Return of TN pain, 2 years post MVD

Brain and nerves
1

Hi all, I had MVD surgery two years ago for my TN and have been blissfully pain free up until around three weeks ago, when I suddenly got a series of awful return attacks. The main difference this time is that I got woken up at night by searing attacks, which didn't happen two years ago (previously I only got attacks when awake - talking, eating etc. The attacks have stopped again, so I don't know whether to pursue an appointment with my neurologist (I have MS) and neurosurgeon with a view to getting another MRI scan to see whether there is a fresh vascular compression, or to wait and see now what happens. It takes time to get an appointment here in the UK, so should I set the ball rolling now, in case the pain comes back with a vengeance? Anyone had a similar experience? Sasha

2

i myself wont have the MVD surgery because sadly the TN does come back. Many people like yourself get relief maybe for years and then out of nowhere it starts up. i am so very sorry you are going through this again. I would highly reccomend you get an appointment with your doctor. I live in the United States BTW.. how long does it take to see a doctor in the UK?

3

Thanks for your reply. I decided to get the ball rolling in case the pain returns, so put a call in to my doctor/GP. It can take a few months to be seen if you’re not private, here in the UK.

Best wishes

Sasha

4

best wishes and will keep you in my prayers. Wow that is so sad it takes that long to be seen.

5

I’d get an apt ASAP just to be on the safe side..m

6

my friend had the surgery,she is doing wonderful. It might not ever come back,as with all things not all outcomes are the same,depending on surgeon etc. Good luck.

7

Yes, that’s my thinking too now.

Thanks

Sasha