i have just come back from 2 weeks in Northern Cypress. While away I enjoyed the heat my pain was no were near as bad as at home and I was up every morning at a resonable time. The journey home was long and tiring and now I'm really suffering. I arrived back we'd morning and had things to do which I seemed to cope with but by Saturday all I was capable of was staying in bed and sleeping. I'm hoping to make it out of the house to the shop today but my head is banging. This condition doesn't half take away the lovely memories of having a holiday.
Hi Katheleen I went a way for a week a couple of weeks ago. it was only a 2hr drive to the sea side. Bit it knocked me about for 2 days I was in alot of pain with my back legs and didnt feel good at all. I spent the 1st 2 days of the holiday in the flat unable to go out. we had a flat that was over looking the sea and the promonade.so at least I could see the sea and hear from the flat. it ceratainly put a dampner on the start of our holiday fibro is certainly a kill joy. take care gentle hugs
Hi Kathleen. We went to America for a wedding last year and the heat was great over there. Pain fairly low apart that my shoulder played up and when I got home they found I had a bone spur in my shoulder joint.
I have really struggled with the heat here over the last few weeks, think that's because it is humid heat here rather than the dry heat in other places in the world.
I struggled coming back, but I don't normally sleep on planes, but slept like a log and hadn't taken anything. Woke up and said to my daughter why are the lights on, she said cause we are about to land. Like yourself I suffered for days after.
Like Kaz, fibro really likes to make us pay for any good times we have.
Take care and gentle hugs
Hello - I was exactly the same. Went to Cyprus for 2 weeks. Had an amazing time, no pain and managed most days without sleeping with the odd exception. Since coming home it took me about 3 days to recover, and after trying to go for a walk this morning I ended up back in bed. What a bummer x
Fibro loves knocking us back especially if he thinks weve over done it. My advice is rest for today and sleep if you can. just take each day as it comes pace yourself.take care gentle hugs
I'm just very fed up. In the heaviest I've been in years as I cannot get out and exercise. When I try I suffer for it afterwards. It really is so depressing x
Its hard for us when we try and do anything normal just to keep getting knocked back. it really upsets me I end up down depressed. I use to love going out in to the country with my husband and dog, we would walk for miles. I just loved walking and loved the country side. I cant do that any more if we go out I have to be pushed in the wheelchair. we use to love looking round a certain antique shop by us I cant any more wheelchair acess isnt good the shop tends to be very buisy theirs no room for a wheel chair.I can only do bits pieces house work wise so I find that very frustrating. I now do all my shopping on line.so much has changed but we have to make the best of how things are and just plod on how ever tough it is. I would do anything to have the old me back, but sadly thats gone and Ive got to get use to the new me easier said than done, when you dont like the new you. never mind onwards upwards take care.
You say you had pain in back of your legs just curious what kind. Like was it your calves an was they sore an tight or what kind of pain. Just tryin to figure this fibro thing out.
I go this Friday for another emg an nerve conduction test so hopefully it will go well an show something but nothing life threading.
Amy
Hi Amy My legs feel very tight at the calves, both my legs are stiff and very painful. My pain that I have is always in my back, and legs. It very hard to describe the pain its not a stabbing pain or a dull ache its just like toothache but 1,000 x worse. Its thats bad I struggle to walk and just end up lieing down and not moving.take care gentle hugs
Fibro doesnt like us having a good time Janet, I was miserable down the first 2 days of my holiday because of the agony I was in how exhausted I felt. Wish a cure could be found? hope your having a good day take care gentle hugs
Thankyou for all your comments helps to hear I'm not alone. It's sooo annoying though an holiday abroad always really helps me with my pain but then I suffer when I return home. I'm so tired and achy it's like having a flu virus sort of.
warm bath may help just rest it puts a dampner on what should of been a happy memeorible time. thats fibro for you doesnt like us enjoying ourselves hope you feel less achy tomorrow and tired take care gentle hugs
im so sorry you feel like that hope you feel a bit better soon x
Hi Katherine. I am the same I have never been as heavy as I am now. The Practice Nurse at the surgery told me off as I had put weight on and not lost it. It's so hard to loose weight with fibro as you say we are unable to exercise, even a short walk with my dog causes pain in my hips, we have to stop every few yards just so I can ease the tension in my back. Never mind we keep going with our collective heads down
Hope you feel better tomorrow. Take care and gentle hugs
Hi Kaz. You are so right it is hard to keep getting down and having to bounce back. I never plan anything just see how the day turns out. It is a shame that you can't get to go to your favourite antique shop. Like you it takes ages to get anything done in the house. Ironing tomorrow, think I may need to sit down to do it. I would like the peron I used to be back, the one who could go to work 9-5, come home, cook dinner and clean up. Like you and the others on here most days I don't like the new me.
Take care and gentle hugs. Hope you feel better tomorrow
Hope you have abetter day too tomorrow, I sit down to do my ironing I iron to garments have a rest then a couple more, I have to do it like that as struggling to hold it. its so annoing jobs that didnt use to take me long are now taking me ages to do? I could do with some one to help me with the cleaning, Im really struggling with it.I could sit cry with how my home is looking. take care entle hugs
Nurse should not of told you off silly woman its not your fault its part of fibro. I am gaining weight Im living on mainly salad? honestly some people just have no idea their is so much ignorance to fibro in the medical world she wants to read up on fibro
you take care dont listen to her
Well going for a walk this morning really has done me in for the day. I've been in a foul mood and despite resting for an hour then taking my little boy to the cinema where I just sat, in totally exhausted. It really does make everything 10 times harder and I've no idea how I'm going to shift this weight. Since becoming had in January I've gained just over a stone. Non of my clothes fit me, and I feel disgusting. I'm wanting to try swimming to see if that doesn't take it out of me so who knows x
thing with fibro is you have to pace yourself, I know this sounds daft but you probably over did things today. I know from my own experiences you just cant do everything you want to do. eg walk then cinema. Its like you can only do one of those things not both. doing both has resulted in you being exhausted. Its sooo frustrating that we cant do what we want to do Im struggling weight wise also take care.
Yes it's so awful we cannot do the simple things we used to be able to do no problem. I feel like such a bad mum - does anyone else find it hard just functioning in parent juries too? I'm considering trying a cleanse together with slimming world as a way of improving how I feel and my weight. X