety and i feel like i have no trust in consultants as they make money for simple checks and get you out the door as soon as possible. i have figured out that the only time get a flare up that makes the discharge and the closing of the meatus (urethra head) is when i change sexual partners but the infection is dormant until this point. i have had a cystoscopy which has shown no area of concern although i think the camera automatically goes past the point of where the red patch is once inserted. im extremely exhausted and just want my old life back. i know there is more pressing matters to worry about in the world and worse things to have but it is stopping me form living. any help would be much appreciated as i would do anything for a diagnosis and a treatment plan and to be taken seriously. The only treatment that helps ever time I get this flare up doxycycline however it doesn’t clear it all up as it leaves me with pain in my groin due to the reactive lymph node that is still very present and these two red/yellow/white patches on each side of the meatus. I have sent the last post stating some said a shot of rocephin and a course of doxycycline worked for them but I’m unsure if there symptoms are similar to mine. Any advice would be much appreciated and thanks for reading.
Post a picture of what it looks like. Can’t tell what you have from just the text.
similar to this any thoughts ??