


Alright- so I have the same exact situation going on, and it has been 11 months worth of visits to no avail. I went to an infectious disease Dr. and tested neg for gon, chlym, syphilis, hsv2, and hep a/b/c. I have HIV-1 undetectable (which is why i see the inefc disease dr) and I tested positive for HSV-1 when I had a full std panel done in college 10 years earlier, but I never had any symptoms and my doc in college said that if you had cold sores as a kid it will often test positive. I don't have any lesions or symptoms of genital hsv-1, yet my current infectious disease dr insists that is must be genital hsv-1 so he put me on antivirals, yet it did nothing for 10 days. It actually made things worse.
I have seen two urologists over the past year who had no idea and blamed it on my prostate then bladder yet all tests were normal.
then i started seeing a physical therapist and pelvic dr who insisted it was pudental neuralgia, and thousands of dollars later in PT visits and even a minor surgery called a pudental nerve block, it is even worse. After the nerve block where they inject steroids into my nerve, everything got much much worse. The pain is now constant 24/7 and has been so for about 4 weeks. I even said what kind of outbreak would last for 4 weeks without subsiding?
I'd like to bring this information into my infectious disease dr and see if he would be willing to try to the shot for gonn- question, is there any negative to getting the but shot if this isn't the case?
Besides the urethritis and pain at the tip, i now have really bad dehydration symptoms as well as weight loss, vision issues and general fatigue. All my metabolic and blood panels came back completely fine. My 100 urine tests all come back completely fine, the c-reactive protein test comes back normal, my a1c is normal, i don't have yeast infection, etc. They have tested everything under the sun. I asked about chancroid, but my dr insisted it was not something i would get state side in his 30 years of doing this.
I am also not sexually active. My partner gives me oral sex occasionally (hasn't in a long time due to this) and he was tested and is fine.
In theory he could have had it in his throat and given the bacteria to my urethra, but I am more concerned about my health getting progressively worse week after week with nothing to show for it in test results. my quality of life is horrible and getting worse every day. I can barely focus on anything and am so tired all the time.
So what say you? should i ask for the shot and cite neisseria meningiditis? Have your symptoms completely subsided since?