Am getting a bit fed up with my doctors. All she does if give me prescriptions and I'm still in pain.
Has anyone had an referral to rheumology? Am thinking that might be the next step
Push for an appointment, I got nowhere for a year with my GP before I finally got to see a rheumatologist. I saw him on Tuesday and got diagnosed with FM, CFS and Raynaud's. Good luck x
From what I've heard it seems that only a rheumatologist is fully qualified to be able to diagnose fibromyalgia. So yes it looks like the next step in diagnosis all the best x
I have been seeing a rheumatologist off and on for years, she's excellent. I was discharged then re referred she has referred me for nerve conduction tests and to the pain clinic. If you get a good one they are amazing. Ask your GP to refer ASAP.
I got palmed off with Naproxen from the 'nurse practitioner' for a few months. After going back for the 5th time when my feet were so swollen I could barely walk, the nurse asked a Doctor for his opinion, he took one look at me and referred me there and then. Rheumatologist diagnosed Fibromyalgia within 30 mins of seeing me, told me the Naproxen would have no effect - other than damaging my stomach and to stop taking them immediately. Rheumatologist also reffered me for Physio too. Keep pushing the Docs for a refferal, and if you're not happy with one Doctor, ask for a second opinion. Hope you're feeling okay xx
Discussion about fibromyalgia on this forum at the moment re dr John Lowe , clinician and researcher for thyroid and fibro.
Not feeling great today, have been really tired and emotional all week and really sore. I feel quite stiff as well. Doctor gave me naproxen 500mg twice a day with omeprazole but I do worry about my stomach. I don't think they really do anything.
Bit scared of seeing my doctor invade she says no to a referral 😕
i am back to see mine on the 24 augast
.but they only offer you stuff like pain injections that will work for some but not for others .and why bother with prescriptions if they are not helping
not being funny but these are strong meds ,
Bless you, I remember those early days. I got put on Amitriptyline 10mg and within a month really felt a difference - before them it took me a good few mins to get off the sofa and even longer to get out of bed as I was so stiff (I was only 23 at the time). My worse day was when I couldn't even lift my cereal spoon to my mouth because my hands were that stiff and I just remember sobbing. My feet and legs would hurt so bad that I thought I was going to collaspe with the pain too. Most of my problem was not being able to sleep properly at night, and these tablets really helped. I'm now due a baby any day now and all my symptoms have totally gone, and can even straighten my fingers out (they were bent before due to tight tendons) - praying it doesn't come back. Try to keep positive, I found it really helped. I have a five year old that used to keep me sane on my bad days. Don't be scared of the Doctors, really push for a referral xx
Hi Arual
It took me years to see a rheumatologist and when I did it took 2 yrs for a diagnosis only to be told by her that in that hospital they do not see/treat patients with fibro and discharged me back to GP. All she did was write the word "fibromyalgia" on a piece of paper and told me to research it myself. Do hope you get a better service!
BLOODY HELL ! REALL CARE AND UNDERSTANDING .
NO WONDER WE FEEL DOWN WITH THAT ATTIDUDE FROM A SPECILIST LOL
Yep - came out absolutely stunned. I had been suffering since the 1980s. told it was osteoarthritis then it wasn't it was possibly lupus. Ignored until new gp took over she referred me. Took 40 weeks for appointment to come through. Saw consultant, took bloods told 3 month follow up. Had 14 appointments cancelled. Consultant went on maternity leave. 18 months after original consult saw new consultant who diagnosed fibro. That's it in a nutshell. I am sure there are some caring consultants out there it's just I have yet to meet one. Even paid to see one privately but he couldn't be bothered - saw him on a Friday before bank holiday and was his last appointment and he couldn't wait to get me out of the door!
Maybe I smell or something......
My GP has referred me to rheumatology - she said that without a diagnosis from a consultant it would be much more difficult to move on with anything! I was warned it will take some months to get my appointment.
I AM SURE YOU DONT HUN .
but its like they are saying it dosent exsist well we all cant be wrong we all cant be suffering so badly and making it up ,it makes me so dammend cross
i went for my pip medical today what a laugh a women in a office firing questions at me ,trying to trip me up . asked at the end to do some excersises but said i didn thave to if i wasnt up to it
i really wasnt i didnt get to bed till 2am then i was up at 6.30
had 40min drive on bendy roads so i felt car sick and tired
but now i suppose i will get turned down and have to appeal
more stress.
its like if you do them its you can manage fine , if you don tdo them unwilling to try , so either way you cant win .
i hope you find some help soon .its bad enough suffering without the medicals making out your swinging the lead .AS IF WE WOULD CHOOSE TO BE LIKE THIS IF WE HAD A CHOICE .
Fingers crossed for a positive outcome. They sure don't make things easy for us do they.
Hi Arual
The rheumatologist is the one who can confirm that you have fibromyalgia. You need to keep going back to the doctors and ask for a referral. If your doctor is still refusing go to your local PALS team. They will be able to offer you further advise.
Hope you get results soon and take care. 
x
Thanks for your advice everyone I think it's definaltey something I need to do. As well has the muscle pain and fatigue I'm getting stiffness in my joints and tingling at the bottom of me neck/shoulder which is really bizarre
no they dont
i am waiting on results from my rheumatologist but i know bloods etc showing as fine. My pain was not bad during my visit to him but he doesnt see what I'm like when I'm swollen and in pain. I am honestly at the end of my tether. I;ve become so forgetful too, defrosted freezer and forgot to stwich it on so everything in the bin and put dinner on and went shopping and forgot to turn it off. I know I've mentioned in the past that my family don't understand but I couldnt hear them all moaning about what I had done. just had week off work to try sort things but felt rotten.
Sorry for moaning I hope you get on ok with a rheumatologist from what I read some seem so helpful.
meant I ' could' hear my family moaning... sorry